teacher2017 wrote:Chemo #2 done! Disconnect is beautiful. I had to have benedryl after the oxi- numb lips and bit of tongue. Otherwise, some first bite, chemo headache and some cold sensitivity. I'm sure I'll be asleep all day tomorrow. I feel so sad during chemo and at disconnect so free. It such a roller coaster ride.
teacher2017 wrote:...I'm actually considering writing a comical book for cancer patients about the stupid things people say to you...
DonutHead wrote:hang in there!
my oncologist took me off the oxaliplatin. cancelled all of my remaining treatments. with 3 cycles in, he said it was enough given the toxicity and that it was not worth risking long term side effects. he then said it was really a plus for me and not necessary....so why give it to me?!
i am still experiencing numbness in my arms from the shoulders down and rubbery legs. my balance is slowly returning and equalibrium is coming back. couldn’t walk for a few days and cold sensitivities linger. when i lost control of my jaws and speech, i was done. it was causing too much damage and i hope i get back to some sense of normalcy...this is 11 days following my last IV.
so now i am on just 2000mg xeloda per day. the onc wants it upped to 4000mg daily, but the nausea and fatigue i experience now is nearly unbearable. i am amazed how these drugs are effecting me. told the doctor i was ready to quit and would rather live with some quality of life and take my chances than suffer under the effects of these drugs for another 4 months.
i have an extremely high pain tolerance and have been through alot in my life, but the chemo is worse than anything i have ever
experienced. the onc said this was just an insurance policy and that he was convinced i was and would remain NED, but needed to push through with the treatment and be done with it.
so will press on, but this is torture...
heiders33 wrote:I think I've started having some diarrhea -- waves of pain in the intestine in the mornings usually followed by some liquid output. I assume that it's diarrhea? So hard to tell with the ileostomy. I'm going to mention it to my onc tomorrow. It's been pretty regular in the mornings in the last week before I eat, and has happened a couple other times as well.
heiders33 wrote:I think I've started having some diarrhea -- waves of pain in the intestine in the mornings usually followed by some liquid output. I assume that it's diarrhea? So hard to tell with the ileostomy. I'm going to mention it to my onc tomorrow. It's been pretty regular in the mornings in the last week before I eat, and has happened a couple other times as well.
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