My mom's journey is over

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LMighty
Posts: 98
Joined: Sun Aug 28, 2016 6:16 am
Location: Hong Kong

My mom's journey is over

Postby LMighty » Wed Sep 13, 2017 3:27 pm

Despite recent scans showing gradual improvements, immunotherapy failed and rapid progression led to heart, lung and kidney failure in days. My mom passed away peacefully today. She fought a fierce battle with this dreadful disease. She is in a better place now.

I would like to thank everyone on this board for accompanying my mom on her journey.
Supporter to my mom (64 yr); KRAS wild type; MSS

2012: DX Stage I, rectal cancer; resection and colostomy
5/16: DX Stage III, mets found; right groin lymph node and soft tissue
5-6/16: Radiation + Xeloda
7/16: DX Stage IV, pleural effusion; cancer cells found in fluid
7-12/16: Xelox + Avastin X 6
1/17: Clean PET scan, NED
2/17: Pleural effusion; recurrence
4/17: Iri + Erb X 3
5/17: Ascites; Chemo failed
6/17: Keytruda X 1
7/17: TECENTRIQ (atezolizumab) + COTELLIC (cobimetinib)
9/17: At peace

aja1121
Posts: 201
Joined: Sat Jun 28, 2014 5:12 pm

Re: My mom's journey is over

Postby aja1121 » Wed Sep 13, 2017 3:33 pm

I am so sorry for your loss. You are in my thoughts.
DH dx Stage 3B rectal ca 5/23/14 (age 41) from Mpls, MN
6/14 Xeloda + 30 rad
10/14 LAR/ileo, all 12 nodes clean
12/14-04/15 FOLFOX x 10
05/15 VATS, single lung met
06/15 ileo reversal, 09/15 local recurrence, 10/15 permanent colostomy
11/15 FOLFIRI x 4, 01/16 major growth, 10 more rad
02/16 curative resection failed, tumor debulked
03/16 FOLFOX x 4
11/16 Xeloda/Avastin until progression seen 08/17
09/17 start NCT02024607 (BBI608 + FOLFIRI arm)

susie0915
Posts: 167
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: My mom's journey is over

Postby susie0915 » Wed Sep 13, 2017 3:45 pm

I am so sorry for your loss. Prayers for you and your family.
57 yr old mother of 3
5/15 DX T3N0MO Stage 2A
6/15 5 wks of radiation/xeloda
7/15 sigmoidoscopy/scar tissue only
8/15 Pet scan NED
9/15 LAR
10/15 Bowel blockage. 3 1/2 weeks in hospital.
early ileo rev since
surgery to repair blockage. c-diff inf
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nodule onc thinks scar tissue
7/17 no change lung nodule
Currently NED

Robino1
Posts: 56
Joined: Fri Aug 11, 2017 12:09 pm
Location: Florida

Re: My mom's journey is over

Postby Robino1 » Wed Sep 13, 2017 3:50 pm

I'm am so sorry
At 54 2014 1st colonoscopy colon cancer detected.
Colon resect right ascending
margins clear. No chemo req
2017
Distended ab pain in intestines.
CT scan shows seeding
Ascites causing the distention.
Lap diag - cancer on the omentum
CEA 217
CEA 219
PET cancer on the omentum, susp activ right abdomen
FOLFOX started 6/17
CEA 202
Not genetic
8/29/17 CT scan showed excellent melting of the tumor. Chemo is working!
Ascites is gone, gone, gone

Joannerogers
Posts: 243
Joined: Tue Jun 16, 2015 4:50 pm

Re: My mom's journey is over

Postby Joannerogers » Wed Sep 13, 2017 3:55 pm

Sad news! I'm sorry!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

benben
Posts: 178
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: My mom's journey is over

Postby benben » Wed Sep 13, 2017 6:20 pm

Very sorry to hear.

May you find some peace in these difficult times and keep your mom's memory alive.

best wishes,
many hugs!
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
Granix given, Now Zarxio treatments every session.
Treatment 7 reduced to 75% OXI
Treatment 8 - NO OXI, just Luke and 5FU here on out.
Current - 9 treatments done, LOW WBC/ANC/RBC

Lee
Posts: 5086
Joined: Sun Apr 16, 2006 4:09 pm

Re: My mom's journey is over

Postby Lee » Wed Sep 13, 2017 6:29 pm

Please accept my condolences on the passing of your mom. She fought a brave battle with this cancer. There is a special thread for those left behind, you might want to check it out.

viewtopic.php?f=1&t=46183

Feel free to hang around here, maybe you can help the next person starting this journey.

All the best to you,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

AussieAssCancer
Posts: 207
Joined: Sat May 21, 2016 10:16 am

Re: My mom's journey is over

Postby AussieAssCancer » Wed Sep 13, 2017 6:48 pm

So very, very sorry to hear. What a lucky woman your mother was to have you to support her. I wish you nothing but peace.

AAC
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

DebZ
Posts: 69
Joined: Fri Nov 14, 2014 9:01 pm
Facebook Username: Bulc

Re: My mom's journey is over

Postby DebZ » Wed Sep 13, 2017 8:03 pm

I'm so sorry to hear this sad news. I lost my mom a year ago and though I know it was a blessing, it's still hard every day without her. My thoughts are with you.
48 @ diagnosis Sept 2014
MSS; Kras mutant G12D
Oct 2014: right hemicolectomy
Dec 2014: Folfox 12 treatments (lots of reductions in oxaliplatin and ceased before end)
June 2015: clean scans
Sept 2015: scans reveal ovarian mass and liver met; Folfiri
Jan 2016: liver wedge resection and complete hysterectomy
April 2016: multiple lung mets; Folfiri+Avastin
June 2017: lung mets growing; switching to Folfox+Avastin

User avatar
ocstacy
Posts: 131
Joined: Mon Jun 19, 2017 11:29 pm
Facebook Username: stacy

Re: My mom's journey is over

Postby ocstacy » Thu Sep 14, 2017 3:30 am

my thoughts and prayers are with you at this time. Hugs and god bless you.
Caregiver/daughter to dear mother age 77, diag.5/09/17
Rectal CA Stage 3A Low grade adenocarcinoma- 6 cm
Neoadjuv. Chemo/Rad. start 7/10/17 ended 08/16/17
Xeloda 2600 mg daily Rad.Onc Mon-Fri (28 days) -3 mth break now
Lap. surgery @ Keck USC, Dr Sang Lee-chief- Winter 2017 temp colostomy
Chemo Xeloda post surgery following reversal
Any Stage 3A survivors out there? Please share your journey
Praying 4 "Complete Response" or "NED"
Love my mom, BUTT she is a horrible patient! :roll:

User avatar
BeansMama
Posts: 942
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: My mom's journey is over

Postby BeansMama » Thu Sep 14, 2017 5:34 am

I'm so sorry for your loss. Keeping you and your family in my thoughts and prayers.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

mariane
Posts: 541
Joined: Sun Sep 13, 2015 6:16 pm

Re: My mom's journey is over

Postby mariane » Thu Sep 14, 2017 7:42 am

I am very sorry.
mom of 8 years old twins, dx @ 40 with upper rectal cancer, 10+ liver mets in 6/2015, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

SweetC80
Posts: 16
Joined: Fri Sep 01, 2017 1:28 pm

Re: My mom's journey is over

Postby SweetC80 » Thu Sep 14, 2017 8:14 am

I'm so sorry for your loss. My heart breaks for you. Keeping you all in my thoughts and prayers.
My Mom's history
68 years old at diagnoses
12/16 Stage IIIb Rectal Cancer CEA 4.4
1/17-2/17 Chemoradiation
5/17 Colon (9 non resectable polyps), Rectum and Anus removal Perm Ileostomy Bag
7/17 Starts FOLFOX
9/17 Stage IV 9cm Liver Met plus abdominal Lymph Nods and suspicious Lung Nodule CEA 197
9/17 Start Irincotecan

ValZen
Posts: 13
Joined: Fri Sep 08, 2017 8:16 am

Re: My mom's journey is over

Postby ValZen » Thu Sep 14, 2017 8:32 am

My heart goes out to you and your family LMighty. Please accept my prayers and condolences during such a difficult time.

Mercy110
Posts: 57
Joined: Wed Aug 16, 2017 12:13 am

Re: My mom's journey is over

Postby Mercy110 » Thu Sep 14, 2017 8:51 am

So sorry to hear this news. I will pray for your family. Take care.
Daughter of Mum age 56, NRAS-mutated
2017-05: Surgery done. Temporary stoma. Path: T4N1M0 Stage3C
2017-06: Chemo - Xeloda Rejected radio. CEA: 7.3
2017-08: CEA: 8.0 (1st) CEA: 9.8 (2nd) CT Scan: Multiple lung nodules. Stage4
2017-09: Chemo - FOLFOX + Avastin, 85% for serious diarrhea CEA: 7.0

WISH ALL MIGHTY GOD HEALS MUM WITH HIS MIRACLE


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