Reversal Thread

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Basil
Posts: 275
Joined: Thu Mar 16, 2017 12:33 pm

Re: Reversal Thread

Postby Basil » Fri Oct 27, 2017 10:24 pm

Well, had my first (pun intended) crappy experience, at the World Series no less! I took my nine year old and we had good seats in a field box along the third base line. The first home run passed about 20 yards in front of us and exited the park just inside the foul pole about 30 yards away. We got there two hours early and watched batting practice. It was great.

I'm over a month out from reversal and have been doing really well (after a week of adjustment after surgery). I've been doing so well and eating a regular diet that I didn't give two thoughts about going to the game or watching what I eat or drink. I hadn't before noticed any triggers. However, I have been drinking prune juice at night, which has the effect of basically emptying my system and then no worries the next day. No prune juice today, obviously.

We got to the park and had hotdogs and popcorn for dinner before the game. It was a blast. Then, in the third inning, I started cramping. You know what happened next. The stadium was capacity, obviously, and the line to the bathroom was easily 50 deep most of the time, although it went amazingly fast. Had four BMs at the ballpark and had to clean seats of piss to sit down. I went back to my seat a couple of times but the churning would start again. Made it to the sixth before giving up.

I had a beer early on and I'm not a beer drinker. Not sure if my body has listened to what I've been teaching it and decided, "hey, it's 9pm, time to empty out," or the hot dog, popcorn and beer triggered the reaction. Either way, it sucked.

Cramped on the way home, but no emergencies, and am still emptying out. Had to break out the baby wipes and butt cream for the first time in a long time. Anyway, I feel like that dumbass Icarus who flew too close to the sun. I tempted fate and I lost. Great pregame and first three innings, though.
40 y/o male (now 46), kids 11 & 14.
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear
2 year scans - clear
3 year scans - clear
4 year scans - clear
5 year scans - clear (considered cured)

tammylayne
Posts: 2177
Joined: Fri Jul 16, 2010 9:24 am

Re: Reversal Thread

Postby tammylayne » Sat Oct 28, 2017 10:01 am

So sorry to hear this. I could def see popcorn being a culprit. One of my fav foods, and one that well over 4 years I still can have issues with. And I rarely have issues (daily enema). You might want to wait a konth and try the popcorn again...at home :shock: butt co grats because overall,,,you are doing amazing!!!
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal

"You never know how strong you are until you have to become your own hero."

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susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Reversal Thread

Postby susie0915 » Sat Oct 28, 2017 10:07 am

Yeah sometimes it just happens without notice. I've been places where I've had to leave because of being in the bathroom so much. You went to a good game though.
Hope you had fun. Go Astros! We do miss Justin Verlander here in Detroit.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

User avatar
susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Reversal Thread

Postby susie0915 » Sat Oct 28, 2017 2:12 pm

tammylayne wrote:So sorry to hear this. I could def see popcorn being a culprit. One of my fav foods, and one that well over 4 years I still can have issues with. And I rarely have issues (daily enema). You might want to wait a konth and try the popcorn again...at home :shock: butt co grats because overall,,,you are doing amazing!!!

I can see the popcorn too. Even with the daily enema, some foods can make that less an easy process than normal. Last night I had Chinese and noticed my enema this morning taking a little more time.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

Basil
Posts: 275
Joined: Thu Mar 16, 2017 12:33 pm

Re: Reversal Thread

Postby Basil » Wed Dec 13, 2017 8:26 pm

Bumping this thread only to report all is well. I still drink prune juice in the evenings because it had worked so well but not sure if I really need it. Other than a few minor hiccups - none of which were accidents or other embarrassing situations - all has been great. I’m not going to bump this thread again unless there is a change in my status but after nearly three months of “all is well” I think that unlikely.

The summary, for those of you in the future that may find this, is:

40 y/o male, stage iii
No chemorad (6 rounds folfox instead)
LAR/TME - 90% of rectum and 42 lymph nodes removed
Temp Ileo for app. 2 months
Reversal 9/25/17
Reversal recovery largely uneventful, clustering on 2-3 occasions
Prune juice in most evenings to move things along

Good luck fellow travelers!
40 y/o male (now 46), kids 11 & 14.
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear
2 year scans - clear
3 year scans - clear
4 year scans - clear
5 year scans - clear (considered cured)

User avatar
Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Reversal Thread

Postby Robino1 » Wed Dec 13, 2017 8:46 pm

It's always nice to hear "all is well"! :)

Merry Christmas! :D
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

User avatar
susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Reversal Thread

Postby susie0915 » Thu Dec 14, 2017 9:46 am

Glad you are doing well. Merry Christmas!
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5


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