Postby BeansMama » Wed Oct 04, 2017 1:06 pm
Hi every one ,
Thank you so much for all of your extra thoughts and prayers. I can admit the last few days have been pretty emotional. The parental units landed Sunday evening, and in true mom form my mother has been stressing me out and taking pot shots at me every time she can. It's pretty bad when your ex-husband is more supportive than your own mother. But that is life.
My best friend speedy has been staying at the house to run interference for me. He has said he has wanted to give her "what for" a few times but he is stuck because she is a woman and you just don't do that in his opinion. He hasn't left my side and has gotten very good at getting me away from her when she starts though. That in itself is helping me put that aside and to just not deal with it right now.
Had my pre-op stuff yesterday. Get to wear the lovely red type and cross armband already. They also had a class that was a little informative. Most of the surgery and length of stay info was vague - I know that is done on purpose. The best part of the class was learning they have a wing dedicated solely to HPB surgery and that is where I will be once I am out of ICU.
My oncologist told me last Wednesday that he had spoken with my surgeons senior partner. According to that conversation I will be getting the ex-vivo surgery which will mean bypass etc. During the pre op stuff they said bypass was listed and explained where the large bore ivs would go etc. So far it has been pretty hard to wrap my mind around this surgery, but if they can get negative margins I will be NED. If not, we continue with treatments and add radiation. Hopefully with less bulk I will get a better response from the treatments that didn't work before. It will however be my first experience with radiation.
Anxiety has been through the roof, sleep is virtually non-existent. Just have to make it thttough today and I will get a lovely nap, when I finally wake up it may be a bit upsetting, I have never regained consciousness with a breathing tube in. No idea what that is like.
Anyway, have some stuff to take care of before the big event. Thank you again, it helps to know how manyg people are rooting for me. Writergirl and cowgirl918 will be getting updates while I am in surgery and ICU. Writergirl has said she will update everyone here if y'all want.
It's time for Larry to go!!!!!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016