NEW-Need some positivity here.

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Milk Tea
Posts: 29
Joined: Wed Feb 13, 2019 1:14 pm

Re: NEW-Need some positivity here.

Postby Milk Tea » Wed Jun 05, 2019 6:47 pm

I was praying for your scan to be clean and clear. So happy to know this. Thank you for sharing your good news with us.
Wife to DH
09/2016: Dx at 50, CC Ascending colon, 10+ liver Mets
KRAS-Mut G12V, MSS, CEA 8
09/2016: Nearly blocked, Emergency colon surgery (LAR)
FOLFOXIRI+Avastin: 6 before and 6 after liver resection
01/2017: Liver resection, open, both lobes, 40% total liver cut, tumors either cut out or microwave ablation burn, all tumors are out
02/2017-01/2019 : Clean CT every 3-4 months, CEA between 2-3
06/2017-Present: Maintenance Chemo: Xeloda + Avastin

margiej
Posts: 87
Joined: Sat Apr 14, 2018 8:46 am

Re: NEW-Need some positivity here.

Postby margiej » Wed Jun 05, 2019 7:25 pm

Fantastic news!
Dx CC 12/2015, age 57 at Dx
Stage IIIb: T3N1b
Adenocarcinoma, sigmoid colon, 2.5 cm - low grade, moderately differentiated
3/6 positive lymph nodes
laparoscopic colectomy 1/20/2016
Capox started 3/4/16 - Six rounds
CT-suspicious lymph 2/22/16
PET scan 2/24/16 clear
CT 6/8/16 clear
Clear Colonoscopy 3/17
CT 10/3/17 clear
CT 10/17/18 clear
CEA 12/17 1.7
5/16 3.8
7/16 1.9
3/17 1.3
10/17 1.2
4/18 1.6
11/18 1.2

DonutHead
Posts: 60
Joined: Tue Oct 03, 2017 6:45 pm
Facebook Username: mark

Re: NEW-Need some positivity here.

Postby DonutHead » Thu Jun 06, 2019 2:13 am

So happy for you! Take a deep breath and LIVE! Fantastic news, made my day!
Male 49 yrs.
09/2017: Colonoscopy 2.2x2 cm lesion - Invasive Adenocarcinoma
- CT - slightly enlarged LN; CEA 2.0
- LAP Rectosigmoid - 8' and 25 LNs removed
- Biopsy - 1/25 LN slight molecular invasion
- Stage IIIa - T3 N1 M0
- Chemo: 3 of 8 rds Ox; 8 rds 4000mg Xeloda
10/2017: PET - NED
03/2018: PET/CT - NED
09/2018: PET/CT - NED
03/2019: CT - NED
Still Here!

Caat55
Posts: 671
Joined: Sat Dec 23, 2017 6:01 pm

Re: NEW-Need some positivity here.

Postby Caat55 » Fri Jun 07, 2019 5:08 pm

Yippee, wahoo, good for you!
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

User avatar
CRguy
Posts: 9974
Joined: Sun Feb 10, 2008 6:00 pm

Re: NEW-Need some positivity here.

Postby CRguy » Sat Jun 08, 2019 6:40 pm

teacher2017 wrote:All clear!!!! All clear!!! BOOYAH!!! Woop Woop! So happy! I’m so sick of worrying! Now for a colonoscopy...going to try and live my life. I will always keep you posted. And I wish you all NED!!!!


and may the NED be with you also !
.... AND the dancing squirrel :mrgreen:

Cheers
CRguy

Image
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

AmyG
Posts: 246
Joined: Tue Dec 25, 2018 8:08 pm

Re: NEW-Need some positivity here.

Postby AmyG » Sat Jun 08, 2019 8:50 pm

teacher2017 wrote:All clear!!!! All clear!!! BOOYAH!!! Woop Woop! So happy! I’m so sick of worrying! Now for a colonoscopy...going to try and live my life. I will always keep you posted. And I wish you all NED!!!!



Oh hot damn! Not sure how I missed this but that's fantastic!!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!!

stu
Posts: 1183
Joined: Sat Aug 17, 2013 5:46 pm

Re: NEW-Need some positivity here.

Postby stu » Sun Jun 09, 2019 3:17 am

The best of news and may many more scans follow just like this one .

Onto even better times .

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

teacher2017
Posts: 252
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Fri Jul 05, 2019 12:38 pm

Colonoscopy on Monday. I have the best miralax prep but I hate the thought of doing this again. The gi dr didn’t want me to do it for another three years until I told him the cancer went to my liver and I had a resection. Then suddenly his smile faded and all willing to do it. I think cancer is mental torture. Stage 4 feels like waiting for the next show to drop. Geez.
48 yo female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection 9/22/17
6.1cm tumor
chemo -folfox 11/8/17-4/18
CEA level- 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea level- 1.8 6/18
Cea level- 2.1. 8/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19!

teacher2017
Posts: 252
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Fri Jul 05, 2019 1:45 pm

teacher2017 wrote:Colonoscopy on Monday. I have the best miralax prep but I hate the thought of doing this again. The gi dr didn’t want me to do it for another three years until I told him the cancer went to my liver and I had a resection. Then suddenly his smile faded and all willing to do it. I think cancer is mental torture. Stage 4 feels like waiting for the next shoe to drop. Geez.
48 yo female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection 9/22/17
6.1cm tumor
chemo -folfox 11/8/17-4/18
CEA level- 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea level- 1.8 6/18
Cea level- 2.1. 8/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19!

stu
Posts: 1183
Joined: Sat Aug 17, 2013 5:46 pm

Re: NEW-Need some positivity here.

Postby stu » Fri Jul 05, 2019 3:07 pm

I used to hate seeing the cloudy look that passed over their faces . It gets replaced over time though .

My husband was working with the surgeon who told her she was a stage 4 patient ten years ago when he was a junior doctor . He was so delighted to hear she was bouncing around .

Have a good weekend ,

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Nate33
Posts: 2
Joined: Mon Jun 24, 2019 7:57 pm

Re: NEW-Need some positivity here.

Postby Nate33 » Wed Jul 10, 2019 7:33 am

Teacher2017, I work in a school district too. I was wondering if you were able to work during your FOLFOX treatments. I started my treatment in the end of June and am trying to figure out what I am going to do in the fall. Congrats on your recent test results. God bless!
47 year old male- father of 2
DX stage T3 N1bM0 Grade 2 (2/15 lymph nodes)
25 cm (9.8”) sigmoid resection May 2019
5.4 cm tumor size
Chemo -Folfox 6/25/19, 7/8/19,
CEA 6/24/19 - 1.7

jep
Posts: 165
Joined: Sun Jun 11, 2017 7:45 pm

Re: NEW-Need some positivity here.

Postby jep » Wed Jul 10, 2019 8:31 pm

Hi Nate33,
My husband is also a teacher and he did work through Folfox....he did have to take a day off every 2 weeks for treatment, but he did it and only had to take a handful of other days off due to symptoms. Of course everyone reacts differently....are you able to get FMLA in place as a back up? His principal suggested that....it’s a nice way to cover any absences without worry....good luck!!
jep
Wife of DH (47) Stage IV CC on 5/16/17
T Loc: recto-sigmoid
T type: Adenocarcinoma
T size: 7.4 cm
T grade: G3
TNM code: T3N2M1
Pos LNs: 8 out of 20
Baseline CEA value: .9
LVI: present
Perineural invasion: present
LAR margins: clear (w/in microns)
Folfox (8/17-1/18)
Scope 6/18 - CLEAR! - 2 polyps removed
PET 10/17/18: 3 pos LNs
Irinotecan + Vectobix (started in 11/18)
CEA: 1.7 (2/19)
Xeloda + radiation (5/19)
Surgery scheduled: 8/21/19 (surgery aborted)

teacher2017
Posts: 252
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Wed Jul 10, 2019 9:07 pm

Nate33 wrote:Teacher2017, I work in a school district too. I was wondering if you were able to work during your FOLFOX treatments. I started my treatment in the end of June and am trying to figure out what I am going to do in the fall. Congrats on your recent test results. God bless!



Nate!

It wasn’t easy because it gets progressively worse on folfox. I did well on it. Had infusion on a Friday and was disconnected on Sunday. Monday I would take off if needed. It made me very tired but there were days I took off that I probably could have gone in and taken the Tuesday instead. Work was very understanding and accommodating. It’s doable. Talk to the principal and calculate how many days you estimate. Once Oxali stops, you feel a lot better. I never went in hooked up. I stayed home and sulked the entire time. You can do this! Keep in touch!
And go kick its ass!
Lydia
48 yo female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection 9/22/17
6.1cm tumor
chemo -folfox 11/8/17-4/18
CEA level- 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea level- 1.8 6/18
Cea level- 2.1. 8/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19!

islander717
Posts: 2
Joined: Mon Jul 15, 2019 9:58 am

Re: NEW-Need some positivity here.

Postby islander717 » Mon Jul 15, 2019 10:04 am

teacher2017 wrote:Ok freaking out. Four days of some bright red blood on the stool and in the bowl. Headed to the gi dr tomorrow. Scared too death. I’m in the middle of chemo. I have #6 on Friday and onc said it may have to stop for a colonoscopy. Could it be the chemo? Lack of water? Something minor?


Question on this teacher2017, what was the outcome from this bloody episode? I just finished my folfox cycle 2 and experienced bleeding as well, no bleeding since the resection until now.
thanks

teacher2017
Posts: 252
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Mon Jul 15, 2019 8:24 pm

islander717 wrote:
teacher2017 wrote:Ok freaking out. Four days of some bright red blood on the stool and in the bowl. Headed to the gi dr tomorrow. Scared too death. I’m in the middle of chemo. I have #6 on Friday and onc said it may have to stop for a colonoscopy. Could it be the chemo? Lack of water? Something minor?


Question on this teacher2017, what was the outcome from this bloody episode? I just finished my folfox cycle 2 and experienced bleeding as well, no bleeding since the resection until now.
thanks


Hi- after speaking with the gi, he said it was most definitely the chemo. He told me to treat it like a very bad hemorrhoid. Very bland food, soups, Metamucil each day, etc. It went away thank goodness. Your body is reacting to the chemo for sure. Tell the dr to be safe. You can do this! This will pass- you will get your life back and you will be okay. Keep saying it. Chemo is strong medicine. Let it do it’s job.

Lydia
48 yo female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection 9/22/17
6.1cm tumor
chemo -folfox 11/8/17-4/18
CEA level- 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea level- 1.8 6/18
Cea level- 2.1. 8/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19!


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