A friend who passed formCRC

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A friend who passed formCRC

Postby betsydoglover » Sun Oct 01, 2017 4:31 pm

The wife of my son's boss just passed from colorectal cancer - she had mets in peritoneum- had HIPEC 2 years ago.

She was only 49 and has kids - 13, 15 and 17.

Very difficult to understand why I am still OK and she has passed. I know there is no answer - please keep your family in your thoughts.
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
6 cycles Xeloda + Avastin
Avastin only 10/09-5/11
Still NED 11/17

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Re: A friend who passed formCRC

Postby jhocno197 » Sun Oct 01, 2017 4:33 pm

I am sorry.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

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Re: A friend who passed formCRC

Postby Shana » Sun Oct 01, 2017 7:42 pm


Very sorry for your loss. We can't compare ourselves and our CRC with others because everyone is so different.
You're still here and that's a gift!

Stay well!

DX - 12/16
MSS - KRAS wild
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17 - 2 wks on, 1 wk off to lessen side effects
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5
CT-Scan 9/1/17. Shrinkage of liver mets (4 measurable) and no bowel blockage
CT=Scan 12/1/17 Shrinkage of liver mets continue, no blockage

Removal of primary tumor and resection still on back burner. Have to be able to be OFF chemo one month prior and one month after surgery and evaluate benefit vs risk.

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Re: A friend who passed formCRC

Postby Robino1 » Sun Oct 01, 2017 7:58 pm

I'm so sorry for your loss. :(

At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217 CEA 219
FOLFOX started 6/17
CEA 202 Not genetic
8/29/17 CT excellent melting of tumor.
12/8/17 Markedly decr ant peritoneal nodularity since 8/29/17 compat w/ marked posi respns to therapy
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2 Damnit
BRAF V600e

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Re: A friend who passed formCRC

Postby Maia » Mon Oct 02, 2017 8:32 am

Betsy, so sorry. Wishing comfort to her family --and to you. Hugs...

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Re: A friend who passed formCRC

Postby DarknessEmbraced » Mon Oct 02, 2017 8:38 pm

I'm so very sorry for your loss!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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Joined: Sun Sep 13, 2015 6:16 pm

Re: A friend who passed formCRC

Postby mariane » Mon Oct 02, 2017 8:41 pm

I am so sorry.
mom of 8 years old twins, dx @ 40 with upper rectal cancer, 10+ liver mets in 6/2015, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

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Joined: Sun Feb 10, 2008 6:00 pm

Re: A friend who passed formCRC

Postby CRguy » Tue Oct 03, 2017 12:16 am

My sympathies over the loss of your friend Betsy,
and sincere condolences to her family.

Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: A friend who passed formCRC

Postby Steph20021 » Thu Oct 05, 2017 12:54 am

I am so sorry for the loss of your friend. I've read peri mets are bad in terms of prognosis. Im in a similar boat. *hug* please don't have survivors guilt, I know easier said than done.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, hysterectomy et al, 2nd temp ileo, NED?
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
Jan/17- pulmonary embolism
Feb/17- 1 wk radiation to abdo wall
Currently stable suce Aug/16- on folfiri

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