NED 5 years today - Stage 2C Rectal

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O Stoma Mia
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NED 5 years today - Stage 2C Rectal

Postby O Stoma Mia » Wed Oct 04, 2017 11:10 pm

Just checking in today to let you all know that I just finished 5 years of follow-up. I have done my time and have now received an "Honourable Discharge" from my oncologist, in a document that includes the phrase, "complete remission". So ... this means no more 3-month check-ups, and no more 6-month check-ups for now.

I would like to take this opportunity to thank all my friends here who supported me during the time when I was active on this Forum. This was a place where I could go whenever there was no other place to go.

Keep healthy, and best wishes for the onward journey!

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CRguy
Posts: 9592
Joined: Sun Feb 10, 2008 6:00 pm

Re: NED 5 years today - Stage 2C Rectal

Postby CRguy » Thu Oct 05, 2017 12:05 am

Sincere congratulations on achieving this milestone
and wishes for many more milestones !!!

You have been as supportive and informative to all here, as we hope we have been to you.

In Harmony on the Journey my friend
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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susie0915
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Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: NED 5 years today - Stage 2C Rectal

Postby susie0915 » Thu Oct 05, 2017 5:40 am

Congrats on your 5 years. Even though aging isn't my desire, I cannot wait to get to 5 years.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

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Robino1
Posts: 462
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Facebook Username: Robin.lawthers
Location: Florida

Re: NED 5 years today - Stage 2C Rectal

Postby Robino1 » Thu Oct 05, 2017 8:06 am

Congratulations! Good to hear of your 5 years. May you continue to post your milestones. :)
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

Deb m
Posts: 422
Joined: Tue Jan 14, 2014 10:08 am

Re: NED 5 years today - Stage 2C Rectal

Postby Deb m » Thu Oct 05, 2017 8:21 am

So happy for you. Go celebrate and do something special. My husband reached that 5 year mark about a year and a half age. We feel so blessed to have do so. I pray and wish that outcome for every member on this board. They are all heroes to me!

Deb m

orlar
Posts: 61
Joined: Fri Jul 21, 2017 12:51 am
Location: oregon

Re: NED 5 years today - Stage 2C Rectal

Postby orlar » Thu Oct 05, 2017 3:02 pm

Fantastic! I'm still new to this long journey, but really love hearing such positive news.
Continued good health and go celebrate!!!
56yo male DX 5/17, Right Hemi colectomy 6/17
Stage 3c 12 of 21 LN
7/17-12/17 Folfox(no Oxi round 9-12)
12/17 liver/lung mets-Stage 4 MSS KRAS G13D
2/18 liver doubled to 8.5cm+new met, lung mets to 1.4cm, multi peri/omen
2/18-7/18 Folfiri+Avastin(no 5FU after C2)
4/18 mets shrinking
7/18 liver/lung mets growing, Folfiri stopped
9/18 Accepted Trial-start assessment and await Foundation 1 results
CEA 5/17-16.2, 12/17-16.1, 02/18-43.0, 3/18-16.9, 4/18-9.0, 5/18-5.5, 6/18-6.9, 7/18-7.8

testing765
Posts: 309
Joined: Tue Aug 19, 2014 9:41 am

Re: NED 5 years today - Stage 2C Rectal

Postby testing765 » Thu Oct 05, 2017 3:34 pm

I am very happy for you and you have been very helpful to me.
male-age 44 at diagnosis
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9

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bitchslapped
Posts: 1476
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: NED 5 years today - Stage 2C Rectal

Postby bitchslapped » Sun Oct 08, 2017 5:13 pm

Stoma, Congratulations to you! Miss you on the forum :)
Stay well.

BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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peanut_8
Posts: 2266
Joined: Sun May 25, 2014 1:31 pm
Location: Capital of Texas

Re: NED 5 years today - Stage 2C Rectal

Postby peanut_8 » Sun Oct 08, 2017 6:11 pm

Great news! Very happy for you.
Terri aka peanut
diagnosed Jan 14, RC stage 2a, age 56
permanent colostomy
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

Buckeye
Posts: 109
Joined: Mon Jan 18, 2016 7:02 pm

Re: NED 5 years today - Stage 2C Rectal

Postby Buckeye » Sun Oct 08, 2017 6:16 pm

CONGRATULATIONS!! I am so happy for you. I can’t wait for honorable discharge as well. 3 more years to go for mine.
Dx 10/20/15 stage 1 T1N0M0 1.3cmx1.1cmx1cm low grade ( well to moderately differentiated) Rectal cancer age 47
Loving Husband and father of two girls age 19 & 15 Sole income provider
CEA <0.5
CT, MRI and PET show no metastatic spread
LAR Laparoscopic TME 11/30/15 with Illo
Pathology clean no lymph node or vascular involvement. Confirmed Stage1
No chemo/rad cancer free now and forever.
Illo reversal 01/26/16

Lee
Posts: 5666
Joined: Sun Apr 16, 2006 4:09 pm

Re: NED 5 years today - Stage 2C Rectal

Postby Lee » Sun Oct 08, 2017 6:19 pm

AWESOME, congratulations on reaching a MAJOR milestone,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

mariane
Posts: 623
Joined: Sun Sep 13, 2015 6:16 pm

Re: NED 5 years today - Stage 2C Rectal

Postby mariane » Sun Oct 08, 2017 10:09 pm

Congratulations!!!! So happy for you!!! Many more milestones to celebrate!!
mom of now 9 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

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WriterGirl1969
Posts: 492
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: NED 5 years today - Stage 2C Rectal

Postby WriterGirl1969 » Sun Oct 08, 2017 10:17 pm

That so totally rocks!!!! Way to go. :D
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear; 4/17/18 CT clear;
NED 2 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

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Shana
Posts: 399
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: NED 5 years today - Stage 2C Rectal

Postby Shana » Sun Oct 08, 2017 10:46 pm

Congratulations on your 5 years NED! Your success at beating this disease gives all of us much hope!

Stay well and celebrate every day :)
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

AppleTree
Posts: 216
Joined: Fri Mar 18, 2016 8:16 am

Re: NED 5 years today - Stage 2C Rectal

Postby AppleTree » Sun Oct 08, 2017 11:55 pm

I am happy to read your happy news! Congratulations on your graduation!
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper right lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July PET...CLEAR!


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