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Re: NEW-Need some positivity here.

Posted: Mon Aug 26, 2019 6:31 am
by teacher2017
Atoq wrote:When will you know the results of the last scan? I also had one on the 20th of August, light CAT to the chest and ecography to the liver. I will have a scope on the 4th of September and then get the answer. But I am not worried, if I am sick I will face it when it is real and not just a possibility. I know is not something you can control but just to give another point of view. A big hug and good luck!

Claudia



Tomorrow morning around 10. I’ll know results. And thank you!

Re: NEW-Need some positivity here.

Posted: Mon Aug 26, 2019 6:32 am
by teacher2017
DonutHead wrote:you are not a crazy woman, you just had a bad day! we all have those and it is not something to beat yourself up over. i remember telling my doctor that my port was coming out, i didn't care what happened or what he thought, my body and i am paying for the procedure. the bleeding is normal and an ever so slight rise in your CEA is meaningless. a .2 rise is not even something you should blink over. If it were 20.something then maybe there is cause for concern. environmental changes, biological changes, exposure to certain conditions can all contribute to a rise in your CEA count. Take my count, it has always been at a steady 2.0, even when i had cancer and after treatment. My last bloodwork pegged it at 2.0 and it's been almost 2 years now.

Just hit reset and try again. if you are not comfortable with your port being accessed, say so. They are there to serve you. BIG hug to you. You got this, nothing to be worried ove!


Thank you once again. It was just a crappy day. I’ll hane the results tomorrow.

Re: NEW-Need some positivity here.

Posted: Tue Aug 27, 2019 12:10 pm
by teacher2017
All Clear!!! Booyah!!! 1 year cancer free! Now three months Cea and six month scans. Port is coming out this month!!!

Re: NEW-Need some positivity here.

Posted: Tue Aug 27, 2019 12:24 pm
by DonutHead
Congrats!!! Such great news! hate to say I told you so! :)

Re: NEW-Need some positivity here.

Posted: Tue Aug 27, 2019 12:42 pm
by Beckster
WONDERFUL NEWS!!!!! :D :D :D

Re: NEW-Need some positivity here.

Posted: Tue Aug 27, 2019 11:44 pm
by Punky44
Yayayayay!

Re: NEW-Need some positivity here.

Posted: Fri Aug 30, 2019 3:47 pm
by Atoq
Fantastic news! I am really happy :D

All the best

Claudia

Re: NEW-Need some positivity here.

Posted: Thu Sep 05, 2019 7:44 pm
by teacher2017
Thank you everyone- the support from all of you is always very helpful. A million thanks!

Re: NEW-Need some positivity here.

Posted: Fri Sep 13, 2019 3:27 am
by DonutHead
Okay, guys...here we go. It's my turn next week to get through my check-ups. It's been 2 years since surgery and just over 1.5 years since chemo ended. I feel great, no physical worries, but anxious none-the-less. You just never know with cancer!

Re: NEW-Need some positivity here.

Posted: Sat Sep 21, 2019 8:14 pm
by teacher2017
DonutHead wrote:Okay, guys...here we go. It's my turn next week to get through my check-ups. It's been 2 years since surgery and just over 1.5 years since chemo ended. I feel great, no physical worries, but anxious none-the-less. You just never know with cancer!



Please keep us posted!!! Hoping for a completely uneventful scan!!!! Praying!

Re: NEW-Need some positivity here.

Posted: Sat Oct 26, 2019 7:17 am
by teacher2017
Port removed!!! It’s a beautiful thing!!!! Amazing feeling!

Re: NEW-Need some positivity here.

Posted: Sat Oct 26, 2019 8:04 am
by Jannine
Congrats!! So happy for you! :D

Re: NEW-Need some positivity here.

Posted: Mon Dec 16, 2019 8:24 pm
by teacher2017
Hi all-
I had my latest blood work and all seems well. Cea level is at 1.2 again and no anemia. Some pains every now and again in the liver, but hoping it’s nothing. I just made a friend with a an oncology/chemo pharmacist. She mentioned taking metformin and possibly oncoloplex. Anyone take these? She also reiterated Vitamin d3. Also looking into a FoundationOne test. Anyone else?

Re: NEW-Need some positivity here.

Posted: Tue Dec 17, 2019 9:00 am
by Beckster
teacher2017 wrote:Hi all-
I had my latest blood work and all seems well. Cea level is at 1.2 again and no anemia. Some pains every now and again in the liver, but hoping it’s nothing. I just made a friend with a an oncology/chemo pharmacist. She mentioned taking metformin and possibly oncoloplex. Anyone take these? She also reiterated Vitamin d3. Also looking into a FoundationOne test. Anyone else?


Glad to hear you are doing well! My oncologist reiterated the importance of D3. I take 2000 mg every day. Also, I am pre diabetic, but I was not told anything about metformin. I wish I knew this yesterday because I had my onc appt and would have asked. I am now past the 3 year mark, and he decreased my appts to twice a year and CT scan yearly instead of every 6 months!

Hope you have a wonderful Christmas and healthy New Year
Beckster

Re: NEW-Need some positivity here.

Posted: Tue Dec 17, 2019 4:08 pm
by teacher2017
Beckster wrote:
teacher2017 wrote:Hi all-
I had my latest blood work and all seems well. Cea level is at 1.2 again and no anemia. Some pains every now and again in the liver, but hoping it’s nothing. I just made a friend with a an oncology/chemo pharmacist. She mentioned taking metformin and possibly oncoloplex. Anyone take these? She also reiterated Vitamin d3. Also looking into a FoundationOne test. Anyone else?


Glad to hear you are doing well! My oncologist reiterated the importance of D3. I take 2000 mg every day. Also, I am pre diabetic, but I was not told anything about metformin. I wish I knew this yesterday because I had my onc appt and would have asked. I am now past the 3 year mark, and he decreased my appts to twice a year and CT scan yearly instead of every 6 months!

Hope you have a wonderful Christmas and healthy New Year
Beckster




You too! Merry Christmas!!!!