Still NED!!!!

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Deb m
Posts: 422
Joined: Tue Jan 14, 2014 10:08 am

Re: Still NED!!!!

Postby Deb m » Mon Sep 25, 2017 2:09 pm

Very happy for you and so glad you didn't have to wait till October to get the good news!

deb m

DarknessEmbraced
Posts: 3113
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Still NED!!!!

Postby DarknessEmbraced » Mon Sep 25, 2017 2:12 pm

Thank you Deb!*hugs* Me too!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

Re: Still NED!!!!

Postby SweetC80 » Mon Sep 25, 2017 3:28 pm

That's fantastic!! I've been following your story. Sorry you still don't have answers though, hope they can figure it out soon!
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

DarknessEmbraced
Posts: 3113
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Still NED!!!!

Postby DarknessEmbraced » Mon Sep 25, 2017 3:45 pm

Thank you SweetC80!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

lpas
Posts: 1001
Joined: Wed Nov 19, 2014 11:11 pm

Re: Still NED!!!!

Postby lpas » Thu Sep 28, 2017 9:29 pm

Just catching up to this. Congratulations!!! So happy and relieved for you!! It has to be the colon issues that are impacting your CEA. I hope you find some relief soon.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & Celebrex
3/16 Ovarian mass removed. Benign fibroid
9/16 clean scope
4/18 clean CT
Ongoing Celebrex, Tagamet & other carefully-targeted supplements
Post-chemo CEA 3.0, 2.5, 2.3, 2.0, 1.6, 1.3, 1.8, 2.1, 1.8, 2.0, 1.8, 1.9, 1.7, 1.5, 1.6, 1.5, 1.4, 1.4, 1.3, 1.3, 1.6, 1.6, 1.3, 1.4, 1.6, 2.2, 2.4
Mom to a 4 & 6yo

AbbyDoo
Posts: 134
Joined: Wed Jun 29, 2016 2:25 am
Location: So.Ca.

Re: Still NED!!!!

Postby AbbyDoo » Thu Sep 28, 2017 11:22 pm

Congratulations WHOO WHOO 3 years.
I had one oncologist tell me if cancer was going to rear its ugly face again it most likely do so within two years.
I hope that's true and you live a cancer free life.
53 yrs old
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t

cmrl
Posts: 172
Joined: Mon Apr 21, 2014 8:39 pm

Re: Still NED!!!!

Postby cmrl » Fri Sep 29, 2017 6:14 am

Congratulations on the good news. You must have been more anxious than usual considering your stomach issues. Hope you get some answers for that also.
Resection of splenic flexure 7/24/13
T3N2BM0, Stage 3c,12/29 nodes
Folfox x12 9/13-3/14
CT scan 4/14, enlarged spleen, otherwise clear
CT 4/15, spleen WNL.
6/17 3 cm benign polyp at ileocecal valve, awaiting removal

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susie0915
Posts: 840
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Still NED!!!!

Postby susie0915 » Fri Sep 29, 2017 8:10 am

AbbyDoo wrote:Congratulations WHOO WHOO 3 years.
I had one oncologist tell me if cancer was going to rear its ugly face again it most likely do so within two years.
I hope that's true and you live a cancer free life.

My oncologist told me the same thing. Most recurrences happen within two years of diagnosis. I hope that's true as well.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

User avatar
horizon
Posts: 1475
Joined: Tue Apr 12, 2011 10:10 pm

Re: Still NED!!!!

Postby horizon » Fri Sep 29, 2017 9:13 am

Awesome!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 7 years NED). Is this real life?

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bitchslapped
Posts: 1476
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Still NED!!!!

Postby bitchslapped » Sat Sep 30, 2017 1:36 pm

Congratulations to you, DE. Nothing ungrateful about wanting to remain NED + resolving other issues. Go for broke or go home, as they say!
Keep pushing.

Best Wishes,
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

DarknessEmbraced
Posts: 3113
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Still NED!!!!

Postby DarknessEmbraced » Sun Oct 01, 2017 8:12 am

Thank you everyone! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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WriterGirl1969
Posts: 492
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Still NED!!!!

Postby WriterGirl1969 » Wed Oct 04, 2017 9:18 pm

DarknessEmbraced wrote:The doctor's office called and said that my scans show no cancer! I'm still in remission! I will still keep the October 5th appointment to go over the scans in case there's something else that shows up on them. I'm really happy there's no cancer but wish I knew what was causing my stomach issues. I hope I don't sound ungrateful because I am very grateful.


Sorry to hear you're having stomach trouble, but it's awesome that you're still in remission. Way to go, girl. :)
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear; 4/17/18 CT clear;
NED 2 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

User avatar
Rob in PA
Posts: 1975
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Still NED!!!!

Postby Rob in PA » Sat Oct 07, 2017 3:05 am

Congratulation!!
many mote to come

Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

TXLiz
Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: Still NED!!!!

Postby TXLiz » Sat Oct 07, 2017 10:02 am

Wonderful news! Please rest your mind and enjoy your life...as much as possible.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

DarknessEmbraced
Posts: 3113
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Still NED!!!!

Postby DarknessEmbraced » Mon Oct 09, 2017 9:51 am

Thank you Rob, Writergirl and Liz!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17


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