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Re: NEW-Need some positivity here.

Posted: Sun Nov 12, 2017 9:27 pm
by teacher2017
Aqx99 wrote:
heiders33 wrote:I have had one cycle so far and found it emotionally draining as well. I was fatigued and nauseous and napped a lot. Mentally I felt like I was never going to get out of the fog I was in. But I did! Now I am gearing up for my next Oxi infusion tomorrow and am determined to not let it take over my life. My mom will be with me all week from out of town, and then on Saturday I will go back with her to spend Thanksgiving with family. We all need something to look forward to! I like the idea of getting out and walking, although I tried that last time and my lip swelled up and my eye twitched a lot due to the cold air. Still, I'm determined to be more active this time, and to take my anti-nausea drugs ahead of the nausea, lol. I haven't been nauseous in years so I couldn't even identify it when it came. It's all about attitude going in, and when you know what to expect it's much more manageable.


I'll be in the chair for an oxaliplatin infusion as well. It will be my sixth, and final, one.


I hope you celebrate!

Re: NEW-Need some positivity here.

Posted: Mon Nov 13, 2017 6:38 am
by Aqx99
teacher2017 wrote:
Aqx99 wrote:
heiders33 wrote:I have had one cycle so far and found it emotionally draining as well. I was fatigued and nauseous and napped a lot. Mentally I felt like I was never going to get out of the fog I was in. But I did! Now I am gearing up for my next Oxi infusion tomorrow and am determined to not let it take over my life. My mom will be with me all week from out of town, and then on Saturday I will go back with her to spend Thanksgiving with family. We all need something to look forward to! I like the idea of getting out and walking, although I tried that last time and my lip swelled up and my eye twitched a lot due to the cold air. Still, I'm determined to be more active this time, and to take my anti-nausea drugs ahead of the nausea, lol. I haven't been nauseous in years so I couldn't even identify it when it came. It's all about attitude going in, and when you know what to expect it's much more manageable.


I'll be in the chair for an oxaliplatin infusion as well. It will be my sixth, and final, one.


I hope you celebrate!


My neighbor and her son are going to come pick me up. He wants to see me ring the bell. The real celebration will be in 2 weeks when I take my last chemo pill.

Re: NEW-Need some positivity here.

Posted: Wed Nov 15, 2017 7:32 pm
by teacher2017
I can't wait to be done with treatments. But I already fear the scans and colonoscopy that have to happen. They never saw my whole colon due to the mass in my sigmoid. Every now and then I feel a pain on my right side. I see the ports advantage but hate it all the same. I have decided to remove myself on the Facebook group pages on colon cancer because I can't read the reoccurence cases and sad stories right now. It only makes me worry and my heart rate rises. This is the only site I will stay on for now. I believe in mind over matter. And my brain needs a rest. I hope one day this won't be in the front of my brain every time I wake.

Re: NEW-Need some positivity here.

Posted: Wed Nov 15, 2017 7:41 pm
by Robino1
teacher2017 wrote:I can't wait to be done with treatments. But I already fear the scans and colonoscopy that have to happen. They never saw my whole colon due to the mass in my sigmoid. Every now and then I feel a pain on my right side. I see the ports advantage but hate it all the same. I have decided to remove myself on the Facebook group pages on colon cancer because I can't read the reoccurence cases and sad stories right now. It only makes me worry and my heart rate rises. This is the only site I will stay on for now. I believe in mind over matter. And my brain needs a rest. I hope one day this won't be in the front of my brain every time I wake.


It will get easier. {{{ Hugs }}}

I haven't even looked at Facebook groups. Just going by what I've read here, they really aren't the best places to be. I need positive vibes. I really cannot handle the negative ones. I plan on being a statistic that is in the survival column. :D

Re: NEW-Need some positivity here.

Posted: Sat Nov 18, 2017 8:40 am
by teacher2017
Robino1 wrote:
teacher2017 wrote:I can't wait to be done with treatments. But I already fear the scans and colonoscopy that have to happen. They never saw my whole colon due to the mass in my sigmoid. Every now and then I feel a pain on my right side. I see the ports advantage but hate it all the same. I have decided to remove myself on the Facebook group pages on colon cancer because I can't read the reoccurence cases and sad stories right now. It only makes me worry and my heart rate rises. This is the only site I will stay on for now. I believe in mind over matter. And my brain needs a rest. I hope one day this won't be in the front of my brain every time I wake.


It will get easier. {{{ Hugs }}}

I haven't even looked at Facebook groups. Just going by what I've read here, they really aren't the best places to be. I need positive vibes. I really cannot handle the negative ones. I plan on being a statistic that is in the survival column. :D


Me too. Attitude is everything. What ifs don't help. Hang in there. We've got this. Others survive this. Why can't we?

Re: NEW-Need some positivity here.

Posted: Sat Nov 18, 2017 7:12 pm
by Robino1
Exactly!!! :D

Re: NEW-Need some positivity here.

Posted: Sat Nov 18, 2017 7:16 pm
by Achilles Torn
Just my 2 cents but the private Facebook group 'Colontown' and the associated neighborhoods for Trial's and Stage 4 patients have been a great resource for knowledge and support. There is a few sad stories, but many more inspirational ones.

Re: NEW-Need some positivity here.

Posted: Sat Nov 18, 2017 7:37 pm
by Robino1
I'll check it out when I get back home. Thanks!! :)

Re: NEW-Need some positivity here.

Posted: Tue Nov 21, 2017 3:05 pm
by teacher2017
Made the absolute mistake of reading some reports on the cancer centers app. Though my ctscan of my chest was clear, it still notes some nodules but at .2 and .3 levels. Should I be worried??? I am alittle freaked out. But these days it happens easily and frequently.

Re: NEW-Need some positivity here.

Posted: Tue Nov 21, 2017 4:06 pm
by juliej
teacher2017 wrote:Made the absolute mistake of reading some reports on the cancer centers app. Though my ctscan of my chest was clear, it still notes some nodules but at .2 and .3 levels. Should I be worried??? I am alittle freaked out. But these days it happens easily and frequently.

Over 90% of pulmonary nodules that are smaller than two centimeters in diameter are benign. The fact is we all have a lot of junk in our lungs that we'd never know about if it wasn't for CT scans. A long ago infection in the lungs, inflammation, fungus from gardening -- there are a ton of things that can cause a benign nodule. The main thing is to see if it changes size, shape, or appearance. If it isn't changing, odds are it's nothing. You can always check with your onc if you need reassurance from a professional.

Try not to be freaked out. Easier said than done, I know! :D

F*ck cancer. You got this! Back to your regularly scheduled programming! :D

Re: NEW-Need some positivity here.

Posted: Tue Nov 21, 2017 4:40 pm
by susie0915
juliej wrote:
teacher2017 wrote:Made the absolute mistake of reading some reports on the cancer centers app. Though my ctscan of my chest was clear, it still notes some nodules but at .2 and .3 levels. Should I be worried??? I am alittle freaked out. But these days it happens easily and frequently.

Over 90% of pulmonary nodules that are smaller than two centimeters in diameter are benign. The fact is we all have a lot of junk in our lungs that we'd never know about if it wasn't for CT scans. A long ago infection in the lungs, inflammation, fungus from gardening -- there are a ton of things that can cause a benign nodule. The main thing is to see if it changes size, shape, or appearance. If it isn't changing, odds are it's nothing. You can always check with your onc if you need reassurance from a professional.

Try not to be freaked out. Easier said than done, I know! :D

F*ck cancer. You got this! Back to your regularly scheduled programming! :D

I have a 4mm lung nodule just being monitored, that hasn't changed. Will have another scan in January. I'm sure if the doctors were concerned they would've mentioned it. There are nodules that the radiologist can determine is most likely cancer by appearance. Other than that, most likely will watch if they are tiny and if there are no changes or disappear in two years will determine it benign. Until the nodule is around 8mm biopsy can't be done or will a pet scan pick it up. Try not to worry. I know it's hard, my oncologist and the pulmonologist believe my nodule is related to the scarring and inflammation in my lungs and not cancer, but will keep monitoring to be sure there are no changes. You will probably have a scan after you complete chemo, and results will be compared to the last scan. I just focus on the fact the my scan says no evidence of disease.

Re: NEW-Need some positivity here.

Posted: Tue Nov 21, 2017 5:11 pm
by justin case
teacher2017 wrote:Made the absolute mistake of reading some reports on the cancer centers app. Though my ctscan of my chest was clear, it still notes some nodules but at .2 and .3 levels. Should I be worried??? I am alittle freaked out. But these days it happens easily and frequently.

All through, Radiation, Chemo, and surgery, I had a 6 mm. Node.in my lungs. It never took up anything on a PET scan. I still live with it 6 years out .

Re: NEW-Need some positivity here.

Posted: Thu Nov 23, 2017 9:26 pm
by teacher2017
Anyone have to take something to calm down before chemo treatments? I was fine last time. But today all I do is cry. Thanksgiving was hard. Trying not to think it's my last thanksgiving memory. Just wondering if this yo-yo feeling stops.

Re: NEW-Need some positivity here.

Posted: Thu Nov 23, 2017 9:43 pm
by Aqx99
teacher2017 wrote:Anyone have to take something to calm down before chemo treatments? I was fine last time. But today all I do is cry. Thanksgiving was hard. Trying not to think it's my last thanksgiving memory. Just wondering if this yo-yo feeling stops.


I have not personally, though I am about to need something if they delay my treatment again. Monday will be my third attempt at getting cycle #6 started. You can ask them for something. Most likely you will get Ativan or something like that. They do it all the time.

Re: NEW-Need some positivity here.

Posted: Fri Nov 24, 2017 8:28 am
by Robino1
I've come to the realization that these memories that I am making are not for myself but for my loved ones. I don't plan on dying anytime soon but someday I will. Whether it be cancer or something else. I won't be alive to remember these memories.

I'm making the best memories for my family and friends. I hope they will remember me as a strong fighter determined to beat this. I hope to give them memories of me enjoying their company, playing with the kids, loving on the little babies, lots of love and hugs....many hugs.

Laughter, smiles and love. Those are the memories I want to leave them.