GOOD NEWS ON BEANSMAMA

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WriterGirl1969
Posts: 492
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

GOOD NEWS ON BEANSMAMA

Postby WriterGirl1969 » Sun Oct 08, 2017 9:05 am

I know all of you have been anxiously waiting for an update on Beans (as have I), and now I'm glad to give one.
Below is the information as it was given to me by a family member.

"She had two surgeries. 9 hours the first, 5 the next. Apparently they needed to go back in and repair her bile ducts. She is sedated and on a respirator in icu, running a temp and a bit jaundiced, but she made it through the surgeries and the docs say this is to be expected. They are thinking of bringing her out of sedation once the fever breaks. They removed the right side of her liver and biopsies showed the tumor was dead, and they are cautiously saying cure if she makes it through recovery. We're hopeful she's going to be just fine."

:D :D :D :D :D :D :D :D :D :D :D :D :D :D :D

I will continue to post any new info as I receive it.

Smiles, hugs and prayers,
Tracy (aka WriterGirl)
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear; 4/17/18 CT clear;
NED 2 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

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Robino1
Posts: 462
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: GOOD NEWS ON BEANSMAMA

Postby Robino1 » Sun Oct 08, 2017 9:13 am

Oh my!! Thank YOU so much for posting.

Tears of joy are starting to spring leaks in my eyes. Wonderful that Larry was dead and is now evicted!!!!!!


I've been so anxious and checking very often throughout every day. Wonderful news!!!!!!!!

Edit to add: continued prayers for a complete and 'cured' recovery!
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

WarriorSpouse
Posts: 120
Joined: Tue Aug 16, 2016 9:02 pm

Re: GOOD NEWS ON BEANSMAMA

Postby WarriorSpouse » Sun Oct 08, 2017 10:15 am

Thinking and praying for BeansMama.
Spouse of wife 47 years old
10/2014, Stage IV Metastatic CC
Lymph node involvement 12/15, w/ positive PET on para-aortic lymph nodes.
5 cm sigmoid tumor resection as well as positive Virchow lymph node.
KRAS mut, Highly Differentiated, Lynch Negative
Folfox and Avastin 1 YR (Oxi for 5 months) NED 05/2015
Zeloda and Avastin since 01/2016
Chemo break 03/2017, back on Zeloda and Avastin 04/2017.

"...Perseverance is not a long race; it is many short races one after the other."
-Walter Elliot

TXLiz
Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: GOOD NEWS ON BEANSMAMA

Postby TXLiz » Sun Oct 08, 2017 10:22 am

Prayers and healing thoughts to Beansmama. I so hope she recovers as expected, and this does not darken her doorway again.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

BIG ROB 69
Posts: 63
Joined: Sun Aug 28, 2016 2:00 am
Location: Long Island, NY

Re: GOOD NEWS ON BEANSMAMA

Postby BIG ROB 69 » Sun Oct 08, 2017 10:53 am

FUKEN AWESOME!!!
3/18/2015 DX CC Stage3/4 49YO MALE IN NEW YORK
Inoperable...hepatic artery
11/15 oper to rem block...colon bypass
4/16 oper to remove scar tissue
5/16 Lynch pos.
10/16 Two bile tubes installed to relieve jaundice
So far I have done the three main chemo drug rounds and on 12/19/16 start Keytruda.
No chemo after 8/3/16 CEA: 10/14/16-409 12/19/16- 887 Mostly my CEA was in the 140-180 range.
CEA: 1/9/17-415 1/30/17-156.2 2/20/17-120.8 3/13/17-98 4/21/17-83.6 5/12/17-64.7 6/1/17-32.1
7/25/17-32.6

AbbyDoo
Posts: 134
Joined: Wed Jun 29, 2016 2:25 am
Location: So.Ca.

Re: GOOD NEWS ON BEANSMAMA

Postby AbbyDoo » Sun Oct 08, 2017 10:59 am

Thanks so much for the up-date
I like Robino, tears of joy. So glad to hear Larry is dead and has been given the boot.
Praying for Beansmama and a speedy recovery
53 yrs old
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t

SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

Re: GOOD NEWS ON BEANSMAMA

Postby SweetC80 » Sun Oct 08, 2017 11:07 am

Wow, glad she's on her road to recovery. Such a trooper. Many continued healing thoughts.
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

benben
Posts: 285
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: GOOD NEWS ON BEANSMAMA

Postby benben » Sun Oct 08, 2017 11:13 am

Thanks for updating us all Tracy.

Sounds like a rough road with 14 hours of combined surgery.
Hoping everything goes as planned and she is taken out of sedation, happy to know she's still here and receives a "NED" diagnosis.
And Metta towards Bean as well. Lord knows what sort of thoughts may transpire while her MAMA goes through this process.

best wishes.
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
Granix given, Now Zarxio treatments every session.
Treatment 7 reduced to 75% OXI
Treatment 8-12 - NO OXI, just Luke and 5FU
10/20/17 CT-SCAN - CLEAR! - NED
3/18 Scope - Clean
7/18 CT-Scan - Clear, but CEA 4.6 :(

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susie0915
Posts: 818
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: GOOD NEWS ON BEANSMAMA

Postby susie0915 » Sun Oct 08, 2017 11:35 am

Prayers for speedy recovery.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

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Shana
Posts: 397
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: GOOD NEWS ON BEANSMAMA

Postby Shana » Sun Oct 08, 2017 11:43 am

Thank you for updating us, Tracy.

What an ordeal she's been through already!
Prayers for a speedy recovery for Beansmama and may she soon be NED!
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

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CRguy
Posts: 9567
Joined: Sun Feb 10, 2008 6:00 pm

Re: GOOD NEWS ON BEANSMAMA

Postby CRguy » Sun Oct 08, 2017 12:31 pm

Hellyeah BM !!
kickass and take names my friend
Harmony and MEGA +++++ POSI VIBES and CHEERS coming your way

thanx tracy
please send all our well wishes and prayers back to her thru the family connection

CRguy on the Journey
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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mypinkheaven
Posts: 455
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:

Re: GOOD NEWS ON BEANSMAMA

Postby mypinkheaven » Sun Oct 08, 2017 12:35 pm

Thanks, Tracy. I've been thinking of Beansmama daily. I pray she recovers soon.
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping

stu
Posts: 759
Joined: Sat Aug 17, 2013 5:46 pm

Re: GOOD NEWS ON BEANSMAMA

Postby stu » Sun Oct 08, 2017 12:41 pm

Sounds rough . Hoping for a speedy recovery and lots of time relaxing with her daughter .
Great to hear she is safely through .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

Lee
Posts: 5621
Joined: Sun Apr 16, 2006 4:09 pm

Re: GOOD NEWS ON BEANSMAMA

Postby Lee » Sun Oct 08, 2017 1:06 pm

Thank you Tracy. So very HAPPY to read BM made it through surgery (2X). So happy to read the possible word "cure". She has worked so hard to get to this point. Keep it up BeansMama.

Love and prayers,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

orlar
Posts: 61
Joined: Fri Jul 21, 2017 12:51 am
Location: oregon

Re: GOOD NEWS ON BEANSMAMA

Postby orlar » Sun Oct 08, 2017 1:38 pm

Positive thoughts for a quick recovery!
56yo male DX 5/17, Right Hemi colectomy 6/17
mod diff adenocarcinoma 6x4x1cm
Stage 3c 12 of 21 LN
7/17-12/17 Folfox(no Oxi round 9-12)
12/17 CT=liver/lung mets-Stage 4
MSS KRAS G13D
2/18 PET=liver doubled to 8.5cm+new met, lung mets to 1.4cm, multi peri/omen
2/18-7/18 Folfiri+Avastin(no 5FU after C2)
4/18 PET=mets shrinking
7/18 CT=4 new liver mets/lung mets growing, Folfiri stopped working, looking at Clinical Trials
CEA 5/17-16.2, 12/17-16.1, 02/18-43.0, 3/18-16.9, 4/18-9.0, 5/18-5.5, 6/18-6.9, 7/18-7.8


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