veckon wrote:I’m confused. This looks like blog post, not meant for scientific publication. Are you actually in a trial or just experimenting on yourself? Anyway, I can testify to the intense pain at primary tumor site experienced when I first started Pembrolizumab. Lasted six weeks. Six weeks of hell.
veckon wrote:Why combine chemotherapy and immunotherapy? Aren’t most chemotherapies immunosuppressive?
veckon wrote: But I didn’t, and things remarkably improved. But it took a long time, and my recovery is still ongoing.
DK37 wrote:For those of you curious how my "home made" immunotherapy experimental treatment (Atezo/FOLFIRI/Avastin) has been going the past month, here is the first report (as a personal blog post)!
https://adventuresinlivingterminallyopt ... om/?p=7238
So this is what GOING OFF-ROADING – EXPERIMENTAL TREATMENT STRATEGY STYLE feels like… welcome to the wild world of Stage IV Cancer…
To Life!
-DK37
CRguy wrote:You, more than I, have earned the right to use my signature phrase
" my life is an ongoing NONrandomized UNcontrolled experiment with N=1 ! "
juliej wrote:CRguy wrote:You, more than I, have earned the right to use my signature phrase
" my life is an ongoing NONrandomized UNcontrolled experiment with N=1 ! "
DK, I agree completely with CRguy! Your life is indeed a "NONrandomized UNcontrolled experiment with N=1"!
I raise a glass in your honor:
Here's to bravery and perseverance, to your brilliant scientific mind and, especially, to "thinking outside the box," to your unshakeable and constant shining spirit -- may this new therapy work and be a wild success!
Juliej
plastikos wrote:Hi Tom. I follow your blog when I can. I remember reading that you underwent SIRT with Y90? Is that accurate? I ask because I am about to undergo SIRT next week as well. How was it? I am also on Pembrolizumab (temporarily stopped for now but will continue after SIRT). Any thoughts on the possible abscopal effect of combining SIRT and immunotherapy?
bitchslapped wrote:DK, Your daughters are darling...as is the new addition to the family, Blink. Agree 100% the love & lessons animals bring to the home.
Congratulations to you in concocting your very own "witches brew", enlisting onc as co-conspirator
BS
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