NEW-Need some positivity here.

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O Stoma Mia
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Dehydration

Postby O Stoma Mia » Sun Dec 03, 2017 10:27 pm

Aqx99 wrote:
    heiders33 wrote:I think I've started having some diarrhea -- waves of pain in the intestine in the mornings usually followed by some liquid output. I assume that it's diarrhea? So hard to tell with the ileostomy. I'm going to mention it to my onc tomorrow. It's been pretty regular in the mornings in the last week before I eat, and has happened a couple other times as well.

A high volume of liquid output is considered diarrhea with an ileostomy. Measure your output, anything over 1000 ml/day is diarrhea and you need to be careful of dehydration. Up your fluid intake.

Yes, you need to be able to recognize diarrhea while on ileostomy, and you need to know how to deal with dehydration in order to avoid serious kidney problems.
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=43233&p=310141#p310141

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52710&p=414918#p414918
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heiders33
Posts: 77
Joined: Sat Nov 04, 2017 11:08 am

Re: NEW-Need some positivity here.

Postby heiders33 » Mon Dec 04, 2017 6:20 pm

Thanks. It seems like it was just minor diarrhea and I'm not dehyrdrated. Been drinking a ton of water and some pedialyte and urinating normally.
35 year-old female
May 2017: Dx rectal cancer at T3N2M0
June-July 2017: 28 days of chemo/radiation
September 2017: LAR surgery with loop ileostomy
October 2017: started six rounds of mop-up XELOX

teacher2017
Posts: 129
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Fri Dec 08, 2017 3:02 pm

Question regarding anemia. I was told that I had low iron counts this time but not enough to postpone chemo. The next one may be pushed back due to Christmas. I am wondering if it is normal? Perhaps still from the surgery? I had a bloody stool episode after this chemo and maybe I lost a lot of blood? I have no idea. Onc said we will avoid the shot if we postpone a week. I'm bummed but I get it. Big sigh...
48 year old female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection Sept 22 2017
6.1cm tumor size
chemo -folfox 11/8 started
CEA level- 1.4 11/8
Hoping clean up chemo works!

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susie0915
Posts: 649
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Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: NEW-Need some positivity here.

Postby susie0915 » Fri Dec 08, 2017 6:45 pm

teacher2017 wrote:Question regarding anemia. I was told that I had low iron counts this time but not enough to postpone chemo. The next one may be pushed back due to Christmas. I am wondering if it is normal? Perhaps still from the surgery? I had a bloody stool episode after this chemo and maybe I lost a lot of blood? I have no idea. Onc said we will avoid the shot if we postpone a week. I'm bummed but I get it. Big sigh...

My hemoglobin was always low. It tends to run on the low side of normal anyways. My oncologist prescribed ferrous sulfate. My hemoglobin was regular below 10 during chemotherapy.
58 yrs old Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc feels scar tissue
7/17 no change lung nodule
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule or scarring/inflammation

Aqx99
Posts: 320
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: NEW-Need some positivity here.

Postby Aqx99 » Fri Dec 08, 2017 7:35 pm

teacher2017 wrote:Question regarding anemia. I was told that I had low iron counts this time but not enough to postpone chemo. The next one may be pushed back due to Christmas. I am wondering if it is normal? Perhaps still from the surgery? I had a bloody stool episode after this chemo and maybe I lost a lot of blood? I have no idea. Onc said we will avoid the shot if we postpone a week. I'm bummed but I get it. Big sigh...


I was severely anemic to start with, and have never gotten into the normal range. My numbers fluctuated during chemo. I take iron and vitamin C twice a day to help combat it.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Diagnosis, Age 39
2/21/17 CEA 0.9 ng/mL
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Diagnosed w/ovarian cancer
9/6/17 CA 125 11.1 U/mL
11/27/17 CEA 2.6 ng/mL
12/5/17 CT showed NED
12/13/17 CEA 2.9 ng/mL
1/11/18 CA 125 8.6 U/mL
1/23/18 Reversal

DonutHead
Posts: 32
Joined: Tue Oct 03, 2017 6:45 pm
Facebook Username: mark

Re: NEW-Need some positivity here.

Postby DonutHead » Sat Dec 23, 2017 7:03 pm

Merry Christmas, everyone! Hug your family tight and enjoy the holidays!
Male 48 yrs.
09/10/2017: Colonoscopy 2.2x2 cm lesion - Invasive Adenocarcinoma - NOT Genetic
09/13/2017: CT - No Mets - Very slightly enlarged LN
09/19/2017: Chest Xray, CBC, CEA 2.0. normal
09/20/2017: LAP Rectosigmoid - 8' and 25 LNs removed
09/21/2017: Biopsy - 1/25 LN slight molecular invasion
Dx: Stage IIIa - T3 N1 MX
Chemo of 8 cycles Oxaliplatain with 2 weeks of Xeloda (3 week cycle) for 6 months
10/09/2017: PET negative; no molecular activity, no metabolic activity, NED. T3 N1a M0

teacher2017
Posts: 129
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Mon Jan 15, 2018 8:25 am

Happy new yr everyone! Hoping you are all ok. Just checking in. Had chemo 5 and the fatigue has been hard. Onc wants me to ge the neulasta shot today. Depression continues. I don’t hear enough stories of stage 3c survivors and I get so worried. Reading everything about diet- trying the green tea, blueberries, dried plums, tumeric and cayenne ideas too. Wish I had the energy to exercise. NY winters are hard. Hoping you all are well!
48 year old female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection Sept 22 2017
6.1cm tumor size
chemo -folfox 11/8 started
CEA level- 1.4 11/8
Hoping clean up chemo works!

NHMike
Posts: 854
Joined: Fri Jul 21, 2017 3:43 am

Re: NEW-Need some positivity here.

Postby NHMike » Mon Jan 15, 2018 9:18 am

teacher2017 wrote:Happy new yr everyone! Hoping you are all ok. Just checking in. Had chemo 5 and the fatigue has been hard. Onc wants me to ge the neulasta shot today. Depression continues. I don’t hear enough stories of stage 3c survivors and I get so worried. Reading everything about diet- trying the green tea, blueberries, dried plums, tumeric and cayenne ideas too. Wish I had the energy to exercise. NY winters are hard. Hoping you all are well!


I had Chemo 2 and it's been hard.

I do hear about stage 4 survivors and that's a good sign but the statistics overall aren't that good (still I think). It's five days since infusion and I'm going to try to walk today. Have been spending a lot of time in bed the long weekend. I need to go into the office for a while too.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

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Atoq
Posts: 54
Joined: Wed Oct 25, 2017 9:31 am

Re: NEW-Need some positivity here.

Postby Atoq » Mon Jan 15, 2018 9:51 am

Hi! I am also 3c but possibly IV. I also have two kids, a bit younger than yours. Having surgery to remove the tumor in two weeks, but I already have a colostomy because of blockage after radiation.

About being depressed, I am so happy because I started again doing exercizes for the abdomen, I was expecting some hormonal swings because of radio induced menopause. I don’t know maybe is the chemo as well making you depressed?

We are going to make the next statistics, the one available now is old with respect to new therapies. I think I have to live the last time I have as happy as possible for the people around me, maybe it will be a long time or not, but at least lets’ make it be nice.

However I think hormons, chemo, radio, can also make us depressed, it doesn’t help to be positive if there is a chemical or physical problem. Have you tried to get something against depression?

All the best

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy

Aqx99
Posts: 320
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: NEW-Need some positivity here.

Postby Aqx99 » Mon Jan 15, 2018 10:59 am

teacher2017 wrote:Happy new yr everyone! Hoping you are all ok. Just checking in. Had chemo 5 and the fatigue has been hard. Onc wants me to ge the neulasta shot today. Depression continues. I don’t hear enough stories of stage 3c survivors and I get so worried. Reading everything about diet- trying the green tea, blueberries, dried plums, tumeric and cayenne ideas too. Wish I had the energy to exercise. NY winters are hard. Hoping you all are well!


I finally had to get medication for my depression. I was trying to be strong, but it was taking its toll on me. There is no shame in asking for help. We go through a lot with this.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Diagnosis, Age 39
2/21/17 CEA 0.9 ng/mL
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Diagnosed w/ovarian cancer
9/6/17 CA 125 11.1 U/mL
11/27/17 CEA 2.6 ng/mL
12/5/17 CT showed NED
12/13/17 CEA 2.9 ng/mL
1/11/18 CA 125 8.6 U/mL
1/23/18 Reversal


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