GI Surgeon wants chest added back to my ct scan

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DarknessEmbraced
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Location: New Brunswick, Canada

GI Surgeon wants chest added back to my ct scan

Postby DarknessEmbraced » Fri Sep 08, 2017 7:40 pm

My GI surgeon wants chest added back to my yearly ct scans on September 22nd because of the CEA rise. I left a message asking my doctor to add chest back in because my GI surgeon recommended it. I will call Monday to make sure they have added it. I am relieved that they will be checking chest as well.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

Lee
Posts: 5258
Joined: Sun Apr 16, 2006 4:09 pm

Re: GI Surgeon wants chest added back to my ct scan

Postby Lee » Sat Sep 09, 2017 2:29 pm

Good luck with your up coming scans. Praying you are still in NEDville.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

DarknessEmbraced
Posts: 2832
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: GI Surgeon wants chest added back to my ct scan

Postby DarknessEmbraced » Sun Sep 10, 2017 10:17 am

Thank you Lee, I really appreciate that! I hope so too! I broke my little toe while in Toronto and have been taping it. I know there's not much that can be done for it.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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susie0915
Posts: 440
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Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: GI Surgeon wants chest added back to my ct scan

Postby susie0915 » Sun Sep 10, 2017 12:05 pm

I'm praying for positive results in your upcoming scan. Keep us posted. Hugs.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev since
surgery to repair blockage. c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT

DarknessEmbraced
Posts: 2832
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: GI Surgeon wants chest added back to my ct scan

Postby DarknessEmbraced » Sun Sep 10, 2017 12:06 pm

Thank you Susie, I will! I wish that I didn't have to wait until October 5th to find out results.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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susie0915
Posts: 440
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: GI Surgeon wants chest added back to my ct scan

Postby susie0915 » Sun Sep 10, 2017 2:46 pm

I know it's so hard. I have a scan in October also. My scan last April showed a small 4mm nodule. Doctor thinks it's scar tissue but too small to biopsy or do pet scan. So we just have to keep monitoring watching for growth. I had a repeat scan in July and there was no change, which is good. I'll have another in October, and hopefully there will be no change or shrinkage. Again, praying for good results for you. Keep us updated. The worry never ends. It's always in our heads, even though we continue to go about our day as normally as possible. And most days we do pretty well, just sometimes you can't shake it.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev since
surgery to repair blockage. c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT

Lee
Posts: 5258
Joined: Sun Apr 16, 2006 4:09 pm

Re: GI Surgeon wants chest added back to my ct scan

Postby Lee » Sun Sep 10, 2017 3:25 pm

DarknessEmbraced wrote:Thank you Lee, I really appreciate that! I hope so too! I broke my little toe while in Toronto and have been taping it. I know there's not much that can be done for it.


I hate it when I do things like that. Many years ago, I tripped over a barrier at bottom of stairs. New puppy not allow up stairs just yet. Anyway, I tripped, felt a snap, didn't think much of it. Could not walk normal on foot. Few days later, went to see the Dr. I was complaining about the sprained area. Dr was sure it was not broken butt order a x-ray. At x-ray, I could tell they found something and asked. Yes I broke my little toe (hum. . . that must be the snap I felt). Was told to go home, Dr would be calling me. Yep he sure did, wanted to see me now.

I went in, he pressed on that broken spot, though I going through the roof, the PAIN :evil: . He followed up with, "well I'm happy", me I was in tears. We finally determined the way I was walking (thanks to the sprain), little toe had no pressure, thus no pain.

Two weeks later, when sprain was going away, I sure found the broken spot on my toe every time I stepped on it. Best advice I can give you, wear quality comfortable shoes. They did not tape my toe, just get quality shoes to wear from awhile.

I feel your pain, hope it gets better soon.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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Cowgirl918
Posts: 319
Joined: Sun Jan 17, 2016 12:55 am
Location: Indiana

Re: GI Surgeon wants chest added back to my ct scan

Postby Cowgirl918 » Sun Sep 10, 2017 3:31 pm

Here's praying for a good scan and some patience for the long wait. I always hate the waiting more than the tests etc. Hang in there girl!
HX Colon Polyps Villious and Tubillovillous
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80% removed
5/29/2016 Compressed lumbar spinal fracture (riding accident)
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
10/18/16 Autoimmune Diseases confirmed

DarknessEmbraced
Posts: 2832
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Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: GI Surgeon wants chest added back to my ct scan

Postby DarknessEmbraced » Sun Sep 10, 2017 8:47 pm

Susie,


I hope that your scans show no change!*hugs*

Lee,


That sounds very painful!*hugs* I wear sneakers when out. If I don't tape my toe it hurts much more in the show. The bottom part of my foot in back of my toes is swollen toe.


Cowgirl,

Yes the waiting is very hard! September 22nd isn't too far away but October 5th seems far away.



Thanks Susie, Lee and Cowgirl!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

JJH
Posts: 164
Joined: Mon Apr 24, 2017 7:26 am
Location: Europe

Re: GI Surgeon wants chest added back to my ct scan

Postby JJH » Sun Sep 10, 2017 11:32 pm

DarknessEmbraced wrote:I found out why my ct scans were moved up and it has nothing to do with scheduling. It's because my CEA(tumor marker) is 46. Before surgery in 2014 it was below 1 and it has always been below 1 up until now. I get my ct scan on September 22nd and see the doctor for follow up on October 5th. From everything I'm reading normal CEA is below 5.

Have you scheduled a re-test of your CEA yet? I think it would be good to have another measurement before October 5 so that your doctor can have complete and up-to-date information on your current CEA level.
DX 2012: Stage IIc
Locations: upper-rectum T4b + mid-sigmoid T4b
Surgery: Open LAR + temp ileo
TX: chemo/rad (28 days) + Xelox (3 cycles)
Ileo reversal
5 years surveillance
7/3/2017: Final 5-year report -
"complete remission ... cured'

DarknessEmbraced
Posts: 2832
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: GI Surgeon wants chest added back to my ct scan

Postby DarknessEmbraced » Mon Sep 11, 2017 3:50 pm

My CEA checks are scheduled at the hospital. The next one is scheduled for November. I'm seeing the doctor filling in for my family doctor.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

JJH
Posts: 164
Joined: Mon Apr 24, 2017 7:26 am
Location: Europe

Re: GI Surgeon wants chest added back to my ct scan

Postby JJH » Mon Sep 11, 2017 7:09 pm

DarknessEmbraced wrote:My CEA checks are scheduled at the hospital. The next one is scheduled for November. I'm seeing the doctor filling in for my family doctor.

I still think you should have your CEA re-tested before they do the CT scan. Is there any way you can get one of your doctors to order the re-test now?

Or could you contact Horizon Healh Network to see if they could arrange a re-test for you?
http://en.horizonnb.ca/facilities-and-services/services/diagnostics-and-testing/blood-and-specimen-collection.aspx
DX 2012: Stage IIc
Locations: upper-rectum T4b + mid-sigmoid T4b
Surgery: Open LAR + temp ileo
TX: chemo/rad (28 days) + Xelox (3 cycles)
Ileo reversal
5 years surveillance
7/3/2017: Final 5-year report -
"complete remission ... cured'

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CRguy
Posts: 9286
Joined: Sun Feb 10, 2008 6:00 pm

Re: GI Surgeon wants chest added back to my ct scan

Postby CRguy » Mon Sep 11, 2017 11:04 pm

JJH wrote:
DarknessEmbraced wrote:My CEA checks are scheduled at the hospital. The next one is scheduled for November. I'm seeing the doctor filling in for my family doctor.

I still think you should have your CEA re-tested before they do the CT scan. Is there any way you can get one of your doctors to order the re-test now?

Or could you contact Horizon Healh Network to see if they could arrange a re-test for you?
http://en.horizonnb.ca/facilities-and-services/services/diagnostics-and-testing/blood-and-specimen-collection.aspx


According to their own terms and conditions :
http://en.horizonnb.ca/facilities-and-s ... ction.aspx

NOTE: We can only accept test orders from doctors or health care providers who have privileges with the New Brunswick College of Physicians.
SO it would appear this needs to be ordered through the normal chain of command anyway ... JMO

I also query : why do another marker test when a CT imaging is on order ??????

CEA can be notoriously "over" interpretted and "under" reliable.
Get the proper imaging into the hands of the specialists who need to SEE what is going on, so they can plan the PLAN !
I believe C-A-P CT scans are warranted for CRC follow ups ... UNTIL proven otherwise for each individual case.

JMO ..... BTDT....

Best wishes DE
On the Journey with you
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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LeonW
Posts: 306
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: GI Surgeon wants chest added back to my ct scan

Postby LeonW » Tue Sep 12, 2017 6:51 am

CR, what does C-A-P stand for?
CRguy wrote:I believe C-A-P CT scans are warranted for CRC follow ups ... UNTIL proven otherwise
Dec 2012 - Dx CC; MM @ 65yrs, 2 unresect liver mets, CEA 41.8
Jan 2013 - colectomy @ spleen (IVa T3N1bM1a) 2/26 nodes, MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, mets shrink from #3
Sept - nuclear liver scan, 2x failed Portal Vein embolization
Oct 2013 - R liver resect 28 hosp days (liver failure, bad delirium, emboli, encephalopathy) all cancer gone, pCR
2014/15 - recovery; benign polyp Apr '15
Apr 2016 - new house/town/life
clean CTs and 1.3/1.4 CEAs: 4x2014, 4x2015/16, May2017, next Nov 2017

DarknessEmbraced
Posts: 2832
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: GI Surgeon wants chest added back to my ct scan

Postby DarknessEmbraced » Tue Sep 12, 2017 11:30 am

My doctor won't retest now. Everything has to go through my doctors. I can't call the hospital and get tests. The doctor sends the requisition form to the hospital and they send me a letter in the mail with the appointment date and time. Chest, abdominal, pelvis.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17


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