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Re: NEW-Need some positivity here.

Posted: Wed Jun 05, 2019 6:47 pm
by Milk Tea
I was praying for your scan to be clean and clear. So happy to know this. Thank you for sharing your good news with us.

Re: NEW-Need some positivity here.

Posted: Wed Jun 05, 2019 7:25 pm
by margiej
Fantastic news!

Re: NEW-Need some positivity here.

Posted: Thu Jun 06, 2019 2:13 am
by DonutHead
So happy for you! Take a deep breath and LIVE! Fantastic news, made my day!

Re: NEW-Need some positivity here.

Posted: Fri Jun 07, 2019 5:08 pm
by Caat55
Yippee, wahoo, good for you!

Re: NEW-Need some positivity here.

Posted: Sat Jun 08, 2019 6:40 pm
by CRguy
teacher2017 wrote:All clear!!!! All clear!!! BOOYAH!!! Woop Woop! So happy! I’m so sick of worrying! Now for a colonoscopy...going to try and live my life. I will always keep you posted. And I wish you all NED!!!!


and may the NED be with you also !
.... AND the dancing squirrel :mrgreen:

Cheers
CRguy

Image

Re: NEW-Need some positivity here.

Posted: Sat Jun 08, 2019 8:50 pm
by AmyG
teacher2017 wrote:All clear!!!! All clear!!! BOOYAH!!! Woop Woop! So happy! I’m so sick of worrying! Now for a colonoscopy...going to try and live my life. I will always keep you posted. And I wish you all NED!!!!



Oh hot damn! Not sure how I missed this but that's fantastic!!

Re: NEW-Need some positivity here.

Posted: Sun Jun 09, 2019 3:17 am
by stu
The best of news and may many more scans follow just like this one .

Onto even better times .

Stu

Re: NEW-Need some positivity here.

Posted: Fri Jul 05, 2019 12:38 pm
by teacher2017
Colonoscopy on Monday. I have the best miralax prep but I hate the thought of doing this again. The gi dr didn’t want me to do it for another three years until I told him the cancer went to my liver and I had a resection. Then suddenly his smile faded and all willing to do it. I think cancer is mental torture. Stage 4 feels like waiting for the next show to drop. Geez.

Re: NEW-Need some positivity here.

Posted: Fri Jul 05, 2019 1:45 pm
by teacher2017
teacher2017 wrote:Colonoscopy on Monday. I have the best miralax prep but I hate the thought of doing this again. The gi dr didn’t want me to do it for another three years until I told him the cancer went to my liver and I had a resection. Then suddenly his smile faded and all willing to do it. I think cancer is mental torture. Stage 4 feels like waiting for the next shoe to drop. Geez.

Re: NEW-Need some positivity here.

Posted: Fri Jul 05, 2019 3:07 pm
by stu
I used to hate seeing the cloudy look that passed over their faces . It gets replaced over time though .

My husband was working with the surgeon who told her she was a stage 4 patient ten years ago when he was a junior doctor . He was so delighted to hear she was bouncing around .

Have a good weekend ,

Stu

Re: NEW-Need some positivity here.

Posted: Wed Jul 10, 2019 7:33 am
by Nate33
Teacher2017, I work in a school district too. I was wondering if you were able to work during your FOLFOX treatments. I started my treatment in the end of June and am trying to figure out what I am going to do in the fall. Congrats on your recent test results. God bless!

Re: NEW-Need some positivity here.

Posted: Wed Jul 10, 2019 8:31 pm
by jep
Hi Nate33,
My husband is also a teacher and he did work through Folfox....he did have to take a day off every 2 weeks for treatment, but he did it and only had to take a handful of other days off due to symptoms. Of course everyone reacts differently....are you able to get FMLA in place as a back up? His principal suggested that....it’s a nice way to cover any absences without worry....good luck!!
jep

Re: NEW-Need some positivity here.

Posted: Wed Jul 10, 2019 9:07 pm
by teacher2017
Nate33 wrote:Teacher2017, I work in a school district too. I was wondering if you were able to work during your FOLFOX treatments. I started my treatment in the end of June and am trying to figure out what I am going to do in the fall. Congrats on your recent test results. God bless!



Nate!

It wasn’t easy because it gets progressively worse on folfox. I did well on it. Had infusion on a Friday and was disconnected on Sunday. Monday I would take off if needed. It made me very tired but there were days I took off that I probably could have gone in and taken the Tuesday instead. Work was very understanding and accommodating. It’s doable. Talk to the principal and calculate how many days you estimate. Once Oxali stops, you feel a lot better. I never went in hooked up. I stayed home and sulked the entire time. You can do this! Keep in touch!
And go kick its ass!
Lydia

Re: NEW-Need some positivity here.

Posted: Mon Jul 15, 2019 10:04 am
by islander717
teacher2017 wrote:Ok freaking out. Four days of some bright red blood on the stool and in the bowl. Headed to the gi dr tomorrow. Scared too death. I’m in the middle of chemo. I have #6 on Friday and onc said it may have to stop for a colonoscopy. Could it be the chemo? Lack of water? Something minor?


Question on this teacher2017, what was the outcome from this bloody episode? I just finished my folfox cycle 2 and experienced bleeding as well, no bleeding since the resection until now.
thanks

Re: NEW-Need some positivity here.

Posted: Mon Jul 15, 2019 8:24 pm
by teacher2017
islander717 wrote:
teacher2017 wrote:Ok freaking out. Four days of some bright red blood on the stool and in the bowl. Headed to the gi dr tomorrow. Scared too death. I’m in the middle of chemo. I have #6 on Friday and onc said it may have to stop for a colonoscopy. Could it be the chemo? Lack of water? Something minor?


Question on this teacher2017, what was the outcome from this bloody episode? I just finished my folfox cycle 2 and experienced bleeding as well, no bleeding since the resection until now.
thanks


Hi- after speaking with the gi, he said it was most definitely the chemo. He told me to treat it like a very bad hemorrhoid. Very bland food, soups, Metamucil each day, etc. It went away thank goodness. Your body is reacting to the chemo for sure. Tell the dr to be safe. You can do this! This will pass- you will get your life back and you will be okay. Keep saying it. Chemo is strong medicine. Let it do it’s job.

Lydia