Hubby diagnosed 3C adenosquamous colon

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Zig2017
Posts: 3
Joined: Tue Sep 26, 2017 12:26 pm

Hubby diagnosed 3C adenosquamous colon

Postby Zig2017 » Fri Oct 06, 2017 9:21 pm

Long story short. Hubby was emaciated and badly anemic. He went in for emergency surgery in June for blockage and needed two blood transfusions to get through surgery. He has stage 3C baseball size tumor removed. 18 of 19 lymph nodes positive for cancer. He’s doing FOLFOX and handling it fairly well. He’s definitely my hero! Also it’s an unusual type, adenosquamous and poorly differentiated very aggressive. Yikes. Trying to find out as much as I can. Including learning how to use this forum! Thanks for any info or encouragement! I’m really scared for him.
Hubby stage 3C
MSS
18 LN
Adenosquamous CC
12 FOLFOX
Right Hemicolectomy

TXLiz
Posts: 214
Joined: Thu Sep 22, 2016 3:31 pm

Re: Hubby diagnosed 3C adenosquamous colon

Postby TXLiz » Sat Oct 07, 2017 10:15 am

Hey Zig. Sorry about your husband. I also had an emergency surgery for blockage with a huge tumor, in 2016. I was totally blocked and vomiting every 2 minutes for an entire day until I realized, hey, I don't think this is food poisoning.

I was badly anemic, and did not stop being anemic until 2 months after I completed chemo. I had one blood transfusion after surgery.

It's good he's getting FOLFOX. I am sorry for the aggressive nature of the monster inside your husband.

You are going to be scared out of your mind, I doubt anyone in your situation could not be.

I do not know where your husband is receiving treatment, but it seems pretty standard to try and get a second opinion at a major cancer treatment center...

University of Texas MD Anderson Cancer Center, Houston
Memorial Sloan Kettering Cancer Center, New York City
Mayo Clinic, Rochester, Minnesota
Dana-Farber/Brigham and Women's Cancer Center, Boston
UCLA Medical Center, Los Angeles
Moffitt Cancer Center and Research Institute, Tampa, Florida
Seattle Cancer Care Alliance/University of Washington Medical Center
Cleveland Clinic
Johns Hopkins Hospital, Baltimore
UCSF Medical Center, San Francisco
Massachusetts General Hospital, Boston
Hospitals of the University of Pennsylvania-Penn Presbyterian, Philadelphia
Stanford Health Care-Stanford Hospital, California
Northwestern Memorial Hospital, Chicago
Barnes-Jewish Hospital/Washington University, St Louis
University of North Carolina Hospitals, Chapel Hill
New York–Presbyterian University Hospital of Columbia and Cornell, New York City
USC Norris Cancer Hospital-Keck Medical Center of USC, Los Angeles
Wake Forest Baptist Medical Center, Winston-Salem, North Carolina
City of Hope, Duarte, California

If possible... I know not everyone has the resources and insurance and time and money to travel, etc. If you feel confident in your husband's care, that is good, also. The treatment terms and protocol are all super confusing, on top of dealing with cancer.

Take it day by day and keep as positive as possible. I never would have kept my sanity without this forum and the cancer superstars who post and advise here. Best wishes to you and your family. :wink:
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

Lee
Posts: 5161
Joined: Sun Apr 16, 2006 4:09 pm

Re: Hubby diagnosed 3C adenosquamous colon

Postby Lee » Sun Oct 08, 2017 2:02 pm

Hi and welcome, sorry for the reason you are here.

I agree with Liz, do consider a 2nd opinion a major cancer hospital or treatment center. Because it is poorly differentiates, he should be treated aggressively.

Where is he currently being treated at?

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Zig2017
Posts: 3
Joined: Tue Sep 26, 2017 12:26 pm

Re: Hubby diagnosed 3C adenosquamous colon

Postby Zig2017 » Sun Oct 08, 2017 7:05 pm

Thank you both for your replies. I really appreciate that. He seems to really like and trust his oncologist. As do I. The irony is his oncologist is in the same office as mine. We are at a local hospital in northern NJ but as you both said I will get a second opinion. Liz thank you for that list! I was thinking maybe Sloan or Cancer Center of America. This place is slow in getting tests results back though. When I had breast cancer 9 years ago I got tests back right away! That’s been my only gripe. And yes I do have private moments when a song or something unrelated will make me cry. And I’m def not a crier! Feel bad this happened to him in the first place.
Hubby stage 3C
MSS
18 LN
Adenosquamous CC
12 FOLFOX
Right Hemicolectomy

DarknessEmbraced
Posts: 2785
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Hubby diagnosed 3C adenosquamous colon

Postby DarknessEmbraced » Mon Oct 09, 2017 9:59 am

Welcome and sorry for your husband's diagnosis!*hugs* I'm glad his chemo is going well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

Zig2017
Posts: 3
Joined: Tue Sep 26, 2017 12:26 pm

Re: Hubby diagnosed 3C adenosquamous colon

Postby Zig2017 » Mon Oct 09, 2017 10:00 pm

Thank you DarknessEmbraced and all who responded. He is on #5 FOLFOX 7 more to go. We went in today and now he's down to 136 lbs. Blood platelets aren't good, but that's to be expected. He didn't have the weight to lose, and his stomach is bothering him. They are going to do scans at the end of the FOLFOX so we'll see. Just feels out of control. Doc says she'll lower his dose if he's no good for next chemo. He already skipped one, which he gets upset about. I try to tell him skipping one because platelets are low isn't so bad - they don't want to make him sick after all. I want a scan to be honest... and a second opinion. Thanks everyone, I really do appreciate all of you and have read some of your posts. You are all inspiring!
Hubby stage 3C
MSS
18 LN
Adenosquamous CC
12 FOLFOX
Right Hemicolectomy


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