Hello everyone, newcomer to this forum. Unfortunately not new to colon cancer been dealing with it since Aug 2012. Had it in control with 5FU and Vectibix but it starting
to stick it little head again so doctor wants to change it to Irinotecan and Cyramza. Hearing all the side effect of Irinotecan I don't know if I want to take it. Also going to talk to some doctors about immunotherapy clinical trials Oct 9. Any advice on any of this will be truly appreciated.
I had stage 3a in Aug 2012. Had surgery removed 8 inches no other issues. Fight it off initially with alternative method, diet, supplements and then some. Was good until the end of 2014 when I thought i was cancer free and slowly stop my diets and supplement. Well it head showed up at beginning of 2015. Went to Mexico for alternative therapy but it didn't work...so been on the initial chemotherapy with oxa...can't spell it 5FU and vectibix. Had to stop oxa about 6 months ago because neuropathy started to come in. Was stable with the 5FU and vectibix. Last scan showed a 2.5 cm in the liver that was not there last time. The problem was for the last 2 months I've been dealing with women issues where I was bleeding too death. In fact tomorrow is getting an ablation to try to stop it. Not only was my immune system down but they put me on progesterone cancer promoting hormone to control my bleeding. Try to plead with my ONC to keep the same therapy until I fix my problem first. He won't do it.
Have anyone reject the suggested therapy and insist on doing the same therapy? Can the ONC keep the same therapy? I know they have a protocol they have to follow. Have anyone fought against it because I'm about to do it.
Hoping to get a lot of input...have to make decision by next week already had to skip one treatment because he will not give it to me.