GOOD NEWS ON BEANSMAMA

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Shana
Posts: 156
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: GOOD NEWS ON BEANSMAMA

Postby Shana » Fri Oct 27, 2017 12:25 am

BeansMama wrote:Hello, everyone,

Going to be pretty short (and can't guarantee proper spelling lol)

Thank you all so much for all the positive thoughts. I don't remember cussing up a storm etc. I would wake up and then go back under because I was waking up combative. It was very much like Alice in wonderland. My mother was looked like a turquoise gnome.... Just very intricate and strange.

I'm doing ok, still worn out, moving around a bit. As far as I have been told I am NED. Of course that will need to be confirmed with scans



You've had all of us praying and cheering for you, very glad to read the good news! Take care and be gentle with yourself while you heal, I love the turquoise gnome mom... your spelling is impeccable which means it must be time for meds!
Feel better soon! :)
DX - 12/16
MSS - KRAS wild
Stage IV colon cancer with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17 - 2 wks on, 1 wk off to lessen side effects
CEA 12/17 - 37.8! Finally a measurable number down from the thousands!
CT-Scan 9/1/17. Shrinkage of liver mets (4 measurable) and no bowel blockage
CT=Scan 12/1/17 Shrinkage of liver mets continue, no blockage
Removal of primary tumor and resection to be discussed next Spring 2018 based on continued positive progress

Thetoad
Posts: 141
Joined: Mon Nov 23, 2015 2:46 am
Location: New Zealand

Re: GOOD NEWS ON BEANSMAMA

Postby Thetoad » Fri Oct 27, 2017 12:35 am

Sooooooo good to read great news! :D
Emergency extended right hemicolectomy November 2013.
Complete blockage, small perforation.
Stage 2a.
T3N0M0
22 Lymph nodes clear.
No bag.
All CEA tests, CT scans and follow up colonoscopy ok.
Now on yearly appts and 6 monthly CEA tests.
Large incisional hernia repaired with mesh Nov. 2014.
Cellulitus bottom of scar.
CEA 1.4 on 28/7/17
Just passed 48 months since surgery! (November 13, 2013.) All good so far.
27/5/17. Gallbladder removed, open surgery.
Pleasing consultation Feb. 2017
CEA 1.7 on 16/11/17

Lee
Posts: 5293
Joined: Sun Apr 16, 2006 4:09 pm

Re: GOOD NEWS ON BEANSMAMA

Postby Lee » Fri Oct 27, 2017 7:21 pm

BeansMama wrote: . . . As far as I have been told I am NED. Of course that will need to be confirmed with scans


BeansMama, so very HAPPY to see you posting again. The above statements brings tears to my eye. You have worked so hard and and you are now NED. Keep up the AWESOME job. Get well and give em h*ll.

For what it's worth, I had brain surgery many moons ago, guess when I woke up, I was fighting the recovery staff tooth and nail, guess the had to strap me down. When I found this out the next day, I was ready to apologize. My mom put a stop to that. As she put it, the staff was not happy with me, but the surgeon came out beaming saying, she's doing just beautiful and from what I just saw, we can expect a full and complete recovery. Surgeon was the only person I needed to please, not the recovery staff.

You Go BeansMama,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

macpudd
Posts: 55
Joined: Tue Jul 21, 2015 7:00 pm

Re: GOOD NEWS ON BEANSMAMA

Postby macpudd » Sat Oct 28, 2017 4:55 pm

Fantastic news, onward and upwards Beansmama :D
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
cea pre surgery 1.6 after .6

MissMolly
Posts: 444
Joined: Wed Jun 03, 2015 4:33 pm
Location: Portland, Ore

Re: GOOD NEWS ON BEANSMAMA

Postby MissMolly » Sat Oct 28, 2017 5:54 pm

BeansMama:
You have the entirety of this forum sending you collective prayer and genuine care for your well being.

Your experience with combativeness after surgery is not that uncommon. As you are feeling better, you can Google the term “emergence delirium” to better understand how and why your body was reacting as it did.

Emergence delirium is a secondary effect of deep general anesthesia coexisting with a complex/complicated major surgery. Psychomotor restlessness and combativeness is a common manifestation.

I had a protracted ICU stay and experienced ICU induced psychosis with the perforation of my intestine 6 yet ago. Your description of Alice-in-Wonderland is spot-on. I “saw” exaggerated animal shapes and troll-like people, all in vivid Kodachrome colors. It was like looking at a hologram, constantly morphing shapes and objects coming in and out of view. The intensity of the ICU setting and the torrent of medications flowing into my body played havoc on my consciousness.

No wonder you are feeling “wiped out.” Your body and mind have been through the impossible and back.

Congratulations on the success of your surgery and continued best wishes in your healing and recovery.
Karen
Devoted daughter to my father, diagnosed with stage 2 colon cancer Nov-2014.
Dear friend to Bella Piazza, former CC member.
I have a permanent ileostomy and offer advice on living with an ostomy.
I have been on Palliative Care for broad endocrine failure + Addison's disease + osteonecrosis of both hips/jaw + immunosuppression and recurrent infection x 4 years. I transitioned to Hospice Sept-2016, but it was not yet my time. I am back on Palliative Care and live a simple life due to frail health.

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CRguy
Posts: 9323
Joined: Sun Feb 10, 2008 6:00 pm

Re: GOOD NEWS ON BEANSMAMA

Postby CRguy » Sun Oct 29, 2017 1:33 am

MissMolly wrote:No wonder you are feeling “wiped out.” Your body and mind have been through the impossible and back.
Congratulations on the success of your surgery and continued best wishes in your healing and recovery.
Karen

WORD !
as Karen has stated ..." through the impossible and back..."
WE have been in battle and have our own version of PTSD

accept that is where we have been, and may be today ... BUTT YOU BM !!!!!
this is NOT where you will be forever my friend.

one step
one day
every moment moving forward

Harmony sista'
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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LPL
Posts: 312
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: GOOD NEWS ON BEANSMAMA

Postby LPL » Sun Oct 29, 2017 5:16 am

Oh Dear BeansMama - so so good to see you write a little. I am Happy Happy Happy :D :D :D to hear these good news and I hope you will be allowed home as soon as they feel is apropriate. Please take it easy! <3
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

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mypinkheaven
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Facebook Username: Sally Cunningham
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Re: GOOD NEWS ON BEANSMAMA

Postby mypinkheaven » Sun Oct 29, 2017 3:44 pm

Love you lots, Beansmama.
MSS, KRAS Wild
9/2012 Colon Cancer IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Metastasis to uterus. Hysterectomy
2/16 Pelvic radiation - 25, brachytherapy - 3.
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules less than 5 mm.
8/16 CT Nodules still present. Most stable. Some growth
10/16 CT Same ^. Onc recommends no tx :evil:
11/16 Transfer to UCSD Moores Cancer Center
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus

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BeansMama
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Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: GOOD NEWS ON BEANSMAMA

Postby BeansMama » Wed Nov 01, 2017 1:55 pm

Well I am home! Took some juggling but I am in my house with my own things and so much more comfortable. I do have home health coming to run my fluids etc. Drains and dressing will be changed at the surgeons office as they were before.

Still have a ton of edema and am patiently waiting for the fluid shift. Waiting for my fluids to finish so I can clean up and feel much better.

Hope everyone else is doing well. I'm hanging in there. One day at a time.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

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Robino1
Posts: 225
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: GOOD NEWS ON BEANSMAMA

Postby Robino1 » Wed Nov 01, 2017 2:00 pm

YAY!! For you being home!! It is so good to see you posting!

Keep on getting better and better! <3
At 54 2014 1st colonoscopy colon cancer detected.
Colon resect right ascending
margins clear. No chemo Stage II
2017
Distended abd, pain in intestines.
CT scan shows seeding
Ascites
Lap diag - cancer on the omentum
CEA 217
CEA 219
PET cancer on the omentum, susp activ right abdomen
FOLFOX started 6/17
CEA 202
Not genetic
8/29/17 CT scan showed excellent melting of the tumor. Chemo is working!
Ascites is gone
CEA: 9/30/17 -109; 10/12/17 - 99.1; 11/4/17 - 90.7; 11/30/17 - 70.7
BRAF V600e mutation :(

DebZ
Posts: 73
Joined: Fri Nov 14, 2014 9:01 pm
Facebook Username: Bulc

Re: GOOD NEWS ON BEANSMAMA

Postby DebZ » Wed Nov 01, 2017 2:47 pm

One day at a time is right! Don't do too much and let your body heal. So excited you're home and doing well.
48 @ diagnosis Sept 2014
MSS; Kras mutant G12D
Oct 2014: right hemicolectomy
Dec 2014: Folfox 12 treatments (lots of reductions in oxaliplatin and ceased before end)
June 2015: clean scans
Sept 2015: scans reveal ovarian mass and liver met; Folfiri
Jan 2016: liver wedge resection and complete hysterectomy
April 2016: multiple lung mets; Folfiri+Avastin
June 2017: lung mets growing; switching to Folfox+Avastin

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CRguy
Posts: 9323
Joined: Sun Feb 10, 2008 6:00 pm

Re: GOOD NEWS ON BEANSMAMA

Postby CRguy » Wed Nov 01, 2017 3:37 pm

Welcome HOME !
:mrgreen:
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

orlar
Posts: 19
Joined: Fri Jul 21, 2017 12:51 am
Location: oregon

Re: GOOD NEWS ON BEANSMAMA

Postby orlar » Wed Nov 01, 2017 6:45 pm

So glad to hear you're home. Stay on the mend!
56yo male
DX 5/15/17 CEA 16.2
Right Hemi colectomy 6/17
Ascending colon (cecum) 5.8 x 3.9 x .7cm
mod differentiated adenocarcinoma
Stage 3c (T3 N2b M0) 12 of 21 LN positive
Folfox 7/17-12/17 (no Oxi round 9-12 due to infusion reaction and neuropathy)

BIG ROB 69
Posts: 62
Joined: Sun Aug 28, 2016 2:00 am
Location: Long Island, NY

Re: GOOD NEWS ON BEANSMAMA

Postby BIG ROB 69 » Wed Nov 01, 2017 10:03 pm

GOD BLESS YOU!
3/18/2015 DX CC Stage3/4 49YO MALE IN NEW YORK
Inoperable...hepatic artery
11/15 oper to rem block...colon bypass
4/16 oper to remove scar tissue
5/16 Lynch pos.
10/16 Two bile tubes installed to relieve jaundice
So far I have done the three main chemo drug rounds and on 12/19/16 start Keytruda.
No chemo after 8/3/16 CEA: 10/14/16-409 12/19/16- 887 Mostly my CEA was in the 140-180 range.
CEA: 1/9/17-415 1/30/17-156.2 2/20/17-120.8 3/13/17-98 4/21/17-83.6 5/12/17-64.7 6/1/17-32.1
7/25/17-32.6

Lee
Posts: 5293
Joined: Sun Apr 16, 2006 4:09 pm

Re: GOOD NEWS ON BEANSMAMA

Postby Lee » Sat Nov 04, 2017 2:52 pm

BeansMama wrote:Well I am home! Took some juggling but I am in my house with my own things and so much more comfortable. I do have home health coming to run my fluids etc. Drains and dressing will be changed at the surgeons office as they were before.

Still have a ton of edema and am patiently waiting for the fluid shift. Waiting for my fluids to finish so I can clean up and feel much better.

Hope everyone else is doing well. I'm hanging in there. One day at a time.


Happy Dance, happy dance. So VERY glad to read you are home.

You did it, CONGRATULATIONS

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!


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