National Cancer Reserach Institute Survey (UK Only)

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ronnieciao
Posts: 88
Joined: Sat Nov 08, 2014 1:58 pm
Location: Northern Italy and UK

National Cancer Reserach Institute Survey (UK Only)

Postby ronnieciao » Mon Sep 18, 2017 3:05 pm

My cousin (who lives in Scotland) is a Nurse and she brought to my attention this survey from the NCRI (UK's National Cancer Research Institute) is collating information from patients and caregivers (even former, like myself) to help steer the future of research. I was happy to fill it- I am just sharing it here in case anyone is also interested. In my mum's case, there was very little attention given to the side effects (some of them disastrous) that the treatments caused on her body... I found more useful information here on CT how to help her ( Tammylane's creme for neuropathy springs to mind) than from her doctors. From my mother's case, what I take away is that research should look more into helping people who could never be cured (like she was) have a better quality of life for whatever time they have left.

Of course every case is different, this was just hers.

The survey is anonymous, and it's opened to UK patients and caregivers only: http://www.ncri.org.uk/jla/the-survey/
DD of Mum, 53
Diagnosed CC Stage IVb, October 2014
Mets to liver and peri
Folfox + Panitumumab
5fu+Panitumumab
Folfiri + Avastin
Cetuximab monotherapy
Tecenriq monotherapy- failed
Left us Feb 2017

stu
Posts: 602
Joined: Sat Aug 17, 2013 5:46 pm

Re: National Cancer Reserach Institute Survey (UK Only)

Postby stu » Fri Sep 22, 2017 2:14 pm

Done , can't not help a fellow Scott out .
Take care,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared


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