NEW-Need some positivity here.

Please feel free to read, share your thoughts, your stories and connect with others!
DonutHead
Posts: 64
Joined: Tue Oct 03, 2017 6:45 pm
Facebook Username: mark

Re: NEW-Need some positivity here.

Postby DonutHead » Fri Apr 10, 2020 9:21 am

Hello! I recently scanned NED as well so 2.5 after surgery and just over 3 with a clean bill of health. My doctor wants me to scan one last time on the 6 month interval, but I am concerned over receiving too much radiation and will in all likelihood refrain from another CT scan until the 12 month mark? Instead, I will undergo another colonoscopy at the 12 month mark although my doctor said it was not necessary and take an x-ray of my diaphragm instead. Any thoughts?

You know, the thoughts of regression always creep in, especially when things appear at their best and I allow myself to forget the past ordeal. PSTD is the best way to describe the feeling. I had a panic attack or two. Find myself depressed. Before I had no cares in the world. So, yes....talking to someone about your thoughts, feelings, concerns is therapeutic. I would probably look for a therapist that has seen patients with our own experiences since they are more likely to understand our position rather than just give us the clinical answers and approach.

So happy to hear you are doing well and getting along. Unfortunately, freaking cancer did more to is than just make us physically sick, but we are alive and in a better place than before so keep living and stay strong!
Male 49 yrs.
09/2017: Colonoscopy 2.2x2 cm lesion - Invasive Adenocarcinoma
- CT - slightly enlarged LN; CEA 2.0
- LAP Rectosigmoid - 8' and 25 LNs removed
- Biopsy - 1/25 LN slight molecular invasion
- Stage IIIa - T3 N1 M0
- Chemo: 3 of 8 rds Ox; 8 rds 4000mg Xeloda
10/2017: PET - NED
03/2018: PET/CT - NED
09/2018: Colonoscopy & PET/CT - NED
03/2019: CT - NED
09/2019: Colonoscopy & CT - NED (0.9 CEA)
Still Here!

teacher2017
Posts: 263
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Tue May 05, 2020 8:15 pm

Hi there-
I say get the colonoscopy. Colon cancer patients are too scared to go a year or more! He will understand that.
I’m so glad you have been clear this long. That’s wonderful. So happy that there are indeed happy stories.

Yes it’s definitely PTSD but on high. I just watched the beginning of Dead Pool and saw the scene where he is dxed with cancer. I had an absolute colossal meltdown in front of my whole family. Thoughts of the Dx come in my head, the desperation, the I’m so sorry, why am I still here thoughts all run through my head. Blood work on May 29th and I’ll freak out again. Being “NY on Pause” sure sucks. I havent been anywhere but the supermarket since March 13 and have been teaching remotely which is so darn hard. I had to cancel my trip to Hawaii too. I’m losing it a bit. My senior will not have a prom and her graduation is on hold until the schools figure it out. I feel like Covid took that away from me. It all sucks. I just hope you are all well. Stay safe and wash your hands!!! It would surely suck to survive cancer and die of Covid.

Hang in there,
Lydia
50 yo mom of 2 (14, 17)
DX stage 3c - 12/17 LN. T3
8" colon resection 9/22/17
6.1cm tumor
folfox 11/8/17-4/18
CEA - 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea - 1.8 6/18
Cea - 2.1. 8/18
8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19
Port removal- 9/19
Cea level- 1.2 10/19

teacher2017
Posts: 263
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Tue May 05, 2020 8:18 pm

Hi Claudia-
You are correct. We have to sort of put it on a shelf. But other things trigger a panic attack. No one gets it like we do. Every tinge of pain makes me worry. Therapy is next if we can just get out of the house!!!!
Take care!
50 yo mom of 2 (14, 17)
DX stage 3c - 12/17 LN. T3
8" colon resection 9/22/17
6.1cm tumor
folfox 11/8/17-4/18
CEA - 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea - 1.8 6/18
Cea - 2.1. 8/18
8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19
Port removal- 9/19
Cea level- 1.2 10/19

jep
Posts: 228
Joined: Sun Jun 11, 2017 7:45 pm
Location: New England, USA

Re: NEW-Need some positivity here.

Postby jep » Tue May 05, 2020 9:58 pm

Hey Teacher2017!! I’m so glad you are doing well....I’ve been following your journey since you joined CC....great to hear from you....
jep
Wife of DH (47) Stage IV CC 5/16/17
T Loc: recto-sig
T type: Adenocarcinoma
T size: 7.4 cm
T grade: G3
TNM code: T3N2M1
Pos LNs: 8/20
BL CEA: .9
LVI: present
Perineural invasion: present
LAR margins: clear (w/in microns)
Folfox (8/17-1/18)
Scope 6/18 - CLEAR! - 2 polyps
PET 10/17/18: 3 pos LNs
Irino + Vecti (started in 11/18)
CEA: 1.7 (2/19)
Xel + rad (5/19)
Surgery: 8/21/19 (aborted)
P1 Trial 10/19 - 12/19
Bypass 12/6/19
Folfox + vecti 1/2/19 - 4/3/20
Kid Fail 5/1/20
Folfiri + Avastin 5/4/20 -


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 21 guests