The Colon Club

I'm 4 years since dx. Most recent surgery in NY (april) for removal of residual colon tumor and liver pump-did not go as planned they found 3 peritoneal spots -in June developed hip pain- though it was due to positioning-turns out its bone mets (who gets bone mets from colon cancer???) --anyway

Oncologist thought we should go for a trial-seems belief is to attack what we can now vs waiting until we are desperate (basically my thought was he felt all was lost) so
got selected but suddenly depressed at thought of no chemo (until or if trial fails) and using new MD's

on top of that now an issue with getting into trial due to increased blood pressure (still on Avastin so likely main cause) though I am prob the only overweight person with cancer in this world (I thought 2 colon resections and chemo would surely end the battle with my weight)
this constant yo-yo of change -no change is wearing me down-going for repeat blood pressure in AM--finger crossed and prayers

mike

mike218 wrote:I'm 4 years since dx. Most recent surgery in NY (april) for removal of residual colon tumor and liver pump-did not go as planned they found 3 peritoneal spots -in June developed hip pain- though it was due to positioning-turns out its bone mets (who gets bone mets from colon cancer???) --anyway

Oncologist thought we should go for a trial-seems belief is to attack what we can now vs waiting until we are desperate (basically my thought was he felt all was lost) so
got selected but suddenly depressed at thought of no chemo (until or if trial fails) and using new MD's

on top of that now an issue with getting into trial due to increased blood pressure (still on Avastin so likely main cause) though I am prob the only overweight person with cancer in this world (I thought 2 colon resections and chemo would surely end the battle with my weight)
this constant yo-yo of change -no change is wearing me down-going for repeat blood pressure in AM--finger crossed and prayers

mike

Mike - so sorry to hear you're going through this. For the record, I'm the poster-child for overweight person with cancer, so don't think you're alone there. I understand how your mind would go there, but then there are SO many recent advancements that are really making a difference, if your doctor is possibly going to help get you on a short-list to get new/trial treatment that could help, why not check it out. To hell with why he offered (pardon my french). It's so hard not to let this disease get you down, but don't lose hope. There are so many stories of hope. Try not to let it get into your head. Also, make sure they take your blood pressure at least 3 times. For me, since diagnosis, the first 2 times are always high just due to nerves, even if you feel calm, cool and collected. I'll be saying some prayers for you tonight. Let us know how it goes.

Smiles, hugs and prayers,
Tracy

Thank you--bp still up this AM so from what I can tell no go with this trial--told them thank you for their effort (nicely) and decided that what is meant to be is meant to be-
will see oncologist Monday for better meds to control bp..just so we don't add stroke to the list of illnesses

at least now I know I want to be in a trial

mike

mike218 wrote:Thank you--bp still up this AM so from what I can tell no go with this trial--told them thank you for their effort (nicely) and decided that what is meant to be is meant to be-
will see oncologist Monday for better meds to control bp..just so we don't add stroke to the list of illnesses

at least now I know I want to be in a trial

mike

Sorry to hear it was still up, glad to hear that now you'll be getting some meds to control it. Hopefully going through this at least has you on a path that will get you where you need to be for something else. I'll definitely keep prayers coming.

Hugs,
Tracy

I hope you have excellent response to the trial!

Best wishes to you on your tough battle/Journey.

Warrior ON!

thank you -proceeding with trial but need to get BP down, no chemo x 28 days , scary...

I hope your BP goes down and that the trial goes well!*hugs*