I cannot turn it off, scared about bone stuff

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Cancerislame
Posts: 230
Joined: Tue Sep 20, 2011 11:28 pm
Facebook Username: jennifer shy marrone
Location: San Diego , CA

I cannot turn it off, scared about bone stuff

Postby Cancerislame » Sun Sep 24, 2017 2:30 am

Hello colon family,

I have not been on in a while. I have been cancer free 5 years and just graduated from 4 month MRI s to 6 month MRI s. I had it Monday, Friday my primary's nurse called and said I needed a bilatteral hip xray so she see my right femur. The nurse said the ortho ordered it and I should get it this weekend. So....now I have no idea what is going on. My right hip and IT band have hurt pretty bad for over a month. The xray tech had to retake my right hip because it first looked grainy. I am scared twice...is it colon cancer metasis or is it a stress fracture or worse. Then if its nothing...what about the pain and the cryptic message from mu primary. Fortunately, I have my onc appt Monday...but crap I am scared.

Any suggestions or good thoughts will help.

Thank you,
Jennifer
3/11- dx st IV, 5cm colon, 4.5cm Lvr, 1 of 13 LN, perit.sprd@30
4/11-1/12 FOLFOX/ERB.
5/18/12 HIPEC-rt ovary, omtm rmvd.
6/24/12 smll Bwl Obst Srg
8/20/12 Xlda, Mtc. Only
11/13 no chemo
NED5/18/12
Eat vegan/gf, fish occ.-Rd The China study

PainInTheAss
Posts: 673
Joined: Tue Jul 02, 2013 3:08 am

Re: I cannot turn it off, scared about bone stuff

Postby PainInTheAss » Sun Sep 24, 2017 8:07 am

Tell yourself it is nothing and enjoy your Sunday! If you are right, you avoided worrying and ruining your day. If you are wrong, worrying all day won't make any difference. Save all your worrying until that very long drive to your appointment on Monday.

I hope it's nothing. My onc told me not to worry about pain unless it keeps me up at night. I even had pain in my liver area, but it wasn't keeping me up at night. Turned out to be gall stones. Yay! I have gall stones! I was so happy to hear that. It's amazing how cancer puts things in perspective.
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation

AlmostAmazing
Posts: 6
Joined: Mon Sep 18, 2017 8:44 am
Location: Western NY

Re: I cannot turn it off, scared about bone stuff

Postby AlmostAmazing » Sun Sep 24, 2017 8:46 am

It would be super hard not to worry. I find if I keep my focus on the moment I'm in (not always easy), I can release the stress and enjoy where I am. Mediation has been incredibly helpful through this journey.

Hugs to you, have a beautiful day.

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: I cannot turn it off, scared about bone stuff

Postby DarknessEmbraced » Sun Sep 24, 2017 11:50 am

It's hard not to worry.*hugs* I hope you get answers soon and that it's nothing serious.*hugs* I would do something you enjoy to distract yourself.*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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Cancerislame
Posts: 230
Joined: Tue Sep 20, 2011 11:28 pm
Facebook Username: jennifer shy marrone
Location: San Diego , CA

Re: I cannot turn it off, scared about bone stuff

Postby Cancerislame » Mon Sep 25, 2017 11:16 pm

Thank you, for your good thoughts! Still, NED! 5.5 years cancer free almost 7years from stage iv dx. The trouble with my femur is still unknown. My onc. Read the xray to me but said and ortho will have to follow up. The xray read possible fracture or Avascular necrosis (AVN), also called osteonecrosis, aseptic necrosis, or ischemic bone necrosis, is a condition that occurs when there is loss of blood to the bone. ... If not stopped, this process eventually causes the bone to collapse. Avascular necrosis most commonly occurs in the hip. So that sounds a little scary but Not cancer, yay!

Jennifer
3/11- dx st IV, 5cm colon, 4.5cm Lvr, 1 of 13 LN, perit.sprd@30
4/11-1/12 FOLFOX/ERB.
5/18/12 HIPEC-rt ovary, omtm rmvd.
6/24/12 smll Bwl Obst Srg
8/20/12 Xlda, Mtc. Only
11/13 no chemo
NED5/18/12
Eat vegan/gf, fish occ.-Rd The China study

Basil
Posts: 275
Joined: Thu Mar 16, 2017 12:33 pm

Re: I cannot turn it off, scared about bone stuff

Postby Basil » Mon Sep 25, 2017 11:22 pm

I don't know what those other things are but I'd take "not cancer" over any of them! Congrats!
40 y/o male (now 46), kids 11 & 14.
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear
2 year scans - clear
3 year scans - clear
4 year scans - clear
5 year scans - clear (considered cured)

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LeonW
Posts: 358
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: I cannot turn it off, scared about bone stuff

Postby LeonW » Tue Sep 26, 2017 8:07 am

Cancerislame wrote: . . . Still, NED! 5.5 years cancer free almost 7years from stage iv dx.

Wonderful!!

Cancerislame wrote:. . . ortho will have to follow up . . . . most commonly occurs in the hip . . . sounds a little scary . . .

I googled Avascular Necrosis ( :shock: yeah, I still google sometimes), it seems there are various ways to deal with it.

I don't know if this makes sense to your situation. Earlier this yr (Jan), I had a hip replacement after chemo. Found it scary, but having it done was piece of cake.
Operation at 07:30 AM -- walking (crutches) at noon -- released from hosp 08:30 AM next day. Crutches gone 3 weeks later.
No pains since. All forgotten now. I wish you'll also find an easy way out . . . .,

Congrats on NED, best wishes for bones
L
Dec 2012 - CC 2 unresect liver mets, CEA 41.8 (MM 65yrs)
Jan 2013 - colectomy @ spleen 2/26 nodes IVa T3N1bM1a
Feb-Jul - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Aug - 2x PV embolization (both failed)
Sep 2013 - R liver resect, 25d hosp (liver failure/delirium, lung emboli, encephalopathy), no living cancer (pCR)
2014/15 - recovery, scopy: 2 polyps
2016 - new town/life
2018, scopy: 2 polyps
2018/20 low (1.0-1.4) CEAs/clean CTs: 4x2014, 6x2015-17, 3x2018-20
next June 2021!


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