Update Pete

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hart2hart
Posts: 798
Joined: Wed Nov 23, 2011 10:46 pm

Update Pete

Postby hart2hart » Thu Sep 14, 2017 10:57 pm

Pete's last scan with Dr Kemeny was clear. If all goes as planned, Hai pump
Will be removed end of 2018. Best decision we made was Dr D'Angelica and
Dr Kemeny (hai) at Sloan. We would encourage anyone that has liver mets to
At least see Dr K and get her opinion! Pete turns 65 in November and things are
Pretty much back to normal except for the medical bills! Please don't give up,
Keep fighting! PM me anytime!

Love you all,

Julie and Pete
Stamford, Ct
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - 1/2024
Hai Pump/Port Removed - 1/2020

ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: Update Pete

Postby ams5796 » Fri Sep 15, 2017 2:11 pm

Love that. Great news!





Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: Update Pete

Postby mariane » Fri Sep 15, 2017 2:14 pm

Congratulations for you both!
I am so happy. Thank you for letting us know.
Julie, thank you for your kind posts and advises you gave me before my multiple surgeries.
Many happy NED years to go!!
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: Update Pete

Postby mariane » Fri Sep 15, 2017 2:18 pm

Is Pete still taking ursodiol?? I wonder if I will ever be able to live without it.
And yes, the medical bills are a pain but survivable.
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

User avatar
Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Update Pete

Postby Robino1 » Fri Sep 15, 2017 2:44 pm

Congratulations! Great news. :)
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Update Pete

Postby justin case » Fri Sep 15, 2017 4:36 pm

Great news, is Pete still in the kitchen !
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Update Pete

Postby Lee » Fri Sep 15, 2017 5:53 pm

hart2hart wrote: . . . If all goes as planned, Hai pump
Will be removed end of 2018.
Julie and Pete
Stamford, Ct


That line there sounds like the word "cured". Beautiful words. May you ALWAYS reside in NEDville

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Update Pete

Postby Maia » Fri Sep 15, 2017 8:31 pm

Julie --and Pete: tears of joy here. So immensely happy to read this, old pals...
Thank YOU for sharing this
much love

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: Update Pete

Postby Stanfordmom » Sat Sep 16, 2017 6:26 pm

So happy for you two. Enjoy your LONG lives together!!
Sha
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Update Pete

Postby DarknessEmbraced » Sat Sep 16, 2017 8:16 pm

Congratulations, that's wonderful news! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

AussieAssCancer
Posts: 258
Joined: Sat May 21, 2016 10:16 am

Re: Update Pete

Postby AussieAssCancer » Sun Sep 17, 2017 3:04 am

SNAP!!! Wonderful news. Very happy for you both!
Dx Oct '15 w/ Stage 3c RC/ CEA 8
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Clear CT scans in April ‘16 (NED), Dec ‘16, Aug ‘17, Feb ‘18, March ‘19, Feb ‘20
Feb '17: Ileostomy reversed
CEA Post Surgery: ALWAYS 2

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: Update Pete

Postby peanut_8 » Sun Sep 17, 2017 10:53 am

Hooray!!!
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

jens22
Posts: 1013
Joined: Wed Jun 09, 2010 9:26 am
Facebook Username: jspirio
Location: Long Island, NY

Re: Update Pete

Postby jens22 » Sun Sep 17, 2017 3:22 pm

That;s Amazing. THis team is incredible! You are right...worth traveling for their opinions.
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 10 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 57 Mom of 3 boys.

User avatar
juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Update Pete

Postby juliej » Tue Sep 19, 2017 6:03 pm

YES!!! Congratulations to Pete on yet another clear scan and on giving the middle finger to cancer!

Actually, Pete and I may be there at the same time having our HAI pumps removed! Wouldn't that be a blast? :D

xo,
JJ
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1


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