Relief!

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JennPixie
Posts: 39
Joined: Tue Aug 08, 2017 8:53 am
Location: Peach State

Relief!

Postby JennPixie » Sun Sep 03, 2017 8:32 am

Went and got the results from my last PET scan, and was told
"There is no sign of any disease on your scan..."

I was so excited and happy, I could have danced a jig on the spot!
Even better, I called my mom to tell her, and I could practically feel the tension pouring out of her!
Like she had been holding her breath, waiting, and she could finally breathe again.
The sound of her voice nearly made me cry... she sounded even more delighted and relieved than me, LOL!




It was a good day 8)
I like those. :mrgreen:
F, 44y/o
Colon cancer, ascending colon
Stage 4
NTN: T4N1M1
Colostomy, reversal, loop illeostomy

Started FOLFOX Feb. 14th...

A work in progress...
...Aren't we all.?.
8)
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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Relief!

Postby Robino1 » Sun Sep 03, 2017 9:13 am

The greatest news we would all like to hear.

I'm so happy for you!!!

CONGRATULATIONS! :D
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e
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NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Relief!

Postby NHMike » Sun Sep 03, 2017 9:45 am

Helllllooooooo NED!

Fantastic news.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT
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Basil
Posts: 275
Joined: Thu Mar 16, 2017 12:33 pm

Re: Relief!

Postby Basil » Sun Sep 03, 2017 9:52 am

Congrats! Best news you can get!
40 y/o male (now 46), kids 11 & 14.
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear
2 year scans - clear
3 year scans - clear
4 year scans - clear
5 year scans - clear (considered cured)
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JennPixie
Posts: 39
Joined: Tue Aug 08, 2017 8:53 am
Location: Peach State

Re: Relief!

Postby JennPixie » Sun Sep 03, 2017 10:52 am

Aww, thanks :)
Now I can get the ball rolling on reversal, and settle into my scan-every-3-months schedule.

Sometimes it's surprising how much tension and anxiety you don't even realize you're holding on to, until you get a good report. I felt so much lighter when I got that result.
F, 44y/o
Colon cancer, ascending colon
Stage 4
NTN: T4N1M1
Colostomy, reversal, loop illeostomy

Started FOLFOX Feb. 14th...

A work in progress...
...Aren't we all.?.
8)
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orlar
Posts: 65
Joined: Fri Jul 21, 2017 12:51 am
Location: oregon

Re: Relief!

Postby orlar » Sun Sep 03, 2017 12:06 pm

It's so encouraging to hear good news. I did my happy dance for you!
56yo male DX 5/17, Right Hemi colectomy 6/17
Stage 3c 12 of 21 LN
7/17-12/17 Folfox(no Oxi round 9-12)
12/17 liver/lung mets-Stage 4 MSS KRAS G13D
2/18 liver doubled to 8.5cm+new met, lung mets to 1.4cm, multi peri/omen
2/18-7/18 Folfiri+Avastin(no 5FU after C2)
4/18 mets shrinking
7/18 liver/lung mets growing, Folfiri stopped
10/18 In Clinical Trial
CEA 5/17-16.2, 12/17-16.1, 02/18-43.0, 3/18-16.9, 4/18-9.0, 5/18-5.5, 6/18-6.9, 7/18-7.8, 9/18-56
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SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

Re: Relief!

Postby SweetC80 » Sun Sep 03, 2017 2:27 pm

Fantastic news :D
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully
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Chickspeed
Posts: 43
Joined: Sat Jun 17, 2017 5:16 am

Re: Relief!

Postby Chickspeed » Sun Sep 03, 2017 2:46 pm

That is very good to hear.

Thank you for sharing, I get choked up a little when I read stuff like this
12/15/2016 Mod Diff tumour 5-6 cm 10-12 cm fr AV T3 tumour cea 1.4
12/29/2016 CT no spread ln normal
1/19/2017 MRI confirms mass and shows 3 enlarged LN (suspected to be infection draining)
3/6/2017 25 sessions chemoradiation
6/20/2017 LAR with temp loop ileo
7/10/2017 Path 20mm margins tumour 0.1 CM with microscopic invasion of submucosa
aug-dec 2017 6 rnds xeloda
1/9/2018 CT all clear
1/18/2018 Colonoscopy clear
3/27/2018 ileo reversal
CEA continues to be normal
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susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Relief!

Postby susie0915 » Sun Sep 03, 2017 3:15 pm

So happy for your news. Have you scheduled your reversal?
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5
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Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Relief!

Postby Shana » Sun Sep 03, 2017 8:34 pm

Congratulations! I love hearing this awesome news!

It is inspiring and brings joy to the heart :D
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...
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JennPixie
Posts: 39
Joined: Tue Aug 08, 2017 8:53 am
Location: Peach State

Re: Relief!

Postby JennPixie » Mon Sep 04, 2017 7:51 am

Aww, y'all are so sweet! Thanks for the good vibes. 8)
Like hugs from the screen.
Now I wanna see more "relief" threads/posts! (I know, I gotta look around a bit, I'm sure there are some, yeah.?.)

susie0915 wrote:So happy for your news. Have you scheduled your reversal?

Ah, not just yet! The surgeon that did my first surgery wasn't available while we were there, so we're gonna try calling Tuesday or Wednesday, to see when we can get all that going.
We want to see if we can get her again because she did amazing work on me, and (though I don't remember meeting her) she was also really nice to my MIL and my husband.
F, 44y/o
Colon cancer, ascending colon
Stage 4
NTN: T4N1M1
Colostomy, reversal, loop illeostomy

Started FOLFOX Feb. 14th...

A work in progress...
...Aren't we all.?.
8)
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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Relief!

Postby DarknessEmbraced » Wed Sep 06, 2017 2:45 pm

Wonderful news! Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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