Upcoming Scans

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menreeq
Posts: 41
Joined: Fri Jun 30, 2017 10:26 am

Re: Upcoming Scans

Postby menreeq » Fri Oct 06, 2017 11:08 pm

Why can't you get MRI? I'm curious...
Stage IIA rectosigmoid CC (T3N0M0)
Dx 6/5/17 @age 41, mom to 5 & 2yo girls
Workup: c-scope, EUS, rectal MRI, CT C/A/P
AdenoCA 5.5cm, WHO Grade 2, 0/22 LN, no distant mets
CEA 1.9 (6/5/17)
No lymphovasc/perineural invasion, clear margins
MSI intact, OncotypeDx RS 7
Lap sig colectomy 6/23/17, no ileo/colostomy
Genetics counseling negative for mutations, 4 VUS
Started Xeloda monotherapy 8/13/17

Swirdfish
Posts: 271
Joined: Sun Jun 19, 2016 3:57 am

Re: Upcoming Scans

Postby Swirdfish » Mon Oct 09, 2017 3:01 am

menreeq wrote:Why can't you get MRI? I'm curious...


Was told a CT is more effective for a large area of the body. I think MRI are for specific small areas.
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

TXLiz
Posts: 228
Joined: Thu Sep 22, 2016 3:31 pm

Re: Upcoming Scans

Postby TXLiz » Mon Oct 09, 2017 11:15 am

Swirdfish wrote:Thanks all.

I wouldn't say I'm focused on the scans but I'm trying to establish a suitable for me method of determining if im still NED that i think is sufficient enough.

For some reason I'm not happy with what they have in place. I think it's lacking substance to say.

Also I eat very well and exercise majority of the week. Cardio and weights.

I will approach my ONC with the above knowledge or my surgeon for consideration.

Rectal cancer has a high local recurrence rate so why dont they scan for it?

Seems unsuitable to me.

Will CT scans every 6 months be too much radiation? Cant use MRI. I've already had a good fair share of radiation.

As CRguy said maybe imaging at different directions.

Stress isnt an issue with my life even as an engineer. Been in the job along time now. 8)


Just to chime in: I had colon cancer, and at my first scan after chemo, they did a barium enema when they scanned me. I was quite surprised and didn't expect it at all. However, they stated it was their scanning protocol. it was a pretty simple procedure and I am glad they included it.

Hope your scans are ok!
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

Swirdfish
Posts: 271
Joined: Sun Jun 19, 2016 3:57 am

Re: Upcoming Scans

Postby Swirdfish » Wed Oct 11, 2017 5:15 am

All clear... yippie
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

AussieAssCancer
Posts: 219
Joined: Sat May 21, 2016 10:16 am

Re: Upcoming Scans

Postby AussieAssCancer » Wed Oct 11, 2017 5:18 am

Nice mate, great to hear! You’ve earned a beer or two
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

AbbyDoo
Posts: 134
Joined: Wed Jun 29, 2016 2:25 am
Location: So.Ca.

Re: Upcoming Scans

Postby AbbyDoo » Wed Oct 11, 2017 9:51 pm

GREAT NEWS,
Congratulations,
53 yrs old
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t

User avatar
susie0915
Posts: 549
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Upcoming Scans

Postby susie0915 » Thu Oct 12, 2017 8:55 am

Great news. I have a scan coming up Monday. Needless to say anxiety is starting.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT
11/17 CEA<.5

User avatar
Robino1
Posts: 221
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Upcoming Scans

Postby Robino1 » Thu Oct 12, 2017 11:46 am

Great news on the clear scan! :)
At 54 2014 1st colonoscopy colon cancer detected.
Colon resect right ascending
margins clear. No chemo Stage II
2017
Distended abd, pain in intestines.
CT scan shows seeding
Ascites
Lap diag - cancer on the omentum
CEA 217
CEA 219
PET cancer on the omentum, susp activ right abdomen
FOLFOX started 6/17
CEA 202
Not genetic
8/29/17 CT scan showed excellent melting of the tumor. Chemo is working!
Ascites is gone
CEA: 9/30/17 -109; 10/12/17 - 99.1; 11/4/17 - 90.7; 11/30/17 - 70.7
BRAF V600e mutation :(

Brearmstrong
Posts: 31
Joined: Sun Mar 26, 2017 3:24 pm
Location: CT

Re: Upcoming Scans

Postby Brearmstrong » Thu Oct 12, 2017 1:04 pm

Great news!! Susie, I too have my post chemo first scan on Monday!! Good luck to both of us!!
:cry: 45 Female Jan 2017 after appendectomy
DX: (CC) tumor started in appendix and went through colon wall
Adenocarcinoma w/ mucinous features 4.1cm
mod diff G2 T4aN2
Stage IIIC
nodes 8/50
CEA 4.6 after surgery < .05
margins clear
No mutations
FOLFOX Apr-sept 2017
Clean CT scan Jul 2017 watching one small lung nodule 4mm, clean CT oct 17, CEA 3.4, nov 17 CEA 8.1.
Oct 2017 clean CT 4mm lung nodule stable, new 2 mm nodule.
Nov 17 PET shows para aortic nodes uptake. Stage IV :(

AbbyDoo
Posts: 134
Joined: Wed Jun 29, 2016 2:25 am
Location: So.Ca.

Re: Upcoming Scans

Postby AbbyDoo » Thu Oct 12, 2017 1:46 pm

I have a scan coming up Monday. Needless to say anxiety is starting.
Susie Good luck Monday, scananxiety sucks. You would think it gets easier the more you do it butt somehow it don't. Knock on wood I'm good until December.
53 yrs old
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t

TXLiz
Posts: 228
Joined: Thu Sep 22, 2016 3:31 pm

Re: Upcoming Scans

Postby TXLiz » Thu Oct 12, 2017 9:15 pm

Yay! Glad to hear scans were good to go!

Good luck to the up and coming scanners! Prayers all around for clean scans!!
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

User avatar
CRguy
Posts: 9323
Joined: Sun Feb 10, 2008 6:00 pm

Re: Upcoming Scans

Postby CRguy » Thu Oct 12, 2017 9:54 pm

Swirdfish wrote:All clear... yippie


WELL that's a damn straight good result !!!!!!! :mrgreen:
Cheers homie
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

menreeq
Posts: 41
Joined: Fri Jun 30, 2017 10:26 am

Re: Upcoming Scans

Postby menreeq » Fri Oct 13, 2017 11:28 pm

Swirdfish wrote:
menreeq wrote:Why can't you get MRI? I'm curious...


Was told a CT is more effective for a large area of the body. I think MRI are for specific small areas.


This is true. MRI has limitations for field of view. Although it isn't standard right now, if radiation from medical imaging is an issue, it is possible to do MRI of the abdomen and pelvis, and then CT of the chest (to look at the lungs). This is because MRI is not good for evaluating lung nodules. My guess is that most Oncolgists don't order it (mine won't, even though the MRI specialists at Stanford would love it if they would order a PET/MRI for surveillance). Secondly, I have a feeling insurance companies won't pay for it.

Because I am young (like most of you), if I think im just getting too many CTs (quite a subjective opinion), I am gonna switch to MR if I can figure out the insurance logistics. I've only had 2 CTs, both in 2017. I don't mind getting one a year for 5 years. But if I start to have more, not necessarily for surveillance but perhaps complications like small bowel obstruction, I will think hard about MRI for the abdomen/pelvis, and limit CT to the chest.

This is a totally subjective opinion as a patient. I know it's not in the NCCN guidelines.
Stage IIA rectosigmoid CC (T3N0M0)
Dx 6/5/17 @age 41, mom to 5 & 2yo girls
Workup: c-scope, EUS, rectal MRI, CT C/A/P
AdenoCA 5.5cm, WHO Grade 2, 0/22 LN, no distant mets
CEA 1.9 (6/5/17)
No lymphovasc/perineural invasion, clear margins
MSI intact, OncotypeDx RS 7
Lap sig colectomy 6/23/17, no ileo/colostomy
Genetics counseling negative for mutations, 4 VUS
Started Xeloda monotherapy 8/13/17

User avatar
susie0915
Posts: 549
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Upcoming Scans

Postby susie0915 » Sat Oct 14, 2017 8:47 am

menreeq wrote:
Swirdfish wrote:
menreeq wrote:Why can't you get MRI? I'm curious...


Was told a CT is more effective for a large area of the body. I think MRI are for specific small areas.


This is true. MRI has limitations for field of view. Although it isn't standard right now, if radiation from medical imaging is an issue, it is possible to do MRI of the abdomen and pelvis, and then CT of the chest (to look at the lungs). This is because MRI is not good for evaluating lung nodules. My guess is that most Oncolgists don't order it (mine won't, even though the MRI specialists at Stanford would love it if they would order a PET/MRI for surveillance). Secondly, I have a feeling insurance companies won't pay for it.

Because I am young (like most of you), if I think im just getting too many CTs (quite a subjective opinion), I am gonna switch to MR if I can figure out the insurance logistics. I've only had 2 CTs, both in 2017. I don't mind getting one a year for 5 years. But if I start to have more, not necessarily for surveillance but perhaps complications like small bowel obstruction, I will think hard about MRI for the abdomen/pelvis, and limit CT to the chest.

This is a totally subjective opinion as a patient. I know it's not in the NCCN guidelines.

I have a scan coming up Monday. When I looked at the order I noticed it was for abdomen and pelvis only. I emailed my oncologist about the lungs
and she said since I had a repeat chest scan in July to check lung nodule found in May, there was not need to expose me to more radiation. I agree that
maybe there is a risk of took much radiation exposure.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT
11/17 CEA<.5


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