There was a person who was diagnosed stage III, had her port removed soon after finishing treatment. At some point, she had a met. When they put the port back in her, she had problems with scar tissue. Did not work. They finally had to take port out and put it in on the other side. She decided that one was not coming out.
I had to wait 2 yrs after finishing treatment before I could get my port removed. I'm sure it's possible to get the port removed after a certain period of time in NEDville. I was not in a hurry to get mine out. My insurance denied it the first time. Onc was going to have a conversation with my insurance company. FOLFOX was experimental when I started getting it. And ports were not a normal item. I took my first infusion in my left hand and had to carry my 5FU on a pole around with me for those next 2 days. I had to sleep on one side of bed out of fear of pulling the needle out of my hand.
If I was the passenger in the car, I put the shoulder strap behind me when I had my port in. I could not handle it across my neck. The word painful was the only way to describe that strap rubbing again my tube inside my neck
Congratulations on your successful surgery, and may you ALWAYS reside in NEDville.
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
chemo - FOLFOX
NED - 10 years and counting!