GOOD NEWS ON BEANSMAMA

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Shana
Posts: 156
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: GOOD NEWS ON BEANSMAMA

Postby Shana » Sat Nov 04, 2017 3:19 pm

Welcome home! You're journey is inspiring, wishing you a speedy recovery!
DX - 12/16
MSS - KRAS wild
Stage IV colon cancer with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17 - 2 wks on, 1 wk off to lessen side effects
CEA 12/17 - 37.8! Finally a measurable number down from the thousands!
CT-Scan 9/1/17. Shrinkage of liver mets (4 measurable) and no bowel blockage
CT=Scan 12/1/17 Shrinkage of liver mets continue, no blockage
Removal of primary tumor and resection to be discussed next Spring 2018 based on continued positive progress

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LPL
Posts: 312
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: GOOD NEWS ON BEANSMAMA

Postby LPL » Mon Nov 06, 2017 7:24 pm

Dear BeansMama,
So So SO good to hear that you are home! :D
I’m sure Bean is happy to have you back!
Please take it easy and don’t do too much of the Mama stuff... you are still in recovery mode! and I’m sure your clever Bean knows that.
I hope you are happy being home and that you are getting stronger each day.
Love /LPL
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

Scilla
Posts: 24
Joined: Tue Apr 11, 2017 4:09 am

Re: GOOD NEWS ON BEANSMAMA

Postby Scilla » Tue Nov 07, 2017 3:35 am

Beansmama, I'm moved to tears by the latest news. I've been following your journey on this forum and I'm amazed by your spirit! I'm so happy for you that you've made it this far, I'm wishing you all the best!!!

Scilla
Supporter of mom 68 yr
Dx RC CRC 03/17
Rectal tumor 5cm, colon tumor 9cm
Two small liver mets,
04-05/2017 CAPOX Started twice, stopped due to side effects.
05/2017 One week of radiation to rectal tumor.
06-08/2017 Irinotecan+Bevacizumab
08/2017 Treatment stopped due to frail health
Mom is in Gods hands

Utwo
Posts: 145
Joined: Mon May 23, 2016 10:14 am
Location: T.O.

Re: GOOD NEWS ON BEANSMAMA

Postby Utwo » Tue Nov 07, 2017 9:09 pm

We have not heard from Beansmama for a week.

Is everything going OK?
58 yo male at diagnosis - T1bN0, 0/15 lymph nodes, low grade/moderately differentiated adenocarcinoma
03/2016 colonoscopy #1: 2 small polyps removed in left colon; CEA = 1.3
04/2016 colonoscopy #2: caecum sessile 3.5 cm polyp piecemeal removed with kind of clear margins
05/2016 CT scan, blood test ...
05/2016 "prophylactic" laparoscopic right hemicolectomy with a few complications (bleeding, leak, infection)
06/2017 CT scan, colonoscopy OK; CEA = 1.6

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BeansMama
Posts: 957
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: GOOD NEWS ON BEANSMAMA

Postby BeansMama » Wed Nov 08, 2017 4:04 pm

Utwo wrote:We have not heard from Beansmama for a week.

Is everything going OK?


I am doing well, just relaxing and letting myself heal for the most part. I have ventured out for a few doctor's appointments and a couple of trips to the store. I am usually pretty wiped out after that and spend the next day resting - lots of napping involved.

I hope everyone else is doing well. I will check in again soon I promise.

BeansMama.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

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CRguy
Posts: 9323
Joined: Sun Feb 10, 2008 6:00 pm

Re: GOOD NEWS ON BEANSMAMA

Postby CRguy » Wed Nov 08, 2017 4:55 pm

Hold you to it homie !!!!!

Cheers and gentle healing
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

TXLiz
Posts: 228
Joined: Thu Sep 22, 2016 3:31 pm

Re: GOOD NEWS ON BEANSMAMA

Postby TXLiz » Thu Nov 09, 2017 11:49 am

Happy for you, Beansmama! Rest and recover and feel better!
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

SweetC80
Posts: 72
Joined: Fri Sep 01, 2017 1:28 pm

Re: GOOD NEWS ON BEANSMAMA

Postby SweetC80 » Thu Nov 09, 2017 2:42 pm

Glad to hear you are at home and doing well!!!!
Mom's history
68yo at diagnoses
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum and Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met and suspicious 7mm Lung Nodule CEA 197
9/17 Irincotecan CEA 160
10/17 Confirmed KRAS Positive CEA 210
11/17 Met growths, Liver 10cm and Lung 8mm CEA 425
12/17 Onco Apt to discuss options after treatment for abscess. Mom's not giving up

Lee
Posts: 5297
Joined: Sun Apr 16, 2006 4:09 pm

Re: GOOD NEWS ON BEANSMAMA

Postby Lee » Thu Nov 09, 2017 4:31 pm

So good to see ya posting. Take care of yourself.

So glad you are home.

Rest and gentle hugs to you and your little ones.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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WriterGirl1969
Posts: 455
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: GOOD NEWS ON BEANSMAMA

Postby WriterGirl1969 » Thu Nov 09, 2017 10:14 pm

I am doing well, just relaxing and letting myself heal for the most part. I have ventured out for a few doctor's appointments and a couple of trips to the store. I am usually pretty wiped out after that and spend the next day resting - lots of napping involved.

I hope everyone else is doing well. I will check in again soon I promise.

BeansMama.


Glad to hear it, girlie. ;-)
Trying to give you time to rest and heal, but I'm going to be gushing over you again soon, so so so happy that Larry was found dead and is gone, and so happy you've come through this and are now on the other side. Sending tons and tons of gentle hugs.
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear
NED at 1 year
“If I can help somebody as I walk along, then my living shall not be in vain.”

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LPL
Posts: 312
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: GOOD NEWS ON BEANSMAMA

Postby LPL » Sat Nov 11, 2017 5:03 pm

Dear BeansMama,
”I’m doing well” - lovely words to read! :D
Please be kind to yourself <3
Lots of warm hugs from France /L
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

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BeansMama
Posts: 957
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: GOOD NEWS ON BEANSMAMA

Postby BeansMama » Sun Nov 12, 2017 9:44 am

Good morning everyone, BeansMama checking in again. Still doing iv fluids through my picc line every other day. Resting as much as i can. Right now I'm sitting with our full blooded chihuahua on my lap, she's hiding under my robe. It's a chilly morning so we are keeping each other warm and toasty.

Gaining some strength, I see the surgeon on Tuesday so hopefully I get some information. I am still having pain in my liver area and in the incisions that are still open. I will let you all know what she says.

Hope everyone is doing well.

BeansMama
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

Beckster
Posts: 191
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: GOOD NEWS ON BEANSMAMA

Postby Beckster » Sun Nov 12, 2017 10:58 am

BeansMama wrote:Good morning everyone, BeansMama checking in again. Still doing iv fluids through my picc line every other day. Resting as much as i can. Right now I'm sitting with our full blooded chihuahua on my lap, she's hiding under my robe. It's a chilly morning so we are keeping each other warm and toasty.

Gaining some strength, I see the surgeon on Tuesday so hopefully I get some information. I am still having pain in my liver area and in the incisions that are still open. I will let you all know what she says.

Hope everyone is doing well.

BeansMama


You are a true inspiration to all of us! I hope you continue to gain strength and heal .... Wishing you wonderful NED free holidays with your family.
57/Female
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Tumor type: Adenocarcinoma
Tumor size: 3.5 cm x 2.5 x 0.7 cm
Tumor grade: G3 (surgical) G2 (pre-op)
TNM: T3N0M0/IIA
Positive lymph nodes: 0/24
Lymphovascular invasion
Surgical margins: clear
Lynch- Negative
12/27/2016 - Capeox, anaphylactic reaction to oxaliplatin on first infusion-discontinued
1/2/17 to 6/9/17- Xeloda monotherapy
6/26/17- CT scan NED :D
CEA- 6/17- 3.6, 9/17- 2.812/17-2.8
Clear Colonoscopy 10/17 :D

WarriorSpouse
Posts: 82
Joined: Tue Aug 16, 2016 9:02 pm

Re: GOOD NEWS ON BEANSMAMA

Postby WarriorSpouse » Sun Nov 12, 2017 12:42 pm

Thanks for keeping us posted! We are thinking of you and your speedy recovery.
Spouse of wife 47 years old
10/2014, Stage IV Metastatic CC
Lymph node involvement 12/15, w/ positive PET on para-aortic lymph nodes.
5 cm sigmoid tumor resection as well as positive Virchow lymph node.
KRAS mut, Highly Differentiated, Lynch Negative
Folfox and Avastin 1 YR (Oxi for 5 months) NED 05/2015
Zeloda and Avastin since 01/2016
Chemo break 03/2017, back on Zeloda and Avastin 04/2017.

"...Perseverance is not a long race; it is many short races one after the other."
-Walter Elliot

User avatar
LPL
Posts: 312
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: GOOD NEWS ON BEANSMAMA

Postby LPL » Sun Nov 12, 2017 1:01 pm

Dear BeanMama,
These lovely pets are a blessing. Keeping you warm and getting my DH out every day for long walks = exercise.
Keeping my thumbs crossed for good news on Tuesday.
Warm hugs /L
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets


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