What was everyone's symptoms of colon cancer

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Kay1982
Posts: 17
Joined: Tue Sep 05, 2017 2:54 pm

What was everyone's symptoms of colon cancer

Postby Kay1982 » Mon Sep 11, 2017 9:23 pm

Hi Everyone. I am awaiting a colonoscopy but in the meanwhile I am in everyday lower pelvic pain, nausea and some diarrhea upon eating. Can you all share your symptoms of colon cancer upon being diagnosed? Thank you!

JJH
Posts: 164
Joined: Mon Apr 24, 2017 7:26 am
Location: Europe

Re: What was everyone's symptoms of colon cancer

Postby JJH » Mon Sep 11, 2017 11:13 pm

Here you can find some information on colonoscopy prep:
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=53348&p=422050#p422050
DX 2012: Stage IIc
Locations: upper-rectum T4b + mid-sigmoid T4b
Surgery: Open LAR + temp ileo
TX: chemo/rad (28 days) + Xelox (3 cycles)
Ileo reversal
5 years surveillance
7/3/2017: Final 5-year report -
"complete remission ... cured'

Basil
Posts: 207
Joined: Thu Mar 16, 2017 12:33 pm

Re: What was everyone's symptoms of colon cancer

Postby Basil » Mon Sep 11, 2017 11:27 pm

Butt bleeding
40 y/o male, kids 6&9
Dx 3/16/17, rectal cancer S3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED

veckon
Posts: 104
Joined: Thu Jul 27, 2017 7:44 am

Re: What was everyone's symptoms of colon cancer

Postby veckon » Tue Sep 12, 2017 3:56 am

Rectal bleeding. Some discomfort sitting.
27 yo male
Metastatic rectal cancer diagnosed 12/16
Liver metastases and peritoneal carcinomatosis
Lynch syndrome, MSI-H
Failed liver resection 3/17
FOLFOX6 12/16 - 05/17
Keytruda 5/17 - present
@Memorial Sloan Kettering

Beckster
Posts: 180
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: What was everyone's symptoms of colon cancer

Postby Beckster » Tue Sep 12, 2017 4:34 am

No symptoms...found in a routine colonoscopy.
57/Female
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Tumor type: Adenocarcinoma
Tumor size: 3.5 cm x 2.5 x 0.7 cm
Tumor grade: G3 (surgical) G2 (pre-op)
TNM: T3N0M0/IIA
Positive lymph nodes: 0/24
Lymphovascular invasion
Surgical margins: clear
Lynch- Negative
12/27/2016 - Capeox, anaphylactic reaction to oxaliplatin on first infusion-discontinued
1/2/17 to 6/9/17- Xeloda monotherapy
6/26/17- CT scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8
Clear Colonoscopy 10/17 :D

Robino1
Posts: 177
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: What was everyone's symptoms of colon cancer

Postby Robino1 » Tue Sep 12, 2017 4:54 am

Mine was found during my first colonoscopy. It was that age thing. Hit 50 and get checked. I was just a tad behind getting it done at 53.

No symptoms to warn me that it was there.

Recurrence but in a different place, not in the colon, was a whole different ballgame.
At 54 2014 1st colonoscopy colon cancer detected.
Colon resect right ascending
margins clear. No chemo req
2017
Distended abd, pain in intestines.
CT scan shows seeding
Ascites causing the distention.
Lap diag - cancer on the omentum
CEA 217
CEA 219
PET cancer on the omentum, susp activ right abdomen
FOLFOX started 6/17
CEA 202
Not genetic
8/29/17 CT scan showed excellent melting of the tumor. Chemo is working!
Ascites is gone
CEA: 9/30/17 -109; 10/12/17 - 99.1; 11/4/17 - 90.7

NHMike
Posts: 550
Joined: Fri Jul 21, 2017 3:43 am

Re: What was everyone's symptoms of colon cancer

Postby NHMike » Tue Sep 12, 2017 6:26 am

Rectal bleeding, difficulty going to the bathroom. The former was sudden, the latter gradual.
06/23/17: ER rectal bleeding; Colonoscopy+Biopsy
07/13/17: Stage 3B rectal cancer. T3, N1b, M0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6 mm, 5 x 5 mm.
Xeloda 3,400 mg/day + radiation 07/31 - 09/08.
CEA 2.7; halfway through treatment: 1.9; after treatment: 1.8.
MSS, KRAS G12D
10/06/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 mm (-75%), 5 x 3 mm (-40%). 5.1 CM from AV.
Surgery: 10/30/17 LAR, Temp Ileostomy

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susie0915
Posts: 440
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: What was everyone's symptoms of colon cancer

Postby susie0915 » Tue Sep 12, 2017 8:15 am

I noticed blood on my stool for a few months. It wasn't all the time, thought it was hemorrhoids. Did a home test dr gave me to check stool. I did it when I didn't see blood, still came back positive for blood. So had colonoscopy and rectal tumor was found. There are many other causes for the symptoms you have mentioned. Try not to get ahead of yourself. Good Luck.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev since
surgery to repair blockage. c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT

Aqx99
Posts: 245
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: What was everyone's symptoms of colon cancer

Postby Aqx99 » Tue Sep 12, 2017 9:15 am

Persistent diarrhea for months, blood in the bowl and anemia.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
Diagnosed at age 39
2/21/17 Diagnosis
2/21/17 CEA 0.9 ng/mL
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR with temp loop ileostomy, ovaries and fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 Started CapeOx, 6 Cycles
7/24/17 Diagnosed with precursor ovarian cancer
9/6/17 CA 125 11.1 U/mL
1/18ish Reversal

SweetC80
Posts: 62
Joined: Fri Sep 01, 2017 1:28 pm

Re: What was everyone's symptoms of colon cancer

Postby SweetC80 » Tue Sep 12, 2017 11:28 am

My mother said she had nothing until one day she started bleeding rectally and went for a colonoscopy just a few days later.
My Mom's history
68 years old at diagnoses
12/16 Stage IIIb Rectal Cancer CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon (9 non resectable pre cancerous polyps), Rectum and Anus removal Perm Ileostomy Bag
7/17 Starts FOLFOX
9/17 Stage IV 9cm Liver Met plus abdominal Lymph Nods and suspicious Lung Nodule CEA 197
9/17 Starts Irincotecan CEA 160
10/17 Confirmed KRAS Positive CEA 210
11/17 CEA 425 waiting on scan

DarknessEmbraced
Posts: 2832
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: What was everyone's symptoms of colon cancer

Postby DarknessEmbraced » Tue Sep 12, 2017 12:32 pm

I had horrible left sided pain that would have me doubled over, horrible bloating, thin stools. diarrhea, maroon colored blood in my stools, constipation and then just passing blood.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

fumaros
Posts: 212
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: What was everyone's symptoms of colon cancer

Postby fumaros » Tue Sep 12, 2017 1:09 pm

Anemia and pain in my side. There was blood in my stool but it wasn't visible to me, it was detected there by doctors
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 7/17 - NED

JZ1992
Posts: 1
Joined: Mon Oct 10, 2016 12:44 pm

Re: What was everyone's symptoms of colon cancer

Postby JZ1992 » Wed Sep 13, 2017 7:29 am

My husband had none. He had a stomach ache on a Wednesday. Worked the rest of the week, finally the following Sunday night he let me take him to the ER.
Stage IV, innumerable and inoperable mets to liver. He was 46 at diagnosis.

Sooo frustrating to have no symptoms and to be too young to even think of a colonoscopy. He is healthy as can be, aside from this. Oh and he got into a motorcycle wreck (a deer literally jumped into him from the side of the road...ridiculous! lol) a month out from the anniversary of his diagnosis. We've been married 25 years and after the bike wreck it was like, damn babe, if you want to get away from me, just say so..sheesh! hahahaha!!

veckon
Posts: 104
Joined: Thu Jul 27, 2017 7:44 am

Re: What was everyone's symptoms of colon cancer

Postby veckon » Wed Sep 13, 2017 10:47 am

JZ1992 wrote:My husband had none. He had a stomach ache on a Wednesday. Worked the rest of the week, finally the following Sunday night he let me take him to the ER.
Stage IV, innumerable and inoperable mets to liver. He was 46 at diagnosis.

Sooo frustrating to have no symptoms and to be too young to even think of a colonoscopy. He is healthy as can be, aside from this. Oh and he got into a motorcycle wreck (a deer literally jumped into him from the side of the road...ridiculous! lol) a month out from the anniversary of his diagnosis. We've been married 25 years and after the bike wreck it was like, damn babe, if you want to get away from me, just say so..sheesh! hahahaha!!


So sorry to hear. Same thing basically happened to me except 20 years earlier in life.
27 yo male
Metastatic rectal cancer diagnosed 12/16
Liver metastases and peritoneal carcinomatosis
Lynch syndrome, MSI-H
Failed liver resection 3/17
FOLFOX6 12/16 - 05/17
Keytruda 5/17 - present
@Memorial Sloan Kettering

mpbser
Posts: 304
Joined: Wed Apr 19, 2017 11:52 am

Re: What was everyone's symptoms of colon cancer

Postby mpbser » Wed Sep 13, 2017 11:41 am

My husband had blood in his stool but he blew it off as "just a hemmaroid (sp?)." His symptoms reached a crisis when he was having shortness of breath, difficulty breathing, edema and weight gain from it, and rapid heart beat while at rest (125) and hypertensive crisis (BP of 240/140). He nearly stroked out. What was happening was the tumor had invaded through the colon and into the surrounding lymph nodes and fatty tissue. This was causing internal bleeding, leading to anemia, which was leading to edema and congestive heart failure.
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm width T1 N0
CEA: 1.4 Pre-op; 2.1 2 days Post-op
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal expression of MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53


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