Still NED!!!!

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Deb m
Posts: 358
Joined: Tue Jan 14, 2014 10:08 am

Re: Still NED!!!!

Postby Deb m » Mon Sep 25, 2017 2:09 pm

Very happy for you and so glad you didn't have to wait till October to get the good news!

deb m

DarknessEmbraced
Posts: 2849
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Still NED!!!!

Postby DarknessEmbraced » Mon Sep 25, 2017 2:12 pm

Thank you Deb!*hugs* Me too!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

SweetC80
Posts: 72
Joined: Fri Sep 01, 2017 1:28 pm

Re: Still NED!!!!

Postby SweetC80 » Mon Sep 25, 2017 3:28 pm

That's fantastic!! I've been following your story. Sorry you still don't have answers though, hope they can figure it out soon!
Mom's history
68yo at diagnoses
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum and Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met and suspicious 7mm Lung Nodule CEA 197
9/17 Irincotecan CEA 160
10/17 Confirmed KRAS Positive CEA 210
11/17 Met growths, Liver 10cm and Lung 8mm CEA 425
12/17 Onco Apt to discuss options after treatment for abscess. Mom's not giving up

DarknessEmbraced
Posts: 2849
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Still NED!!!!

Postby DarknessEmbraced » Mon Sep 25, 2017 3:45 pm

Thank you SweetC80!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

lpas
Posts: 991
Joined: Wed Nov 19, 2014 11:11 pm

Re: Still NED!!!!

Postby lpas » Thu Sep 28, 2017 9:29 pm

Just catching up to this. Congratulations!!! So happy and relieved for you!! It has to be the colon issues that are impacting your CEA. I hope you find some relief soon.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX, Celebrex & many supplements
3/16 Ovarian mass removed. Benign fibroid
9/16 clean colonoscopy
3/17 clean CT
Ongoing Celebrex, cimetidine & other carefully-targeted supplements
Post-chemo CEA 3.0, 2.5, 2.3, 2.0, 1.6, 1.3, 1.8, 2.1, 1.8, 2.0, 1.8, 1.9, 1.7, 1.5, 1.6, 1.5, 1.4, 1.4, 1.3, 1.3, 1.6, 1.6, 1.3
Mom to a 3 & 6yo

AbbyDoo
Posts: 134
Joined: Wed Jun 29, 2016 2:25 am
Location: So.Ca.

Re: Still NED!!!!

Postby AbbyDoo » Thu Sep 28, 2017 11:22 pm

Congratulations WHOO WHOO 3 years.
I had one oncologist tell me if cancer was going to rear its ugly face again it most likely do so within two years.
I hope that's true and you live a cancer free life.
53 yrs old
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t

cmrl
Posts: 170
Joined: Mon Apr 21, 2014 8:39 pm

Re: Still NED!!!!

Postby cmrl » Fri Sep 29, 2017 6:14 am

Congratulations on the good news. You must have been more anxious than usual considering your stomach issues. Hope you get some answers for that also.
Resection of splenic flexure 7/24/13
T3N2BM0, Stage 3c,12/29 nodes
Folfox x12 9/13-3/14
CT scan 4/14, enlarged spleen, otherwise clear
CT 4/15, spleen WNL.
6/17 3 cm benign polyp at ileocecal valve, awaiting removal

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susie0915
Posts: 549
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Still NED!!!!

Postby susie0915 » Fri Sep 29, 2017 8:10 am

AbbyDoo wrote:Congratulations WHOO WHOO 3 years.
I had one oncologist tell me if cancer was going to rear its ugly face again it most likely do so within two years.
I hope that's true and you live a cancer free life.

My oncologist told me the same thing. Most recurrences happen within two years of diagnosis. I hope that's true as well.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT
11/17 CEA<.5

User avatar
horizon
Posts: 1434
Joined: Tue Apr 12, 2011 10:10 pm

Re: Still NED!!!!

Postby horizon » Fri Sep 29, 2017 9:13 am

Awesome!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 6 years NED). Is this real life?

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bitchslapped
Posts: 1360
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Still NED!!!!

Postby bitchslapped » Sat Sep 30, 2017 1:36 pm

Congratulations to you, DE. Nothing ungrateful about wanting to remain NED + resolving other issues. Go for broke or go home, as they say!
Keep pushing.

Best Wishes,
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

DarknessEmbraced
Posts: 2849
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Still NED!!!!

Postby DarknessEmbraced » Sun Oct 01, 2017 8:12 am

Thank you everyone! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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WriterGirl1969
Posts: 455
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Still NED!!!!

Postby WriterGirl1969 » Wed Oct 04, 2017 9:18 pm

DarknessEmbraced wrote:The doctor's office called and said that my scans show no cancer! I'm still in remission! I will still keep the October 5th appointment to go over the scans in case there's something else that shows up on them. I'm really happy there's no cancer but wish I knew what was causing my stomach issues. I hope I don't sound ungrateful because I am very grateful.


Sorry to hear you're having stomach trouble, but it's awesome that you're still in remission. Way to go, girl. :)
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear
NED at 1 year
“If I can help somebody as I walk along, then my living shall not be in vain.”

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Rob in PA
Posts: 1972
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Still NED!!!!

Postby Rob in PA » Sat Oct 07, 2017 3:05 am

Congratulation!!
many mote to come

Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

TXLiz
Posts: 228
Joined: Thu Sep 22, 2016 3:31 pm

Re: Still NED!!!!

Postby TXLiz » Sat Oct 07, 2017 10:02 am

Wonderful news! Please rest your mind and enjoy your life...as much as possible.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

DarknessEmbraced
Posts: 2849
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Still NED!!!!

Postby DarknessEmbraced » Mon Oct 09, 2017 9:51 am

Thank you Rob, Writergirl and Liz!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17


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