NEW-Need some positivity here.

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teacher2017
Posts: 119
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Sun Nov 12, 2017 9:27 pm

Aqx99 wrote:
heiders33 wrote:I have had one cycle so far and found it emotionally draining as well. I was fatigued and nauseous and napped a lot. Mentally I felt like I was never going to get out of the fog I was in. But I did! Now I am gearing up for my next Oxi infusion tomorrow and am determined to not let it take over my life. My mom will be with me all week from out of town, and then on Saturday I will go back with her to spend Thanksgiving with family. We all need something to look forward to! I like the idea of getting out and walking, although I tried that last time and my lip swelled up and my eye twitched a lot due to the cold air. Still, I'm determined to be more active this time, and to take my anti-nausea drugs ahead of the nausea, lol. I haven't been nauseous in years so I couldn't even identify it when it came. It's all about attitude going in, and when you know what to expect it's much more manageable.


I'll be in the chair for an oxaliplatin infusion as well. It will be my sixth, and final, one.


I hope you celebrate!
48 year old female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection Sept 22 2017
6.1cm tumor size
chemo -folfox 11/8 started
CEA level- 1.4 11/8
Hoping clean up chemo works!

Aqx99
Posts: 239
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: NEW-Need some positivity here.

Postby Aqx99 » Mon Nov 13, 2017 6:38 am

teacher2017 wrote:
Aqx99 wrote:
heiders33 wrote:I have had one cycle so far and found it emotionally draining as well. I was fatigued and nauseous and napped a lot. Mentally I felt like I was never going to get out of the fog I was in. But I did! Now I am gearing up for my next Oxi infusion tomorrow and am determined to not let it take over my life. My mom will be with me all week from out of town, and then on Saturday I will go back with her to spend Thanksgiving with family. We all need something to look forward to! I like the idea of getting out and walking, although I tried that last time and my lip swelled up and my eye twitched a lot due to the cold air. Still, I'm determined to be more active this time, and to take my anti-nausea drugs ahead of the nausea, lol. I haven't been nauseous in years so I couldn't even identify it when it came. It's all about attitude going in, and when you know what to expect it's much more manageable.


I'll be in the chair for an oxaliplatin infusion as well. It will be my sixth, and final, one.


I hope you celebrate!


My neighbor and her son are going to come pick me up. He wants to see me ring the bell. The real celebration will be in 2 weeks when I take my last chemo pill.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
Diagnosed at age 39
2/21/17 Diagnosis
2/21/17 CEA 0.9 ng/mL
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR with temp loop ileostomy, ovaries and fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 Started CapeOx, 6 Cycles
7/24/17 Diagnosed with precursor ovarian cancer
9/6/17 CA 125 11.1 U/mL
1/18ish Reversal

teacher2017
Posts: 119
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Wed Nov 15, 2017 7:32 pm

I can't wait to be done with treatments. But I already fear the scans and colonoscopy that have to happen. They never saw my whole colon due to the mass in my sigmoid. Every now and then I feel a pain on my right side. I see the ports advantage but hate it all the same. I have decided to remove myself on the Facebook group pages on colon cancer because I can't read the reoccurence cases and sad stories right now. It only makes me worry and my heart rate rises. This is the only site I will stay on for now. I believe in mind over matter. And my brain needs a rest. I hope one day this won't be in the front of my brain every time I wake.
48 year old female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection Sept 22 2017
6.1cm tumor size
chemo -folfox 11/8 started
CEA level- 1.4 11/8
Hoping clean up chemo works!

Robino1
Posts: 172
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: NEW-Need some positivity here.

Postby Robino1 » Wed Nov 15, 2017 7:41 pm

teacher2017 wrote:I can't wait to be done with treatments. But I already fear the scans and colonoscopy that have to happen. They never saw my whole colon due to the mass in my sigmoid. Every now and then I feel a pain on my right side. I see the ports advantage but hate it all the same. I have decided to remove myself on the Facebook group pages on colon cancer because I can't read the reoccurence cases and sad stories right now. It only makes me worry and my heart rate rises. This is the only site I will stay on for now. I believe in mind over matter. And my brain needs a rest. I hope one day this won't be in the front of my brain every time I wake.


It will get easier. {{{ Hugs }}}

I haven't even looked at Facebook groups. Just going by what I've read here, they really aren't the best places to be. I need positive vibes. I really cannot handle the negative ones. I plan on being a statistic that is in the survival column. :D
At 54 2014 1st colonoscopy colon cancer detected.
Colon resect right ascending
margins clear. No chemo req
2017
Distended abd, pain in intestines.
CT scan shows seeding
Ascites causing the distention.
Lap diag - cancer on the omentum
CEA 217
CEA 219
PET cancer on the omentum, susp activ right abdomen
FOLFOX started 6/17
CEA 202
Not genetic
8/29/17 CT scan showed excellent melting of the tumor. Chemo is working!
Ascites is gone
CEA: 9/30/17 -109; 10/12/17 - 99.1; 11/4/17 - 90.7

teacher2017
Posts: 119
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Sat Nov 18, 2017 8:40 am

Robino1 wrote:
teacher2017 wrote:I can't wait to be done with treatments. But I already fear the scans and colonoscopy that have to happen. They never saw my whole colon due to the mass in my sigmoid. Every now and then I feel a pain on my right side. I see the ports advantage but hate it all the same. I have decided to remove myself on the Facebook group pages on colon cancer because I can't read the reoccurence cases and sad stories right now. It only makes me worry and my heart rate rises. This is the only site I will stay on for now. I believe in mind over matter. And my brain needs a rest. I hope one day this won't be in the front of my brain every time I wake.


It will get easier. {{{ Hugs }}}

I haven't even looked at Facebook groups. Just going by what I've read here, they really aren't the best places to be. I need positive vibes. I really cannot handle the negative ones. I plan on being a statistic that is in the survival column. :D


Me too. Attitude is everything. What ifs don't help. Hang in there. We've got this. Others survive this. Why can't we?
48 year old female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection Sept 22 2017
6.1cm tumor size
chemo -folfox 11/8 started
CEA level- 1.4 11/8
Hoping clean up chemo works!

Robino1
Posts: 172
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: NEW-Need some positivity here.

Postby Robino1 » Sat Nov 18, 2017 7:12 pm

Exactly!!! :D
At 54 2014 1st colonoscopy colon cancer detected.
Colon resect right ascending
margins clear. No chemo req
2017
Distended abd, pain in intestines.
CT scan shows seeding
Ascites causing the distention.
Lap diag - cancer on the omentum
CEA 217
CEA 219
PET cancer on the omentum, susp activ right abdomen
FOLFOX started 6/17
CEA 202
Not genetic
8/29/17 CT scan showed excellent melting of the tumor. Chemo is working!
Ascites is gone
CEA: 9/30/17 -109; 10/12/17 - 99.1; 11/4/17 - 90.7

Achilles Torn
Posts: 87
Joined: Fri Dec 16, 2016 2:41 pm

Re: NEW-Need some positivity here.

Postby Achilles Torn » Sat Nov 18, 2017 7:16 pm

Just my 2 cents but the private Facebook group 'Colontown' and the associated neighborhoods for Trial's and Stage 4 patients have been a great resource for knowledge and support. There is a few sad stories, but many more inspirational ones.
40 yo Male. BC Canada. Sigmoid Colectomy Dec. 2016
Pathology T3N2bM1 19 of 24 Nodes Positive + tumour deposits
PET scan - Para-Aortic and Iliac Lymph node spread. Stage VI.
Moderately differentiated. MSS. KRAS/BRAF Wild.
Mutations: TP53, ERBB4, MLL3, PDCD1LG2, PRKDC, SMAD3
FOLFOX Commenced Jan 9/2017 - Avastin(Bev) added after round 1.
June 2017 Dose Reduction on Round 11 due to Neuropathy.
Good PET Scan July 2017 - on maintenance 5FU/Bev every 2 weeks until progression.

Robino1
Posts: 172
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: NEW-Need some positivity here.

Postby Robino1 » Sat Nov 18, 2017 7:37 pm

I'll check it out when I get back home. Thanks!! :)
At 54 2014 1st colonoscopy colon cancer detected.
Colon resect right ascending
margins clear. No chemo req
2017
Distended abd, pain in intestines.
CT scan shows seeding
Ascites causing the distention.
Lap diag - cancer on the omentum
CEA 217
CEA 219
PET cancer on the omentum, susp activ right abdomen
FOLFOX started 6/17
CEA 202
Not genetic
8/29/17 CT scan showed excellent melting of the tumor. Chemo is working!
Ascites is gone
CEA: 9/30/17 -109; 10/12/17 - 99.1; 11/4/17 - 90.7


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