GOOD NEWS ON BEANSMAMA

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mariane
Posts: 574
Joined: Sun Sep 13, 2015 6:16 pm

Re: GOOD NEWS ON BEANSMAMA

Postby mariane » Wed Oct 18, 2017 9:10 pm

I am so happy that everything is going in the good direction and Beans is getting stronger!
:)
mom of 8 years old twins, dx @ 40 with upper rectal cancer, 10+ liver mets in 6/2015, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

CatzinDJ
Posts: 35
Joined: Thu Dec 22, 2016 12:06 pm

Re: GOOD NEWS ON BEANSMAMA

Postby CatzinDJ » Thu Oct 19, 2017 3:14 pm

Great news! I've been thinking about Beanmama and praying for her. Beansmama...keep on cussing! Keep the spirit up! I am thrilled that you are eating and standing! Your liver is working and Larry is gone, gone, gone! Thank you Lord!
53 & Female
DX: Rectal Cancer (RC) diagnosed in Thailand
Tumor Location: Rectum
Tumor type: invasive adenocarcinoma
Tumor size: 4 mm
Tumor grade: low grade
Baseline CEA value (4.46) 5/2016
CEA 6/2/2016 4.8
Lynch- Negative.
LAR 7/13/2016 in Seatle, Wa
Home 7/18/2016.
CEA 12/9/2016 2.8
CEA 6/8/2017 5.6
Colonoscopy and Cat scan June 2017 NED? A nagging suspension of mine about the CEA rising.

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HopeForJesse
Posts: 226
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: GOOD NEWS ON BEANSMAMA

Postby HopeForJesse » Thu Oct 19, 2017 9:42 pm

Prayers for you dear Beans Mama!
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS, mod dif adenocarcinoma, high grade dysplasia, TP53 APC,BRCA2
12/15 CEA 241, 4/16 CEA 22.3 >6 FOLFOX 7/16 CEA 4.3 11/17 1.8 3/18 132 9/17 4.2
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections/ablations 7/16
FUDR 8/16 FOLFOX resume 8/24 reaction 12/16 No more chemo :D
Rising CEA 3/17 Xeloda, 5/17 Erbitux & Iri 9/17 stable but lung and lymph mets
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

Lee
Posts: 5258
Joined: Sun Apr 16, 2006 4:09 pm

Re: GOOD NEWS ON BEANSMAMA

Postby Lee » Sun Oct 22, 2017 2:42 pm

A bump back to the top.

BeansMama,

Hope you are doing better. You are never far from my thoughts and prayers.

Gentle hugs,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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WriterGirl1969
Posts: 453
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: GOOD NEWS ON BEANSMAMA

Postby WriterGirl1969 » Wed Oct 25, 2017 5:41 pm

Enormously positive update on BeansMama - she is over the worst and doing okay! :)

She still may need to do some rehab, but she is past the worst, and is eager to get home. Larry has been evicted, and our girl has made it through surgery. I suspect we'll see her poke her head in here before too much longer. :D

GO BM, GO BM, GO BM... (dancing music)...
Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear
NED at 1 year
“If I can help somebody as I walk along, then my living shall not be in vain.”

Lee
Posts: 5258
Joined: Sun Apr 16, 2006 4:09 pm

Re: GOOD NEWS ON BEANSMAMA

Postby Lee » Wed Oct 25, 2017 5:49 pm

You GO BeansMama!

Thank you Tracy for that AWESOME update.

I really look forward to hearing from you BeansMama very soon. So VERY happy for you and Larry on the out.

Gentle hugs,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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CRguy
Posts: 9286
Joined: Sun Feb 10, 2008 6:00 pm

Re: GOOD NEWS ON BEANSMAMA

Postby CRguy » Wed Oct 25, 2017 5:53 pm

WriterGirl1969 wrote:Enormously positive update on BeansMama - she is over the worst and doing okay! :)

She still may need to do some rehab, but she is past the worst, and is eager to get home. Larry has been evicted, and our girl has made it through surgery. I suspect we'll see her poke her head in here before too much longer. :D

GO BM, GO BM, GO BM... (dancing music)...
Tracy


YOU HAD ME AT our girl has made it through surgery

W O R D !

BM .... ==>>>>> RULES, ROCKS, KICKS ASS and takes NAMES

There IS Harmony on CTalk 2 NITE !!!!!!!

CR
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Robino1
Posts: 180
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: GOOD NEWS ON BEANSMAMA

Postby Robino1 » Wed Oct 25, 2017 6:03 pm

Hallelujah!!!

*doing the Snoopy dance*

:D
At 54 2014 1st colonoscopy colon cancer detected.
Colon resect right ascending
margins clear. No chemo req
2017
Distended abd, pain in intestines.
CT scan shows seeding
Ascites causing the distention.
Lap diag - cancer on the omentum
CEA 217
CEA 219
PET cancer on the omentum, susp activ right abdomen
FOLFOX started 6/17
CEA 202
Not genetic
8/29/17 CT scan showed excellent melting of the tumor. Chemo is working!
Ascites is gone
CEA: 9/30/17 -109; 10/12/17 - 99.1; 11/4/17 - 90.7

orlar
Posts: 18
Joined: Fri Jul 21, 2017 12:51 am
Location: oregon

Re: GOOD NEWS ON BEANSMAMA

Postby orlar » Wed Oct 25, 2017 7:39 pm

FANTASTIC!!! I've been saying a prayer every night since surgery for you BM. I look forward to your post some day soon!
56yo male
DX 5/15/17 CEA 16.2
Right Hemi colectomy 6/8/17
Ascending colon (cecum) 5.8 x 3.9 x .7cm
mod differentiated adenocarcinoma
Stage 3 (T3 N2b M0) 12 of 21 lymph nodes positive
power port on 7/11/17
Folfox started 7/12/17

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Shana
Posts: 135
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: GOOD NEWS ON BEANSMAMA

Postby Shana » Wed Oct 25, 2017 10:23 pm

Happy news! Thanks for the update!
DX - 12/16
MSS - KRAS wild
Stage IV colon cancer with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17 - 2 wks on, 1 wk off to lessen side effects
CT-Scan 9/1/17. Shrinkage of liver mets (4 measurable) and no bowel blockage (surgery on 6/17 for blockage)
Removal and resection not on the table at this time as long as liver mets remain.
BB- aka colostomy is new high maintenance friend... she was a life saver
Living the new normal day by day :)

mariane
Posts: 574
Joined: Sun Sep 13, 2015 6:16 pm

Re: GOOD NEWS ON BEANSMAMA

Postby mariane » Wed Oct 25, 2017 10:49 pm

I am so happy!!!! Look forward to hear from you soon!
mom of 8 years old twins, dx @ 40 with upper rectal cancer, 10+ liver mets in 6/2015, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

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BeansMama
Posts: 957
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: GOOD NEWS ON BEANSMAMA

Postby BeansMama » Thu Oct 26, 2017 5:39 pm

Hello, everyone,

Going to be pretty short (and can't guarantee proper spelling lol)

Thank you all so much for all the positive thoughts. I don't remember cussing up a storm etc. I would wake up and then go back under because I was waking up combative. It was very much like Alice in wonderland. My mother was looked like a turquoise gnome.... Just very intricate and strange.

I'm doing ok, still worn out, moving around a bit. As far as I have been told I am NED. Of course that will need to be confirmed with scans
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

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susie0915
Posts: 441
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: GOOD NEWS ON BEANSMAMA

Postby susie0915 » Thu Oct 26, 2017 5:44 pm

I'm so glad your up and moving some. ned must sound wonderful to you. Praying for positive news from your scans. Keep us updated
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev since
surgery to repair blockage. c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT

User avatar
CRguy
Posts: 9286
Joined: Sun Feb 10, 2008 6:00 pm

Re: GOOD NEWS ON BEANSMAMA

Postby CRguy » Thu Oct 26, 2017 5:50 pm

BeansMama wrote: I don't remember cussing up a storm etc. I would wake up and then go back under because I was waking up combative. It was very much like Alice in wonderland. My mother was looked like a turquoise gnome.... Just very intricate and strange.

DAMN ..... get that cussin' gal a damned root beer &*$%* &Y#% H^&#$!!!! ... :shock:

Very good to hear from you BM
HEAL GENTLY and "enjoy" being able to rest and take some time
NED is sounding pretty damned GOOD :mrgreen:

Harmony sista'
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Robino1
Posts: 180
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: GOOD NEWS ON BEANSMAMA

Postby Robino1 » Thu Oct 26, 2017 6:32 pm

BeansMama wrote:Hello, everyone,

Going to be pretty short (and can't guarantee proper spelling lol)

Thank you all so much for all the positive thoughts. I don't remember cussing up a storm etc. I would wake up and then go back under because I was waking up combative. It was very much like Alice in wonderland. My mother was looked like a turquoise gnome.... Just very intricate and strange.

I'm doing ok, still worn out, moving around a bit. As far as I have been told I am NED. Of course that will need to be confirmed with scans


It's soooooooooooo good to see you actually post! You are amazing!!!! :D
At 54 2014 1st colonoscopy colon cancer detected.
Colon resect right ascending
margins clear. No chemo req
2017
Distended abd, pain in intestines.
CT scan shows seeding
Ascites causing the distention.
Lap diag - cancer on the omentum
CEA 217
CEA 219
PET cancer on the omentum, susp activ right abdomen
FOLFOX started 6/17
CEA 202
Not genetic
8/29/17 CT scan showed excellent melting of the tumor. Chemo is working!
Ascites is gone
CEA: 9/30/17 -109; 10/12/17 - 99.1; 11/4/17 - 90.7


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