24yo female, 5-6 precancerous polyps

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KaelaOne
Posts: 1
Joined: Tue Sep 12, 2017 11:50 pm

24yo female, 5-6 precancerous polyps

Postby KaelaOne » Tue Sep 12, 2017 11:57 pm

Hey everyone!

I was doing some googling and found this site, hoping someone can give me some info :)

I had a colonoscopy that revealed 6 polyps, 5 were removed and came back as precancerous. The 6th was left there because it was too small to remove?

Wondering if it would be worth getting tested for Lynch Syndrome? My gastro doctor doesn't seem to think so but my family has a lot of cancer history (no one diagnosed with Lynch).

Next colonoscopy is scheduled for a years time, is that risky seeing as he left a polyp in there?

Thanks!

Deb m
Posts: 352
Joined: Tue Jan 14, 2014 10:08 am

Re: 24yo female, 5-6 precancerous polyps

Postby Deb m » Wed Sep 13, 2017 9:43 am

That's very young to be getting your first colonoscopy, and good that you did. Were you having some issues/symptoms that prompted you to get your first scope at 24. I would push for genetic testing. It's unusual for somebody so young to have a polyp, let alone six of them that are pre-cancerous. I think getting another scope in a years time is good, I wouldn't wait any longer for sure!

deb m

jhocno197
Posts: 809
Joined: Mon May 11, 2015 9:33 pm

Re: 24yo female, 5-6 precancerous polyps

Postby jhocno197 » Wed Sep 13, 2017 9:53 am

I might want one in six months.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

SweetC80
Posts: 61
Joined: Fri Sep 01, 2017 1:28 pm

Re: 24yo female, 5-6 precancerous polyps

Postby SweetC80 » Wed Sep 13, 2017 10:10 am

My BIL has Lynch syndrome and he has yearly colonoscopies and each one reveals at least a couple polyps that they remove. Being so young I would push for the testing.
My Mom's history
68 years old at diagnoses
12/16 Stage IIIb Rectal Cancer CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon (9 non resectable pre cancerous polyps), Rectum and Anus removal Perm Ileostomy Bag
7/17 Starts FOLFOX
9/17 Stage IV 9cm Liver Met plus abdominal Lymph Nods and suspicious Lung Nodule CEA 197
9/17 Starts Irincotecan CEA 160
10/17 Confirmed KRAS Positive CEA 210
11/17 CEA 425 waiting on scan

veckon
Posts: 97
Joined: Thu Jul 27, 2017 7:44 am

Re: 24yo female, 5-6 precancerous polyps

Postby veckon » Wed Sep 13, 2017 10:43 am

Definitely get a comprehensive set of germline genetic tests. Contact a genetic counselor at Memorial Sloan Kettering.
27 yo male
Metastatic rectal cancer diagnosed 12/16
Liver metastases and peritoneal carcinomatosis
Lynch syndrome, MSI-H
Failed liver resection 3/17
FOLFOX6 12/16 - 05/17
Keytruda 5/17 - present
@Memorial Sloan Kettering

DarknessEmbraced
Posts: 2826
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 24yo female, 5-6 precancerous polyps

Postby DarknessEmbraced » Wed Sep 13, 2017 1:46 pm

I agree that you should get genetic testing. Good luck!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

Lee
Posts: 5248
Joined: Sun Apr 16, 2006 4:09 pm

Re: 24yo female, 5-6 precancerous polyps

Postby Lee » Wed Sep 13, 2017 2:05 pm

KaelaOne wrote:
Next colonoscopy is scheduled for a years time, is that risky seeing as he left a polyp in there?

Thanks!


I too support getting the genetic testing. Why did the Dr leave a polyp in your body? Based on that alone, I too would want a follow up in 6 months.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

JJH
Posts: 164
Joined: Mon Apr 24, 2017 7:26 am
Location: Europe

Re: 24yo female, 5-6 precancerous polyps

Postby JJH » Wed Sep 13, 2017 2:29 pm

KaelaOne wrote:
Next colonoscopy is scheduled for a years time, is that risky seeing as he left a polyp in there?

Thanks!

I think that the issue of follow-up colonoscopy scheduling is a complicated one, since the decision depends on a number of factors,such as the histological type of polyps found, the shape of the polyps (tubular vs flat),their degree of dysplasia, the adequacy of the patient's prep, etc. The article below can give you an idea of the types of issues that need to be considered when determining the optimal testing interval.

https://gi.org/guideline/guidelines-for-colonoscopy-surveillance-after-screening-and-polypectomy-a-consensus-update-by-the-us-multi-society-task-force-on-colorectal-cancer/
DX 2012: Stage IIc
Locations: upper-rectum T4b + mid-sigmoid T4b
Surgery: Open LAR + temp ileo
TX: chemo/rad (28 days) + Xelox (3 cycles)
Ileo reversal
5 years surveillance
7/3/2017: Final 5-year report -
"complete remission ... cured'

User avatar
susie0915
Posts: 406
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: 24yo female, 5-6 precancerous polyps

Postby susie0915 » Wed Sep 13, 2017 3:53 pm

I would definitely do genetic counseling. I wasn't a candidate but did do color.com. For $250 they will test for a number of cancer markers. I spoke to the genetic counselor at the hospital that treated me, and she endorsed color. I had all results sent to her as well. It's very easy to do. I was told my insurance wouldn't pay for genetic testing since I did not have cancer in my family and was 55 yrs old when diagnosed. But I would think at 24 and history of precancerous polyps would qualify you for insurance coverage. I decided to do for my kids. Even though they will be having colonoscopies early because of me, there could be others and the doctor told me if you are positive for a marker insurance will pay for preemptive testing.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev since
surgery to repair blockage. c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT


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