Side effects or something else

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Sara!!!!
Posts: 17
Joined: Wed Jul 19, 2017 9:57 am

Side effects or something else

Postby Sara!!!! » Wed Oct 11, 2017 2:51 am

Hi everyone. My mom has stage 4 colon cancer with mets to liver and possible omental involvement. She had her second cycle of folfiri and erbitux. She's in severe pain. Abdominal pain and also generalized body aches and bone pains. Shes very lethargic. And says her heart is sinking. Anyone else experience this?

SweetC80
Posts: 62
Joined: Fri Sep 01, 2017 1:28 pm

Re: Side effects or something else

Postby SweetC80 » Wed Oct 11, 2017 8:51 am

My mom has horrible responses to chemo and is unable to walk w/o a 2 person assist even after Folfox. She ends up only getting chemo once a month because it takes her that long to recover. Last time she was even in the hospital for about a week and has almost no memory of it, and her Onco decreased her chemo by 25%. She has Stage IV with Liver and Lung tumors. Since finding the liver tumor she started a new chemo, Irinotecan, and they do give her an additional drug for stomach cramping before her infusion. I would have to look into the name of it. I know it isn't the same experience as your mother, but there is a reason for it maybe ask if this is an option for her if she isn't already getting it.

Good luck and I hope your mom's oncologist can find a balance to help your mom's symptoms.
My Mom's history
68 years old at diagnoses
12/16 Stage IIIb Rectal Cancer CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon (9 non resectable pre cancerous polyps), Rectum and Anus removal Perm Ileostomy Bag
7/17 Starts FOLFOX
9/17 Stage IV 9cm Liver Met plus abdominal Lymph Nods and suspicious Lung Nodule CEA 197
9/17 Starts Irincotecan CEA 160
10/17 Confirmed KRAS Positive CEA 210
11/17 CEA 425 waiting on scan

KElizabeth
Posts: 386
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: Side effects or something else

Postby KElizabeth » Wed Oct 11, 2017 1:29 pm

Sara!!!! wrote:Hi everyone. My mom has stage 4 colon cancer with mets to liver and possible omental involvement. She had her second cycle of folfiri and erbitux. She's in severe pain. Abdominal pain and also generalized body aches and bone pains. Shes very lethargic. And says her heart is sinking. Anyone else experience this?

Sara,
Folfiri often causes abdominal cramps that can be quite severe but can be controlled with medications such as Attropine, Nulev or Limotil. I had aches and pains while on treatment but it was worst in the first few treatments it for easier after a few months. Let the oncologists know of her symptoms and they should be able to manage her pain.
So sorry she has to go through this.
Female age 38- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 -current
CEA at recurrence:10.1/august, 2015
CEA: 1.9 February, 2016
CEA: 16.4 March 2017
CEA: 90.1 October 2017

Sara!!!!
Posts: 17
Joined: Wed Jul 19, 2017 9:57 am

Re: Side effects or something else

Postby Sara!!!! » Wed Oct 11, 2017 1:56 pm

SweetC80 wrote:My mom has horrible responses to chemo and is unable to walk w/o a 2 person assist even after Folfox. She ends up only getting chemo once a month because it takes her that long to recover. Last time she was even in the hospital for about a week and has almost no memory of it, and her Onco decreased her chemo by 25%. She has Stage IV with Liver and Lung tumors. Since finding the liver tumor she started a new chemo, Irinotecan, and they do give her an additional drug for stomach cramping before her infusion. I would have to look into the name of it. I know it isn't the same experience as your mother, but there is a reason for it maybe ask if this is an option for her if she isn't already getting it.

Good luck and I hope your mom's oncologist can find a balance to help your mom's symptoms.

Thank you so much. I hope your mom feels better soon too

Sara!!!!
Posts: 17
Joined: Wed Jul 19, 2017 9:57 am

Re: Side effects or something else

Postby Sara!!!! » Wed Oct 11, 2017 2:00 pm

KElizabeth wrote:[quote="Sara!!!
Sara,
Folfiri often causes abdominal cramps that can be quite severe but can be controlled with medications such as Attropine, Nulev or Limotil. I had aches and pains while on treatment but it was worst in the first few treatments it for easier after a few months. Let the oncologists know of her symptoms and they should be able to manage her pain.
So sorry she has to go through this.

The body aches have been really bad with this. Folfox she tolerated quite well. Every pain and ache she feels makes me think of mets :( and gets us worried. Thank you so much for your reply.


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