Update on neuropathy...2 months on!

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JudiB
Posts: 67
Joined: Sun Mar 05, 2017 5:30 am

Update on neuropathy...2 months on!

Postby JudiB » Tue Oct 03, 2017 6:24 am

Thought it would help others if I updated on how I am now, 2 months after my last chemo!
The neuropathy in my feet is beginning to go and I get tingling and can now feel when I land on someone else's feet whilst dancing!! My balance is better and I stumble very little now. My skin colour has returned and only one sore place remains. My hair is growing, like a baby at the moment, very fine and soft but growing!
I have even had to pluck a few stray hairs between my... sparse.. eyebrows!
My energy levels have been great since finishing chemo although I do get caught off guard from time to time when I really push life!
I am pretty much doing all the things I used to do before chemo...walking with a group, dancing a couple of times a week and doing more of the mucking out of the animals!
Overall, I feel far better than I had hoped after such a short time!
BM's still far too frequent and catch me unaware sometimes but manageable ...just about!
I hope this gives some of you still on treatment some hope!
Love and hugs to you all...you can do it!
Xxxxx
May 2004 Breast cancer lumpectomy followed by radiotherapy, Tamoxifen 5 years, then Femara 2 years.

Jan 2017 resection around colo-rectal junction
T2bN1 M0
March 2017 Chemo Folfox started. Oxaliplatin for 4 treatments, then just 5 FU and Leucovorin for remaining 8 treatments.
June 2017 clear scan
Last chemo August 2017
August 2017 clear scan

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susie0915
Posts: 549
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Update on neuropathy...2 months on!

Postby susie0915 » Tue Oct 03, 2017 8:18 am

I am so glad you're feeling better. I'm about 18 months out from treatment. My neuropathy seemed to really kick in about a month after I finished chemo. My balance is better and I don't drop things like I used to. I do still have some tingling in my feet and it can be uncomfortable to walk barefoot on hard surfaces. I just basically always wear shoes or slippers. It's not perfect but it has not prevented me from doing things like exercising etc. My energy level really came back full force six months after. Overall, everything is good, functioning quite well. Bm's will prob never be the same, but have managed to get into routine that works. Congrats again, and I am glad you are feeling better and things are improving.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT
11/17 CEA<.5

Steph20021
Posts: 503
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Update on neuropathy...2 months on!

Postby Steph20021 » Tue Oct 03, 2017 11:53 pm

Judi it sounds like you are on a good road ahead! Wahoo! Congrats on finishing treatment and thanks for still popping by and sharing your experiences.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, hysterectomy et al, 2nd temp ileo, NED?
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
Jan/17- pulmonary embolism
Feb/17- 1 wk radiation to abdo wall
Currently stable suce Aug/16- on folfiri

JudiB
Posts: 67
Joined: Sun Mar 05, 2017 5:30 am

Re: Update on neuropathy...2 months on!

Postby JudiB » Thu Oct 05, 2017 7:11 am

I quite forgot to say that my oncologist prescribed homeopathic dose of phosphorus for my neuropathy. Can't find anything about the benefits of phosphorus for chemo induced neuropathy but ... phosphorus or not, the neuropathy is improving!
Xxxx
May 2004 Breast cancer lumpectomy followed by radiotherapy, Tamoxifen 5 years, then Femara 2 years.

Jan 2017 resection around colo-rectal junction
T2bN1 M0
March 2017 Chemo Folfox started. Oxaliplatin for 4 treatments, then just 5 FU and Leucovorin for remaining 8 treatments.
June 2017 clear scan
Last chemo August 2017
August 2017 clear scan

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bitchslapped
Posts: 1360
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Update on neuropathy...2 months on!

Postby bitchslapped » Sun Oct 08, 2017 5:19 pm

Very nice to hear the improvements. Hopefully your neuropathy continues to improve. Pasting a link to a thread for those that are finding neuropathy troublesome.
viewtopic.php?f=1&t=56876&hilit=neuropathy+cream


Best Wishes
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

DarknessEmbraced
Posts: 2849
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Update on neuropathy...2 months on!

Postby DarknessEmbraced » Mon Oct 09, 2017 10:08 am

Congratulations on finishing chemo and I'm glad you're doing well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17


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