BeansMama, you are not far from my thoughts and prayers.

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benben
Posts: 324
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: BeansMama, you are not far from my thoughts and prayers.

Postby benben » Wed Oct 04, 2017 7:54 pm

May tomorrow greet you with a gentle smile. Will also be thinking of you and Bean and sending Metta!

best wishes.
Goodbye Larry!
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
zarxio all treats
Treat 7 - 75% OXI
Treats 8-12 - NO OXI, Luke & 5FU
10/20/17 CT- NED
3/18 Scope - Clean
11/8 PORT OUT!
7/22 CT - NED (5 years!)

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WriterGirl1969
Posts: 524
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: BeansMama, you are not far from my thoughts and prayers.

Postby WriterGirl1969 » Wed Oct 04, 2017 8:42 pm

BeansMama wrote:So far it has been pretty hard to wrap my mind around this surgery, but if they can get negative margins I will be NED.


Beans (if you get back on before tomorrow), I'm sorry to hear Mom's been a pill, but glad you've had some interference on your behalf. Any way you look at it, Larry will be gone as of tomorrow. Like Lee said, lots of prayers from lots of people in lots of places, all coming in your direction. My heart is with you.

All - I'll post some updates every chance I get on how our girl is doing.

==Tracy aka WriterGirl.
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: BeansMama, you are not far from my thoughts and prayers.

Postby mariane » Wed Oct 04, 2017 9:45 pm

You are in my prayers, Beans! You will do it! Good Luck!
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: BeansMama, you are not far from my thoughts and prayers.

Postby Robino1 » Thu Oct 05, 2017 7:42 am

My thoughts are with you today.
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

jortego128
Posts: 288
Joined: Sat Aug 15, 2015 7:47 am

Re: BeansMama, you are not far from my thoughts and prayers.

Postby jortego128 » Thu Oct 05, 2017 3:54 pm

Praying for you Beans!!
DM 57 yrs old dx 6/8/15 T:4a N:1b M:1
KRAS G12D and TP53 C242fs mutations
Poorly Differentiated, Prominent Signet Ring Component(~50%)
Microsatellite Stable, 3 of (13)lymph nodes positive
15 Liver mets, largest 3.2 cm
Prim. Resection, Right Hemicolectomy 6/21/15
Start Chemo 7/20/15
2 rounds FOLFOX, 1 round FOLFOX +Avastin
CT 8/28/15, met growth, largest 4.5cm
4 rounds FOLFOX+Avastin
CT 11/06/15 mets stable, lungs clear
Begin FOLFIRI+Avastin 11/17/15, Stop chemo 1/26/16
Entered Paradise 3/11/2016

AbbyDoo
Posts: 134
Joined: Wed Jun 29, 2016 2:25 am
Location: So.Ca.

Re: BeansMama, you are not far from my thoughts and prayers.

Postby AbbyDoo » Thu Oct 05, 2017 7:02 pm

Hope all went well today.
Hopefully Larry is gone forever
Praying for you. And wishing you a speedy recovery
53 yrs old
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: BeansMama, you are not far from my thoughts and prayers.

Postby Maia » Thu Oct 05, 2017 7:09 pm

Wishing you that bastard is already out of your life!! (And I mean the liver lesion, BTW :mrgreen: )
Seriously: sending healing thoughts your way, Annie xoxoxo

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Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: BeansMama, you are not far from my thoughts and prayers.

Postby Shana » Thu Oct 05, 2017 10:53 pm

Hope and prayers that all went well today. Healing thoughts and lots of positivity too! :D
Get well soon!
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

thubler
Posts: 59
Joined: Tue Sep 27, 2016 9:22 am

Re: BeansMama, you are not far from my thoughts and prayers.

Postby thubler » Fri Oct 06, 2017 7:17 am

Good luck Beans Mama! Hopefully everything went well. I’ll keep praying for you!
III b CC @ 35 yoa.
two primary tumors on ascending/transverse stage 1 and stage 3.
Lynch Positive
Resection 05/16
2/41 nodes +
FOLFOX 6/16-11/20/16
Clear Endoscopy and Colonoscopy 12/6/16, 02/13/18,01/24/19,02/27/20,02/18/21,05/24/22
CT 02/07/17 enlarged mesenteric node.
Clear PET 02/15/17
Stable CT 06/05/17,10/16/17,04/02/18, 01/08/19, 01/14/20, 01/05/21,03/07/22
Deported 11/03/17

SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

Re: BeansMama, you are not far from my thoughts and prayers.

Postby SweetC80 » Fri Oct 06, 2017 8:29 am

Checking in for an update, hope all went well <3
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

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WriterGirl1969
Posts: 524
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: BeansMama, you are not far from my thoughts and prayers.

Postby WriterGirl1969 » Fri Oct 06, 2017 11:45 am

No updates yet... waiting to get word from the person who is supposed to let us know. I'll post as soon as I have any info.
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

TXLiz
Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: BeansMama, you are not far from my thoughts and prayers.

Postby TXLiz » Sat Oct 07, 2017 10:00 am

Praying for you Beans!
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: BeansMama, you are not far from my thoughts and prayers.

Postby Robino1 » Sat Oct 07, 2017 7:54 pm

Getting worried...

Praying for the best
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

ChiMama
Posts: 34
Joined: Wed Jul 20, 2016 8:41 pm
Location: PHX

Re: BeansMama, you are not far from my thoughts and prayers.

Postby ChiMama » Sat Oct 07, 2017 10:07 pm

Checking in to see the good news on BeansMama's surgery & healing... any update yet?
4/21/16 First Colonoscopy @59
DX high grade dysplasia
Fibroid uterus, liver cysts, lung nodules
6/17/16 Open surgery: hysterectomy, X 12.5cm sigmoid, 29 LN
T2N0M0 Stage 1 Mod diff adeno 5.2cm x 4.1. Gyne benign, Lynch neg
CT 7/27/16 Ground Glass & spiculated lung nodules, thyroid nods, watching.
2017/18/19 Scopes: polyps. Scans stable
2019 Endo: hiatal hernia. 2 breast biopsies, benign
5/20 GGN 1.1cm. Biopsy: adenocarcinoma/primary lung cancer. Robotic VATS upper left lobe. 1A
Mama to a rescue Chihuahua

DebZ
Posts: 83
Joined: Fri Nov 14, 2014 9:01 pm
Facebook Username: Bulc

Re: BeansMama, you are not far from my thoughts and prayers.

Postby DebZ » Sat Oct 07, 2017 10:13 pm

Thinking of you Beans.
48 @ diagnosis Sept 2014
MSS; Kras mutant G12D
Oct 2014: right hemicolectomy
Dec 2014-May 2015: Folfox
June 2015: clean scans
Sept 2015: scans reveal ovarian mass and liver met; Folfiri
Jan 2016: liver wedge resection and hysterectomy
April 2016: multiple lung mets; Folfiri+Avastin
June 2017: lung mets growing; switch to Folfox+Avastin
Jan-April 2018: dropped oxali; CEA rising
May 2018: back on Folfox+Avastin, add pulse steroid treatment to get platelet count up (continuously in 50s)


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