My mom's journey is over

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jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: My mom's journey is over

Postby jhocno197 » Thu Sep 14, 2017 9:59 am

I am so sorry.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

Rainykatie
Posts: 35
Joined: Wed Apr 19, 2017 2:58 pm

Re: My mom's journey is over

Postby Rainykatie » Thu Sep 14, 2017 1:14 pm

I am so sorry for your loss. As a caregiver to my mother who is stage IV, I understand the journey you have been on these last few years. Peace be with you and your dear mom.
Caregiver to my mom (73)
Dx Stage IV w/ liver, bone mets 4/14/17
Folfox started 4/25/17 - 8 rounds
Took a 6 week break to check some things off the bucket list - great response from chemo - everything shrunk and liver tumors virtually gone
CT scan 9/2017 showed spread to ovaries- laparoscopic surgery at MSK
Resumed Folfox 10/23/17 - 1 round
Surgery to remove primary tumor due to discomfort, 11/7/17. Trouble with recovery, numerous mets to abdomen area found
Passed 12/5/17

Beckster
Posts: 433
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: My mom's journey is over

Postby Beckster » Thu Sep 14, 2017 1:33 pm

So sorry to hear of your loss....you and your family are in my thoughts and prayers. :cry:
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda
6/17,12/17,6/18,12/18,6/19,12/19,12/20 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8 6/20 3.0 12/20 2.7
Clear Colonoscopy 10/17, 11/19 :D

BUD2016
Posts: 60
Joined: Sat Sep 10, 2016 3:25 pm

Re: My mom's journey is over

Postby BUD2016 » Thu Sep 14, 2017 3:23 pm

I am very sorry for your loss. You have been an exeptional caregiver to your mom and this is not easy. I wish you peace of mind. You have a true angel now watching over you.
09/2016: Mom dx/rectal cancer
10/2016: Open surgery. T3N0/Grade 2
11/2016: PET/CT scan shows 5 liver mets in both lobes
11/2016: FOLFOX + Avastin started on her 71st birthday
KRAS gen 2 G13D mutant, BRAF Negative, MSS
03/2017: Oxi stopped after 9th tx, 5FU cntd. CT scans w/ contrast every 2 months - small shrinkage/stable
05/2017: PET/CT progression, started FOLFIRI + AVASTIN
07/2017: MRIs/CT stable
09/2017: MRIs/CT - min progression
09/2017: FOLFIRI + CYRAMZA
11/2017: left us

ashima2016
Posts: 36
Joined: Thu Dec 01, 2016 10:56 am

Re: My mom's journey is over

Postby ashima2016 » Thu Sep 14, 2017 3:32 pm

so sorry for your loss.

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: My mom's journey is over

Postby DarknessEmbraced » Thu Sep 14, 2017 5:00 pm

I'm so very sorry for the loss of your mother!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: My mom's journey is over

Postby Stanfordmom » Thu Sep 14, 2017 7:35 pm

I am so so sorry. Hope your beautiful memories together will get you and your family thought this difficult time.

Thinking of you and your family,

Sha
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

User avatar
Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: My mom's journey is over

Postby Maia » Fri Sep 15, 2017 8:29 pm

Lmighty... I saw your message days ago and I've been sharing your pain. I know, feel, how you made everything possible for you mom, with a realistic outlook, looking after he quality of life also and first. You maybe perceived how close I've felt to you in this past months.
I also lost my dear friend who was battling peritoneal carcinomatosis since one year ago --metastatic bladder cancer, in his case. Ascites during the past month. He left this Earth pass Tuesday. I'm accompanying you in your pain, deep pain.
Much love,
Maia

JennPixie
Posts: 39
Joined: Tue Aug 08, 2017 8:53 am
Location: Peach State

Re: My mom's journey is over

Postby JennPixie » Fri Sep 15, 2017 11:56 pm

:( *hugs*
So sorry. :cry:
F, 44y/o
Colon cancer, ascending colon
Stage 4
NTN: T4N1M1
Colostomy, reversal, loop illeostomy

Started FOLFOX Feb. 14th...

A work in progress...
...Aren't we all.?.
8)

User avatar
Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: My mom's journey is over

Postby Shana » Sat Sep 16, 2017 12:25 am

You were an amazing caregiver and advocate for your mom.

My thoughts and prayers for you and your family. She will forever be in your heart.
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

stu
Posts: 1461
Joined: Sat Aug 17, 2013 5:46 pm

Re: My mom's journey is over

Postby stu » Sat Sep 16, 2017 5:51 pm

Thinking of you and your family . What a support you were to her .
Peace be her journey ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

jortego128
Posts: 288
Joined: Sat Aug 15, 2015 7:47 am

Re: My mom's journey is over

Postby jortego128 » Sat Sep 16, 2017 8:24 pm

I'm very sorry. You have my deepest condolences....
DM 57 yrs old dx 6/8/15 T:4a N:1b M:1
KRAS G12D and TP53 C242fs mutations
Poorly Differentiated, Prominent Signet Ring Component(~50%)
Microsatellite Stable, 3 of (13)lymph nodes positive
15 Liver mets, largest 3.2 cm
Prim. Resection, Right Hemicolectomy 6/21/15
Start Chemo 7/20/15
2 rounds FOLFOX, 1 round FOLFOX +Avastin
CT 8/28/15, met growth, largest 4.5cm
4 rounds FOLFOX+Avastin
CT 11/06/15 mets stable, lungs clear
Begin FOLFIRI+Avastin 11/17/15, Stop chemo 1/26/16
Entered Paradise 3/11/2016

fumaros
Posts: 273
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: My mom's journey is over

Postby fumaros » Sat Sep 16, 2017 9:02 pm

I am sorry this happened. I pray you find some comfort in the coming days, your support through your mom's journey was remarkable.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

mpbser
Posts: 953
Joined: Wed Apr 19, 2017 11:52 am

Re: My mom's journey is over

Postby mpbser » Tue Sep 19, 2017 6:30 am

My condolences to you and your family.
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

TXLiz
Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: My mom's journey is over

Postby TXLiz » Sat Oct 07, 2017 10:46 am

sorry for the loss of your mother. I hope she rests well and you can find peace and comfort.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear


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