GOOD NEWS ON BEANSMAMA

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mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: GOOD NEWS ON BEANSMAMA

Postby mariane » Wed Oct 18, 2017 9:10 pm

I am so happy that everything is going in the good direction and Beans is getting stronger!
:)
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

CatzinDJ
Posts: 45
Joined: Thu Dec 22, 2016 12:06 pm

Re: GOOD NEWS ON BEANSMAMA

Postby CatzinDJ » Thu Oct 19, 2017 3:14 pm

Great news! I've been thinking about Beanmama and praying for her. Beansmama...keep on cussing! Keep the spirit up! I am thrilled that you are eating and standing! Your liver is working and Larry is gone, gone, gone! Thank you Lord!
53 & Female
DX: Rectal Cancer (RC) diagnosed in Thailand
Tumor Location: Rectum
Tumor type: invasive adenocarcinoma
Tumor size: 4 mm
Tumor grade: low grade
Baseline CEA value (4.46) 5/2016
CEA 6/2/2016 4.8
Lynch- Negative.
LAR 7/13/2016 in Seatle, Wa
Home 7/18/2016.
CEA 12/9/2016 2.8
CEA 6/8/2017 5.6
Colonoscopy and Cat scan June 2017 NED
CEA 3/2018 2.9
TB latent recently diagnosed.

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HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: GOOD NEWS ON BEANSMAMA

Postby HopeForJesse » Thu Oct 19, 2017 9:42 pm

Prayers for you dear Beans Mama!
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: GOOD NEWS ON BEANSMAMA

Postby Lee » Sun Oct 22, 2017 2:42 pm

A bump back to the top.

BeansMama,

Hope you are doing better. You are never far from my thoughts and prayers.

Gentle hugs,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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WriterGirl1969
Posts: 524
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: GOOD NEWS ON BEANSMAMA

Postby WriterGirl1969 » Wed Oct 25, 2017 5:41 pm

Enormously positive update on BeansMama - she is over the worst and doing okay! :)

She still may need to do some rehab, but she is past the worst, and is eager to get home. Larry has been evicted, and our girl has made it through surgery. I suspect we'll see her poke her head in here before too much longer. :D

GO BM, GO BM, GO BM... (dancing music)...
Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: GOOD NEWS ON BEANSMAMA

Postby Lee » Wed Oct 25, 2017 5:49 pm

You GO BeansMama!

Thank you Tracy for that AWESOME update.

I really look forward to hearing from you BeansMama very soon. So VERY happy for you and Larry on the out.

Gentle hugs,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: GOOD NEWS ON BEANSMAMA

Postby CRguy » Wed Oct 25, 2017 5:53 pm

WriterGirl1969 wrote:Enormously positive update on BeansMama - she is over the worst and doing okay! :)

She still may need to do some rehab, but she is past the worst, and is eager to get home. Larry has been evicted, and our girl has made it through surgery. I suspect we'll see her poke her head in here before too much longer. :D

GO BM, GO BM, GO BM... (dancing music)...
Tracy


YOU HAD ME AT our girl has made it through surgery

W O R D !

BM .... ==>>>>> RULES, ROCKS, KICKS ASS and takes NAMES

There IS Harmony on CTalk 2 NITE !!!!!!!

CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: GOOD NEWS ON BEANSMAMA

Postby Robino1 » Wed Oct 25, 2017 6:03 pm

Hallelujah!!!

*doing the Snoopy dance*

:D
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

orlar
Posts: 65
Joined: Fri Jul 21, 2017 12:51 am
Location: oregon

Re: GOOD NEWS ON BEANSMAMA

Postby orlar » Wed Oct 25, 2017 7:39 pm

FANTASTIC!!! I've been saying a prayer every night since surgery for you BM. I look forward to your post some day soon!
56yo male DX 5/17, Right Hemi colectomy 6/17
Stage 3c 12 of 21 LN
7/17-12/17 Folfox(no Oxi round 9-12)
12/17 liver/lung mets-Stage 4 MSS KRAS G13D
2/18 liver doubled to 8.5cm+new met, lung mets to 1.4cm, multi peri/omen
2/18-7/18 Folfiri+Avastin(no 5FU after C2)
4/18 mets shrinking
7/18 liver/lung mets growing, Folfiri stopped
10/18 In Clinical Trial
CEA 5/17-16.2, 12/17-16.1, 02/18-43.0, 3/18-16.9, 4/18-9.0, 5/18-5.5, 6/18-6.9, 7/18-7.8, 9/18-56

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Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: GOOD NEWS ON BEANSMAMA

Postby Shana » Wed Oct 25, 2017 10:23 pm

Happy news! Thanks for the update!
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: GOOD NEWS ON BEANSMAMA

Postby mariane » Wed Oct 25, 2017 10:49 pm

I am so happy!!!! Look forward to hear from you soon!
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: GOOD NEWS ON BEANSMAMA

Postby BeansMama » Thu Oct 26, 2017 5:39 pm

Hello, everyone,

Going to be pretty short (and can't guarantee proper spelling lol)

Thank you all so much for all the positive thoughts. I don't remember cussing up a storm etc. I would wake up and then go back under because I was waking up combative. It was very much like Alice in wonderland. My mother was looked like a turquoise gnome.... Just very intricate and strange.

I'm doing ok, still worn out, moving around a bit. As far as I have been told I am NED. Of course that will need to be confirmed with scans
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

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susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: GOOD NEWS ON BEANSMAMA

Postby susie0915 » Thu Oct 26, 2017 5:44 pm

I'm so glad your up and moving some. ned must sound wonderful to you. Praying for positive news from your scans. Keep us updated
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

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CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: GOOD NEWS ON BEANSMAMA

Postby CRguy » Thu Oct 26, 2017 5:50 pm

BeansMama wrote: I don't remember cussing up a storm etc. I would wake up and then go back under because I was waking up combative. It was very much like Alice in wonderland. My mother was looked like a turquoise gnome.... Just very intricate and strange.

DAMN ..... get that cussin' gal a damned root beer &*$%* &Y#% H^&#$!!!! ... :shock:

Very good to hear from you BM
HEAL GENTLY and "enjoy" being able to rest and take some time
NED is sounding pretty damned GOOD :mrgreen:

Harmony sista'
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: GOOD NEWS ON BEANSMAMA

Postby Robino1 » Thu Oct 26, 2017 6:32 pm

BeansMama wrote:Hello, everyone,

Going to be pretty short (and can't guarantee proper spelling lol)

Thank you all so much for all the positive thoughts. I don't remember cussing up a storm etc. I would wake up and then go back under because I was waking up combative. It was very much like Alice in wonderland. My mother was looked like a turquoise gnome.... Just very intricate and strange.

I'm doing ok, still worn out, moving around a bit. As far as I have been told I am NED. Of course that will need to be confirmed with scans


It's soooooooooooo good to see you actually post! You are amazing!!!! :D
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e


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