The Wait

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Noon32316
Posts: 34
Joined: Sun May 08, 2016 11:33 am

The Wait

Postby Noon32316 » Mon Oct 09, 2017 1:38 pm

Hello everyone,
I first joined the colon club family in Spring of 2016 and although I do not post often, I do visit nearly every day, several times a day, to read the information and advice you all share. Thank you for sharing and for putting into words so many thoughts and feelings that I struggle to articulate or understand.
My latest CT scan indicated nodal metastases. It could be something but hoping it's nothing. I had the biopsy procedure last Thursday and am now restlessly wandering through the agonizing hours of waiting for the results (such a lonely place to be but I know I'm not alone). I’m anxious but oddly calm as well - not quite sure what to do or think. Preparing for the worst but definitely praying for the best.
Healing hugs to all.
3/16: Dx colon cancer (sigmoid). Age: 36
4/16: PET/CT, Sigmoidectomy, Port installed
5/23/16 to 11/30/16: Folfox - 12 tx, no oxaliplatin for #11 & #12
11/5/16: PET/CT - NED
3/21/17: Colonoscopy = clear
9/27/17: CT scan = pathologically enlarged retroperitoneal lymph nodes - nodal metastases
10/5/17: CT guided needle biopsy
10/13/17: Confirmed - Recurrence

CEA '16 & '17: < 0.5
Original Dx: Stage 3C, T4a, N2b, Grade 3, 16/16 lymph nodes, infiltrating signet-ring cell carcinoma
Lynch negative

User avatar
susie0915
Posts: 818
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: The Wait

Postby susie0915 » Mon Oct 09, 2017 1:51 pm

Waiting is the worst. Praying for a good result.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

Re: The Wait

Postby SweetC80 » Mon Oct 09, 2017 2:16 pm

Good Thoughts for good results on your biopsy.
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

TXLiz
Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: The Wait

Postby TXLiz » Tue Oct 10, 2017 9:23 am

Thinking of you and hoping your biopsy is negative. :D
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

User avatar
WriterGirl1969
Posts: 492
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: The Wait

Postby WriterGirl1969 » Tue Oct 10, 2017 8:11 pm

Noon32316 wrote:Hello everyone,
I first joined the colon club family in Spring of 2016 and although I do not post often, I do visit nearly every day, several times a day, to read the information and advice you all share. Thank you for sharing and for putting into words so many thoughts and feelings that I struggle to articulate or understand.
My latest CT scan indicated nodal metastases. It could be something but hoping it's nothing. I had the biopsy procedure last Thursday and am now restlessly wandering through the agonizing hours of waiting for the results (such a lonely place to be but I know I'm not alone). I’m anxious but oddly calm as well - not quite sure what to do or think. Preparing for the worst but definitely praying for the best.
Healing hugs to all.


So sorry you have to go through this. When do you find out your results?
Will be saying prayers that it turns out to be nothing.
Hugs,
Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear; 4/17/18 CT clear;
NED 2 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

User avatar
horizon
Posts: 1473
Joined: Tue Apr 12, 2011 10:10 pm

Re: The Wait

Postby horizon » Tue Oct 10, 2017 9:12 pm

I feel for you. Waiting is the worst. Hoping for good results for you.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 7 years NED). Is this real life?

testing765
Posts: 309
Joined: Tue Aug 19, 2014 9:41 am

Re: The Wait

Postby testing765 » Tue Oct 10, 2017 9:16 pm

My prayers are with you. Waiting for test results is so hard.
male-age 44 at diagnosis
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9

Noon32316
Posts: 34
Joined: Sun May 08, 2016 11:33 am

Re: The Wait

Postby Noon32316 » Fri Oct 13, 2017 2:09 pm

Thank you everyone for your prayers and well wishes. The cancer has come back unfortunately. Butt I got this. Survivor strong.
3/16: Dx colon cancer (sigmoid). Age: 36
4/16: PET/CT, Sigmoidectomy, Port installed
5/23/16 to 11/30/16: Folfox - 12 tx, no oxaliplatin for #11 & #12
11/5/16: PET/CT - NED
3/21/17: Colonoscopy = clear
9/27/17: CT scan = pathologically enlarged retroperitoneal lymph nodes - nodal metastases
10/5/17: CT guided needle biopsy
10/13/17: Confirmed - Recurrence

CEA '16 & '17: < 0.5
Original Dx: Stage 3C, T4a, N2b, Grade 3, 16/16 lymph nodes, infiltrating signet-ring cell carcinoma
Lynch negative

User avatar
susie0915
Posts: 818
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: The Wait

Postby susie0915 » Fri Oct 13, 2017 6:20 pm

I'm sorry. And yes you do have this.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

DarknessEmbraced
Posts: 3080
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: The Wait

Postby DarknessEmbraced » Sat Oct 14, 2017 5:44 pm

I'm sorry your cancer has returned.*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17


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