HI,
Just wanted to share a snapshot of my medical journey with Stage IV Colon CA with liver mets and now we are seeing something in my lungs; maybe others are experiencing some of the same? My main side effects from meds so far, which have been bearable, include constipation, some blood in stools, very dry skin, hair loss over time, and neuropathy. Oh yes and a little bone pain from Neulasta...not constant. Thanks to the good Lord!
4/16-Diagnosed with Sigmoid CC/Stage 4 --Oncology says chemo NOW to shrink (~10+ liver) tumors vs remove the main tumor in the sigmoid which would set me back ~6 weeks for needed chemo
4/16-6/16-Insurance Issues--go-figure--almost 2 mos. late to start my treatments!
6/16- Started on FOLFOX, Avastin, Oxaliplatin x18 treatments-Oxaliplatin stopped at ~8 txs due to neuropathy in fingers and feet
11/16- Night and Day on PET Scan and CT-tumors shrank ~no new tumor, however, what I have is unresectable due to so many and no clear margins??s
12/16--PET/CT-Mets improved YAY!
2/17--PET/CT-Mets progression
3/17- New 2nd line Chemo-FOLFIRI + Erbitux; very dry skin, small nose bleeds, some blood in stools from dry skin in anal area;
5/17-PET/CT-increase in pulmonary nodules now
7/17-Erbitux stopped due to severe facial rash grade 3
8/17-Significant progression of liver mets volume--back to Initial Chemotherapy (was it something I ate?? also took Prednisone and ABX for grade 3 Erbitux for several days)
WHAT ELSE CAN I DO? DR. SAYS I WOULD GET REALLY SICK IF I HAD RADIATION OR OTHER MODALITIES. ( I am ok with my quality of life now) ONLY ONE MORE RX IF THIS DOESN'T KEEP HELPING-PILLS MAINLY AT HOME. Still tweaking my diet though I have indulged here and there with sweets and starches.
12/15-Off the Initial Therapy; Chemo Break; tumors are larger in the liver and now 2 in lung larger; may start Stivarga this month 1/8