My cousin (who lives in Scotland) is a Nurse and she brought to my attention this survey from the NCRI (UK's National Cancer Research Institute) is collating information from patients and caregivers (even former, like myself) to help steer the future of research. I was happy to fill it- I am just sharing it here in case anyone is also interested. In my mum's case, there was very little attention given to the side effects (some of them disastrous) that the treatments caused on her body... I found more useful information here on CT how to help her ( Tammylane's creme for neuropathy springs to mind) than from her doctors. From my mother's case, what I take away is that research should look more into helping people who could never be cured (like she was) have a better quality of life for whatever time they have left.
Of course every case is different, this was just hers.
The survey is anonymous, and it's opened to UK patients and caregivers only: http://www.ncri.org.uk/jla/the-survey/