O/T...Sort Of...Things Come In 5's - Appendiceal + Prostate Cancer - Update

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macpudd
Posts: 75
Joined: Tue Jul 21, 2015 7:00 pm

Re: O/T...Sort Of...Things Come In 5's - Appendiceal (Appendix) Cancer - Update

Postby macpudd » Sat Oct 28, 2017 5:00 pm

Sometimes life is just so shitty, really hope things improve for your friends.
Regards
Mapudd
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
cea pre surgery 1.6 after .6
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm met on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain surgery 80% of tumour removed
due to have radiation and chemo starting in 3/4 weeks

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CRguy
Posts: 9593
Joined: Sun Feb 10, 2008 6:00 pm

Re: O/T...Sort Of...Things Come In 5's - Appendiceal (Appendix) Cancer - Update

Postby CRguy » Sun Oct 29, 2017 1:48 am

bitchslapped wrote:At this time I am about to flip over the top, Honest to God I am not kidding... I know my friend...I know

So who do you treat first, him or her? ... Both

I've got to get outside & do something physical b4 I explode... WORD !
BS

Your topic BS, so I will only share that I am also dealing with prostate cancer in my youngest cousin.
BTDT with my Father (mesothelioma) and Mother (breast cancer) .................
it just seems to go on doesn't it ?

DO what you need to ... NEED TO FOR YOU !
being the patient or the caregiver/friend = WTF ?
here we go again.

Sending you and YOUR homies POSI+++++ VIBES and HARMONY
that is all I can do right now over the web.

Wish I could do more
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

zx10guy
Posts: 174
Joined: Mon Jan 07, 2013 12:54 pm

Re: O/T...Sort Of...Things Come In 5's - Appendiceal (Appendix) Cancer - Update

Postby zx10guy » Sun Oct 29, 2017 11:20 am

Recently for some reason I decided to do an online search for someone I knew from college. After some checking, I found her and saw that she did get married and has 2 young kids. Reading more through what was put online, her husband went in to get checked out for back pain that he thought was from moving something heavy. The result of this checkup was his diagnosis of stage 4 lung cancer and given 6 months to live. The doctors were correct and he passed within that 6 month window.

Three years later, she was at the point where she was ready to move on with her life. Met a new man who proposed to her and she accepted. She went in for a doctor's appointment and the result of that checkup was her diagnosis of stage 3 pancreatic cancer. She lived for a couple of years and ended up passing away in 2012 at the age of 42 leaving behind her two young kids now with no parents.

Very tragic.

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Shana
Posts: 399
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: O/T...Sort Of...Things Come In 5's - Appendiceal (Appendix) Cancer - Update

Postby Shana » Sun Oct 29, 2017 2:06 pm

Unbelievable, so very sorry to hear about your BFF and her husband now too! :(

Take care of yourself, you know you need to stay strong for them.

Hugs and prayers
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

DarknessEmbraced
Posts: 3115
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: O/T...Sort Of...Things Come In 5's - Appendiceal (Appendix) Cancer - Update

Postby DarknessEmbraced » Mon Oct 30, 2017 2:19 pm

I'm sorry about your husband and hope you get answers soon!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17


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bitchslapped
Posts: 1478
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: O/T...Sort Of...Things Come In 5's - Appendiceal (Appendix) Cancer - Update

Postby bitchslapped » Tue Nov 07, 2017 4:32 pm

Thx Maia. BFF had consult & is penciled in (in pen for UCSD, in pencil for her) for HIPEC Dr. Lowy, UCSD (University of California, San Diego) for Dec. 1. Sounds like she is a good candidate on the low end (PCI estimated below 10) of peri mets, estimate 5 hr surgery. No staples for closing incision; he uses glue & mytomycin-C for chemo agent. She is very apprehensive about surgery + long recovery. Now w/her DH's dx of St IV prostate cancer w/mets to rt hip/pelvic area, 8th rib, she is strongly thinking of postponing her surgery depending on whether she can get everything choreographed between the two of them = doc appts + insurances + hotel accomodations, etc. We have been furiously reading, learning about prostate cancer while she is half crazed trying to manage all of this, find & get him to urologist (done, prostate hard as a rock) to medical oncologist (done as of yesterday) & scheduling beginning of tx (he is reluctant @ his age 67) before they have to fly out for her surgery & subsequent recovery. 2nd opinion may or may not occur before he starts hormone therapy, but looks like that is where you start. Prostate cancer & tx meds all very confusing.

The starting plan for him is Lupron inj + Casodex pill form, then when back from San Diego, add Zytiga (+prednisone I guess has to go w/it). Getting hubby to become part of the medical establishment/system...well the jury is still out on that. QoL is huge to both of them. As well documented on this form, making decisions based on what you don't know, furthered by what you don't know is difficult @ best.

Though I do make a bit of noise from time to time, I do realize that the longer we're floating around the "sea of life" we're going to pick up a few additional barnacles, carbuncles, you name it...but this all seems ridiculous in hitting @ once w/my snl (pancreatic cancer in June), my BFF (advanced appendix cancer in Oct) + BFF's DH (advanced prostate cancer also in Oct).

CRguy, You are no doubt a great resource for your cousin. If you're interested in sharing, I've got room here.

BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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CRguy
Posts: 9593
Joined: Sun Feb 10, 2008 6:00 pm

Re: O/T...Sort Of...Things Come In 5's - Appendiceal (Appendix) Cancer - Update

Postby CRguy » Tue Nov 07, 2017 5:11 pm

bitchslapped wrote:CRguy, You are no doubt a great resource for your cousin. If you're interested in sharing, I've got room here.
BS

still waiting on some Doc reports/feedback
we have been in touch but has not gotten back to me yet so I am giving him time/space
one of his sisters works in a docs office and her DH has esophageal cancer surgery etc. so I know he has hands on folks there and I am at a distance
so ...... " we also serve who stand and wait " sometimes

will be back when I have more info and what we come up with

Cheers homie
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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bitchslapped
Posts: 1478
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: O/T...Sort Of...Things Come In 5's - Appendiceal + Prostate Cancer - Update

Postby bitchslapped » Tue Nov 07, 2017 5:44 pm

so ...... " we also serve who stand and wait " sometimes

CR



We surely do. That is now my role...And sometimes that is all that is needed.


BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia


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