Thx Maia. BFF had consult & is penciled in (in pen for UCSD, in pencil for her) for HIPEC Dr. Lowy, UCSD (University of California, San Diego) for Dec. 1. Sounds like she is a good candidate on the low end (PCI estimated below 10) of peri mets, estimate 5 hr surgery. No staples for closing incision; he uses glue & mytomycin-C for chemo agent. She is very apprehensive about surgery + long recovery. Now w/her DH's dx of St IV prostate cancer w/mets to rt hip/pelvic area, 8th rib, she is strongly thinking of postponing her surgery depending on whether she can get everything choreographed between the two of them = doc appts + insurances + hotel accomodations, etc. We have been furiously reading, learning about prostate cancer while she is half crazed trying to manage all of this, find & get him to urologist (done, prostate hard as a rock) to medical oncologist (done as of yesterday) & scheduling beginning of tx (he is reluctant @ his age 67) before they have to fly out for her surgery & subsequent recovery. 2nd opinion may or may not occur before he starts hormone therapy, but looks like that is where you start. Prostate cancer & tx meds all very confusing.
The starting plan for him is Lupron inj + Casodex pill form, then when back from San Diego, add Zytiga (+prednisone I guess has to go w/it). Getting hubby to become part of the medical establishment/system...well the jury is still out on that. QoL is huge to both of them. As well documented on this form, making decisions based on what you don't know, furthered by what you don't know is difficult @ best.
Though I do make a bit of noise from time to time, I do realize that the longer we're floating around the "sea of life" we're going to pick up a few additional barnacles, carbuncles, you name it...but this all seems ridiculous in hitting @ once w/my snl (pancreatic cancer in June), my BFF (advanced appendix cancer in Oct) + BFF's DH (advanced prostate cancer also in Oct).
CRguy, You are no doubt a great resource for your cousin. If you're interested in sharing, I've got room here.
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia