GOOD NEWS ON BEANSMAMA

Please feel free to read, share your thoughts, your stories and connect with others!
orlar
Posts: 56
Joined: Fri Jul 21, 2017 12:51 am
Location: oregon

Re: GOOD NEWS ON BEANSMAMA

Postby orlar » Sun Nov 12, 2017 7:42 pm

Keep getting better day by day! And I agree, our pets are a good lap warmer on chilly days.
Hope you have nothing but positive news Tuesday!
56yo male DX 5/15/17, Right Hemi colectomy 6/17
mod diff. adenocarcinoma 5.8 x 3.9 x .7cm
3c (T3 N2b M0) 12 of 21 pos
Folfox 7/17-12/17 (no Oxi round 9-12)
12/17 CT=liver/lung mets-Folfox failed Stage 4
MSS KRAS G13D
2/18 PET=liver doubled to 8.5cm +new lesion, lung mets 1.4cm, multi peri./omen. implants
CEA 5/17-16.2, 12/17-16.1, 02/18-43.0, 3/18-16.9, 4/18-9.0, 5/18-7.2
2/18 Folfiri + Avastin (no 5FU after C2)
4/18 PET=liver/lung/implants all shrinking and uptake greatly reduced

michelle c
Posts: 1857
Joined: Wed Dec 02, 2009 3:58 am

Re: GOOD NEWS ON BEANSMAMA

Postby michelle c » Mon Nov 13, 2017 7:02 am

I don't come here as much anymore but I just wanted to say Yay!!! Larry has been evicted!! Such great news Beansmama and I am so happy to hear that you're doing well. You're surgeries were not a walk in the park and it will take time to recover. You have been through a lot but it's all upwards and onwards from now on. Take it easy and take care. I am so happy for you that you were able to have surgery, may you remain NED always xx
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

Lee
Posts: 5557
Joined: Sun Apr 16, 2006 4:09 pm

Re: GOOD NEWS ON BEANSMAMA

Postby Lee » Mon Nov 13, 2017 9:50 pm

Our pets are family. nough said :mrgreen:

So good to see you posting. Keep up your AWESOME recovery.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Utwo
Posts: 195
Joined: Mon May 23, 2016 10:14 am
Location: T.O.

Re: GOOD NEWS ON BEANSMAMA

Postby Utwo » Sat Nov 18, 2017 11:58 pm

Beansmama are you OK?
As Pavlov's dogs we expect regular updates from you. :)
May be once a week.
58 yo male at diagnosis - T1bN0, 0/15 lymph nodes, low grade/moderately differentiated adenocarcinoma
03/2016 colonoscopy #1: 2 small polyps removed in left colon; CEA = 1.3
04/2016 colonoscopy #2: caecum sessile 3.5 cm polyp piecemeal removed with kind of clear margins
05/2016 CT scan, blood test ...
05/2016 "prophylactic" laparoscopic right hemicolectomy with a few complications (bleeding, leak, infection)
06/2017 CT scan (lower body), colonoscopy OK; CEA = 1.6

User avatar
LPL
Posts: 383
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: GOOD NEWS ON BEANSMAMA

Postby LPL » Sat Dec 02, 2017 4:08 pm

Hi BeansMama,
Just want to say that I think about you and that I hope everything is progressing fine for you. It was such a Big(!) surgery and it must take time for you to get back some strength. Please be kind to yourself.
Warm hugs from France
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

User avatar
CRguy
Posts: 9508
Joined: Sun Feb 10, 2008 6:00 pm

Re: GOOD NEWS ON BEANSMAMA

Postby CRguy » Sun Dec 03, 2017 8:14 pm

Yup continued POSI +++++ VIbes still coming your way homie

Heal gently and check in when you are able

Harmony
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Lee
Posts: 5557
Joined: Sun Apr 16, 2006 4:09 pm

Re: GOOD NEWS ON BEANSMAMA

Postby Lee » Wed Dec 06, 2017 5:02 pm

Thinking of you . . .

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
Robino1
Posts: 451
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: GOOD NEWS ON BEANSMAMA

Postby Robino1 » Wed Dec 06, 2017 7:57 pm

I hope you are recovering well. I'm also thinking of you...
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

henry123
Posts: 113
Joined: Sun Oct 08, 2017 3:25 am

Re: GOOD NEWS ON BEANSMAMA

Postby henry123 » Thu Dec 07, 2017 9:10 am

BeansMama wrote:Well I am home! Took some juggling but I am in my house with my own things and so much more comfortable. I do have home health coming to run my fluids etc. Drains and dressing will be changed at the surgeons office as they were before.

Still have a ton of edema and am patiently waiting for the fluid shift. Waiting for my fluids to finish so I can clean up and feel much better.

Hope everyone else is doing well. I'm hanging in there. One day at a time.


Hello Beansmama,
Wishing you all the best .

Had a query regarding immunotherapy (Ketruda). Once you are clear, would they continue with it? If so, for how long?

Please reply whenever you feel upto it.

+ve vibes.
46yo M
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
msi-h Lynch
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes , new onset of multi nodules in liver.
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver normal
1/18 3.6
2/18 2.3
4/18 2.0
opdivo continue
Aspirin start
6/18 1.5 CT clear .
NED
Vegan yoga juicing apricot

User avatar
CRguy
Posts: 9508
Joined: Sun Feb 10, 2008 6:00 pm

Re: GOOD NEWS ON BEANSMAMA

Postby CRguy » Wed Dec 13, 2017 3:37 pm

Just a bump up to let you know we are thinking about you BM

Cheers and Harmony sista'

CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

orlar
Posts: 56
Joined: Fri Jul 21, 2017 12:51 am
Location: oregon

Re: GOOD NEWS ON BEANSMAMA

Postby orlar » Fri Dec 15, 2017 11:04 am

Just wanted you to know we're thinking of you Beansmama and hope your recovery is continuing O.K..

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: GOOD NEWS ON BEANSMAMA

Postby BeansMama » Tue Dec 19, 2017 1:41 am

henry123 wrote:
BeansMama wrote:Well I am home! Took some juggling but I am in my house with my own things and so much more comfortable. I do have home health coming to run my fluids etc. Drains and dressing will be changed at the surgeons office as they were before.

Still have a ton of edema and am patiently waiting for the fluid shift. Waiting for my fluids to finish so I can clean up and feel much better.

Hope everyone else is doing well. I'm hanging in there. One day at a time.


Hello Beansmama,
Wishing you all the best .

Had a query regarding immunotherapy (Ketruda). Once you are clear, would they continue with it? If so, for how long?

Please reply whenever you feel upto it.

+ve vibes.


As of right now there doesn't seem to be any plan to continue with keytruda treatment. I haven't been to see my oncologist since before my surgery.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: GOOD NEWS ON BEANSMAMA

Postby BeansMama » Tue Dec 19, 2017 2:32 am

Hi everyone, I hope you all are having a good holiday season.

I find myself in the hospital again. I had quite the pleural effusion - they have done a thoracentisis (spelling?) twice now. The first one removing 1 1/2 liters of fluid. It seems that was the max they could drain for the very first one I had. The second time they drained 2 liters.

I am hoping to go home tomorrow - well later today anyway. They are concerned that I'm not getting enough nutrients because I keep losing weight. They don't seem to understand that this is just what my body does after surgery. I tried to tell them but how could I know how my body reacts? Lol.

I can say the NP that predicted I wouldn't be able to recuperate at home (he wanted me to go to rehab) and very disdainfully told me "you will be back in a week" has been much more respectful since he witnessed my prediction that my chest had filled with fluid again - and I was completely correct.

Anyway, enough of my complaints - I never sleep well in the hospital and I have had a ton tossed onto my plate. The ex decided to go back to AZ and gave me less than a weeks notice.

I hope you all have wonderful holidays and enjoy your time with close friends and family.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

User avatar
Shana
Posts: 371
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: GOOD NEWS ON BEANSMAMA

Postby Shana » Tue Dec 19, 2017 2:46 am

Sounds like you're in good spirits despite the setback. I had the same procedure after contracting pneumonia at rehab facility I might add. I think they are germ infested places no matter how good they look and I vowed never to go back if humanly possible, home is better anyway!

I was on TPN for 5 weeks this past May when I was unable to keep any food down due to colitis, it resolved my malnutrition. Is that something they could supplement you with to maintain your weight if it becomes a nutritional concern? It was pretty easy to do at home using my port.

Good luck with your ongoing recovery and enjoy the holidays!

Best wishes for a better and brighter 2018

Shana
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

User avatar
LPL
Posts: 383
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: GOOD NEWS ON BEANSMAMA

Postby LPL » Tue Dec 19, 2017 2:31 pm

Dear BeansMama,
So good to see you post.
Sorry to hear about the chest fluid, I hope that will get better very soon! How do they treat that? apart from the ”thoracentisis” I mean. Btw loosing that fluid must have also caused you to lose weight..
Sending warm good health vibrations from France and I wish for both Bean & Mama A Merry Christmas & A Happy Healthy New Year !
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Baidu [Spider], Capercrohnieileo, dauofcamom, Detox, Yahoo [Bot] and 34 guests