Doctors in Kansas City?

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kc1948
Posts: 5
Joined: Mon Sep 11, 2017 3:21 pm
Location: Shawnee, KS

Doctors in Kansas City?

Postby kc1948 » Mon Sep 11, 2017 4:38 pm

Anyone have recommendations for oncologists and related doctors in the Kansas City area? Seeking a second opinion, and leaning towards KU Medical Center.

Bonus points for anyone close to Shawnee.
Friend has cancer, not me
69 yo female with T4bN0M0, stage II
Dx Sep 2017, colon resection Oct 2017

rockhound
Posts: 34
Joined: Fri Jul 14, 2017 5:00 pm

Re: Doctors in Kansas City?

Postby rockhound » Mon Sep 11, 2017 6:03 pm

See my post below about KU med
Last edited by rockhound on Mon Sep 11, 2017 10:05 pm, edited 1 time in total.
42 yr old male
Diagnosed December 2016, age 41
Stage 1/IIA rectal cancer - T2/3N0M0 via MRI (MRI indicates stage 1; onc/surgeon = stage 2a)
Lynch syndrome, MSH6 mutation, MSI-H
2 to 3/2017 Xeloda + Radiation
5/10/17 - Robotic LAR with temp. loop illeostomy, 0/20 lymph nodes
6 to 7/2017 - Six cycles Folfox @ full strength
9/20/17 - Ileostomy takedown
10/17 - Clear CT

NedPlease
Posts: 522
Joined: Fri Mar 23, 2012 3:56 pm

Re: Doctors in Kansas City?

Postby NedPlease » Mon Sep 11, 2017 6:34 pm

I don't know if you have liver involvement but Dr. Timothy Schmitt, liver transplant surgeon at KU, did my liver resection in 2010. He was in Virginia at that time.

Best to you,
N
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 7/17 Clear Scans
Today- NED

NHMike
Posts: 550
Joined: Fri Jul 21, 2017 3:43 am

Re: Doctors in Kansas City?

Postby NHMike » Mon Sep 11, 2017 6:35 pm

I don't have a personal recommendation but University of Kansas Hospital is ranked 25th nationally for cancer by US News and World Report:

http://health.usnews.com/best-hospitals ... 510/cancer

While Barnes-Jewish Hospital in St. Louis is ranked 19th:

http://health.usnews.com/best-hospitals ... 930/cancer
06/23/17: ER rectal bleeding; Colonoscopy+Biopsy
07/13/17: Stage 3B rectal cancer. T3, N1b, M0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6 mm, 5 x 5 mm.
Xeloda 3,400 mg/day + radiation 07/31 - 09/08.
CEA 2.7; halfway through treatment: 1.9; after treatment: 1.8.
MSS, KRAS G12D
10/06/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 mm (-75%), 5 x 3 mm (-40%). 5.1 CM from AV.
Surgery: 10/30/17 LAR, Temp Ileostomy

rockhound
Posts: 34
Joined: Fri Jul 14, 2017 5:00 pm

Re: Doctors in Kansas City?

Postby rockhound » Mon Sep 11, 2017 7:37 pm

I've been treated under the treatment of KU med folks since last Feb. - Dr Raed Al-Rajabi (oncologist) and Dr. John Ashcraft (colorectal surgeon) and all the great nurses. Both Drs. are personable and on top of what's going on with current/future trends, treatments, etc. All positive experiences and I have absolutely no regrets with my KU team. Surgery was good at the hospital (headed back next week for ileostomy takedown) and while I'd rather visit KC for something else, all my visits at Westwood center have been fine (e.g., on time, efficient, caring, professional, etc.). I'm out of town, so I did chemotherapy and radiation treatments locally; great coordination and communication between both KU doctors and the local treatment facilities and doctors.
42 yr old male
Diagnosed December 2016, age 41
Stage 1/IIA rectal cancer - T2/3N0M0 via MRI (MRI indicates stage 1; onc/surgeon = stage 2a)
Lynch syndrome, MSH6 mutation, MSI-H
2 to 3/2017 Xeloda + Radiation
5/10/17 - Robotic LAR with temp. loop illeostomy, 0/20 lymph nodes
6 to 7/2017 - Six cycles Folfox @ full strength
9/20/17 - Ileostomy takedown
10/17 - Clear CT

daisy9051
Posts: 8
Joined: Sat Jan 18, 2014 3:24 pm

Re: Doctors in Kansas City?

Postby daisy9051 » Wed Sep 13, 2017 6:15 pm

I see Dr. Kasi at KU Med. All of my treatments and surgeries have been handled by KU. I have received many second opinions (Dana Farber, MD Anderson, etc) and KU was the only team to offer HIPEC and lymph node resection for my recurrence. I had HIPEC almost two years ago and I am doing great, currently NED. Can't say enough about KU Med and everyone I have encountered there. All the best to you.
40 yo mom of 4 girls
4/13: 14 cm L ovarian muc adeno, pthlgy consistent w colon primary
Neg scopes/ CT
6/13: surgery, NED, 0/22 LN, no primary found
8/13: neg MRI, scopes, XELOX 3x
10/15: recur periaortic lymph nodes/peritoneum
12/15: HIPEC w/ oxi
1/16: start FOLFOX, bowel obstructions post-op

JJH
Posts: 164
Joined: Mon Apr 24, 2017 7:26 am
Location: Europe

Re: Doctors in Kansas City?

Postby JJH » Fri Sep 15, 2017 11:44 pm

rockhound wrote:obviously I can't figure out how to delete posts! - see my post below about KU med

When you are logged in and are at the Forum level viewing all topic titles you can scroll down to the bottom of the page to view your FORUM. PERMISSIONS.

You may not have permission to delete your posts here. Your FORUM PERMISSSIONS might say "You cannot delete your posts in this forum"
DX 2012: Stage IIc
Locations: upper-rectum T4b + mid-sigmoid T4b
Surgery: Open LAR + temp ileo
TX: chemo/rad (28 days) + Xelox (3 cycles)
Ileo reversal
5 years surveillance
7/3/2017: Final 5-year report -
"complete remission ... cured'

kc1948
Posts: 5
Joined: Mon Sep 11, 2017 3:21 pm
Location: Shawnee, KS

Re: Doctors in Kansas City?

Postby kc1948 » Sun Sep 17, 2017 9:58 am

Thanks for everyone's opinions. We have appointments with John Ashcraft and Joaquina Baranda,
Friend has cancer, not me
69 yo female with T4bN0M0, stage II
Dx Sep 2017, colon resection Oct 2017

rockhound
Posts: 34
Joined: Fri Jul 14, 2017 5:00 pm

Re: Doctors in Kansas City?

Postby rockhound » Sun Sep 17, 2017 8:11 pm

kc1948 wrote:Thanks for everyone's opinions. We have appointments with John Ashcraft and Joaquina Baranda,


Good luck!
42 yr old male
Diagnosed December 2016, age 41
Stage 1/IIA rectal cancer - T2/3N0M0 via MRI (MRI indicates stage 1; onc/surgeon = stage 2a)
Lynch syndrome, MSH6 mutation, MSI-H
2 to 3/2017 Xeloda + Radiation
5/10/17 - Robotic LAR with temp. loop illeostomy, 0/20 lymph nodes
6 to 7/2017 - Six cycles Folfox @ full strength
9/20/17 - Ileostomy takedown
10/17 - Clear CT


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