BeansMama, you are not far from my thoughts and prayers.

Please feel free to read, share your thoughts, your stories and connect with others!
Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

BeansMama, you are not far from my thoughts and prayers.

Postby Lee » Tue Oct 03, 2017 10:17 pm

The 5th is your big day. Know that you are in my thoughts and prayers as well as MANY people around this planet. Know that you are NOT alone with your up coming surgery. KNOW that many people will be thinking and PRAYING for you until we hear of your AWESOME surgery results/outcome.

BeansMama, when you go into the OR, we may not be there in person, BUTT know that there are many, MANY people AROUND THIS WORLD praying for you and a most successful surgery. AGAIN YOU ARE NOT ALONE! The power of prayer is POWERFUL. I am a living result of the "power of prayer".

Know that you have many, people praying for you and for the BEST outcome possible.

Thinking of you and your little Bean for all good things,

Love to you both,

Lee

Remember, Failure Is Not An Option.
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: BeansMama, you are not far from my thoughts and prayers.

Postby CRguy » Tue Oct 03, 2017 11:52 pm

THERE in spirit
and always ...
In Harmony

CR on the Journey with you sista'

WORD !
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: BeansMama, you are not far from my thoughts and prayers.

Postby Steph20021 » Tue Oct 03, 2017 11:55 pm

Sending all the good vibes your way lady! Surgery has been a long time coming for you and I'm so glad for you that it's finally here. We will be thinking of you! Let us know how you are doing afterwards when you can of course.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab

User avatar
Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: BeansMama, you are not far from my thoughts and prayers.

Postby Robino1 » Wed Oct 04, 2017 4:45 am

Adding my prayers for the best possible outcome to the many that you will receive.
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

Beckster
Posts: 438
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: BeansMama, you are not far from my thoughts and prayers.

Postby Beckster » Wed Oct 04, 2017 7:06 am

Sending positive vibes your way....thoughts and prayers for a successful surgery!
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic
1/2/17 to 6/9/17- Xeloda
6/17,12/17,6/18,12/18,6/19,12/19,12/20,12/21 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8 6/20 3.0 12/20 2.7 6/21 2.9,[color=#000000]12/21 2.7[/color]
Clear Colonoscopy 10/17, 11/19,11/21 :D

User avatar
susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: BeansMama, you are not far from my thoughts and prayers.

Postby susie0915 » Wed Oct 04, 2017 8:02 am

I am also praying for a successful surgery tomorrow. Your are so strong with all you've been through. Hugs and prayers coming your way.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

Re: BeansMama, you are not far from my thoughts and prayers.

Postby SweetC80 » Wed Oct 04, 2017 8:13 am

Many thoughts and prayers to you tomorrow for your surgery. ((HUGS))
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: BeansMama, you are not far from my thoughts and prayers.

Postby BeansMama » Wed Oct 04, 2017 1:06 pm

Hi every one ,

Thank you so much for all of your extra thoughts and prayers. I can admit the last few days have been pretty emotional. The parental units landed Sunday evening, and in true mom form my mother has been stressing me out and taking pot shots at me every time she can. It's pretty bad when your ex-husband is more supportive than your own mother. But that is life.

My best friend speedy has been staying at the house to run interference for me. He has said he has wanted to give her "what for" a few times but he is stuck because she is a woman and you just don't do that in his opinion. He hasn't left my side and has gotten very good at getting me away from her when she starts though. That in itself is helping me put that aside and to just not deal with it right now.

Had my pre-op stuff yesterday. Get to wear the lovely red type and cross armband already. They also had a class that was a little informative. Most of the surgery and length of stay info was vague - I know that is done on purpose. The best part of the class was learning they have a wing dedicated solely to HPB surgery and that is where I will be once I am out of ICU.

My oncologist told me last Wednesday that he had spoken with my surgeons senior partner. According to that conversation I will be getting the ex-vivo surgery which will mean bypass etc. During the pre op stuff they said bypass was listed and explained where the large bore ivs would go etc. So far it has been pretty hard to wrap my mind around this surgery, but if they can get negative margins I will be NED. If not, we continue with treatments and add radiation. Hopefully with less bulk I will get a better response from the treatments that didn't work before. It will however be my first experience with radiation.

Anxiety has been through the roof, sleep is virtually non-existent. Just have to make it thttough today and I will get a lovely nap, when I finally wake up it may be a bit upsetting, I have never regained consciousness with a breathing tube in. No idea what that is like.

Anyway, have some stuff to take care of before the big event. Thank you again, it helps to know how manyg people are rooting for me. Writergirl and cowgirl918 will be getting updates while I am in surgery and ICU. Writergirl has said she will update everyone here if y'all want.

It's time for Larry to go!!!!!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

User avatar
Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: BeansMama, you are not far from my thoughts and prayers.

Postby Robino1 » Wed Oct 04, 2017 1:59 pm

We DO want updates!

{{{ Hugs }}} it has to be nerve wrecking leading up to this. Keep the GOAL in mind. Push out the negatives. If need be, tell your mom to f' off. ;)

It may make you feel better :o :lol:
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

AbbyDoo
Posts: 134
Joined: Wed Jun 29, 2016 2:25 am
Location: So.Ca.

Re: BeansMama, you are not far from my thoughts and prayers.

Postby AbbyDoo » Wed Oct 04, 2017 3:19 pm

Thanks for posting. And of course we want to get up-dates.
You have been threw the ringer and have worked very hard to come along this far.You got this girl. On your way to NED.You should be pretty dam proud of yourself. Keep you head up and take no chit from no one. It's all about you now,your the rock star and this is your party.
Wishing you the best of luck tomorrow, I will deffently be keeping you in my thoughts and prayers for the next couple of days
53 yrs old
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t

ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: BeansMama, you are not far from my thoughts and prayers.

Postby ams5796 » Wed Oct 04, 2017 3:31 pm

We're all thinking of you. This will be so great when it's all done and you are NED. I am sending along my very best wishes and healing thoughts.


Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

Joannerogers
Posts: 260
Joined: Tue Jun 16, 2015 4:50 pm

Re: BeansMama, you are not far from my thoughts and prayers.

Postby Joannerogers » Wed Oct 04, 2017 3:53 pm

I'll be waiting for updates! You got this!

Larry..BE GONE!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

AussieAssCancer
Posts: 258
Joined: Sat May 21, 2016 10:16 am

Re: BeansMama, you are not far from my thoughts and prayers.

Postby AussieAssCancer » Wed Oct 04, 2017 5:49 pm

You got this Beans! Look forward to hearing that all went well and you’ve got your feet up and being looked after.

PS - Don’t be shy re the drugs :wink:
Dx Oct '15 w/ Stage 3c RC/ CEA 8
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Clear CT scans in April ‘16 (NED), Dec ‘16, Aug ‘17, Feb ‘18, March ‘19, Feb ‘20
Feb '17: Ileostomy reversed
CEA Post Surgery: ALWAYS 2

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

Thetoad
Posts: 165
Joined: Mon Nov 23, 2015 2:46 am
Location: New Zealand

Re: BeansMama, you are not far from my thoughts and prayers.

Postby Thetoad » Wed Oct 04, 2017 5:59 pm

Positive thoughts from NZ as well! World wide support. :)
Emergency extended rt hemi November 2013.
Complete blockage, small perforation.
Stage 2a.
T3N0M0
22 Lymph nodes clear.
No bag.

Yearly appts appts and 6 monthly CEA tests.
Incisional hernia repair, mesh Nov. 2014.
Cellulitus
CEA 1.4 on 28/7/17
27/5/17. Gallbladder removed, open.
Good consultation Feb. 2017
CEA 1.7 on 16/11/17 colonoscopy ok Jan. 2018 :)
Nurse pleased, March 2018. CEA 1.8. One more CEA test and hopefully last appt in November, 2018.
Prostate cancer, Gleason 7 (3+4) Sept. '18.

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: BeansMama, you are not far from my thoughts and prayers.

Postby LPL » Wed Oct 04, 2017 6:32 pm

Dear BeansMama,
Sending Many warm hugs and positiv vibrations to you from France. So kind of you to ask friends to update us on your recovery after Bad Larry is gone :!: Wishing the easiest possible recovery for you <3
Lots of Love /L

Lee - Thank you so much for starting this thread and for your good words - I agreed with all you said!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google [Bot], Google Feedfetcher and 102 guests