Positive News

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Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Positive News

Postby Shana » Sat Sep 02, 2017 4:08 pm

I had a CT scan Friday morning, my last one was three months ago before surgery. My oncologist called me in the afternoon to share the good news so I wouldn't have to wait until next Tuesday for results.

Liver mets have shrunk by a cm or so and the blockage is no longer there so all indications are that the Irinotecan and Erbitux regimen are working! I've only had 4 treatments at half dose so far. I'm hopeful that the next CT will show more shrinkage as treatment continues. It's been hard to stay positive after a rough start this year with Folfox. I know that it's a very long road ahead, I've read so many stories from other board members. All of them are inspiring, some I want to cheer and some bring a tear to my eyes.

I hope everyone has a great weekend!
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

Lee
Posts: 6034
Joined: Sun Apr 16, 2006 4:09 pm

Re: Positive News

Postby Lee » Sat Sep 02, 2017 4:17 pm

CONGRATULATION :D

Shrinkage is ALWAYS good news. Keep it up,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Positive News

Postby Maia » Sat Sep 02, 2017 4:21 pm

Congratulations!! So happy that such innovative combination is working for you. Keep going, every day there are steps forward a durable response, even a cure.

Volfan
Posts: 73
Joined: Sat Mar 11, 2017 7:58 am

Re: Positive News

Postby Volfan » Sat Sep 02, 2017 4:50 pm

Congratulations
Great news!!!
Stage IV Rectal cancer with liver mets
Oxaliplatin, avastin, 5fu
48 yr dude

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Positive News

Postby Robino1 » Sat Sep 02, 2017 5:03 pm

Such awesome news!

Mine is shrinking also. Or in the words of my oncologist: They are melting!

I've only had 5 rounds of chemo and the progress is VERY encouraging. I do know how you are feeling right now and I love it! :)
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

NHMike
Posts: 2425
Joined: Fri Jul 21, 2017 3:43 am

Re: Positive News

Postby NHMike » Sat Sep 02, 2017 6:04 pm

Shana wrote:I had a CT scan Friday morning, my last one was three months ago before surgery. My oncologist called me in the afternoon to share the good news so I wouldn't have to wait until next Tuesday for results.

Liver mets have shrunk by a cm or so and the blockage is no longer there so all indications are that the Irinotecan and Erbitux regimen are working! I've only had 4 treatments at half dose so far. I'm hopeful that the next CT will show more shrinkage as treatment continues. It's been hard to stay positive after a rough start this year with Folfox. I know that it's a very long road ahead, I've read so many stories from other board members. All of them are inspiring, some I want to cheer and some bring a tear to my eyes.

I hope everyone has a great weekend!


Thanks. That is inspiring.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Positive News

Postby Shana » Sat Sep 02, 2017 7:46 pm

Thank you everyone! I know it's just one step forward but it feels good to finally take that step!

I hope everyone receives some positive news soon too. It helps keep hope alive and makes me appreciate each day!

:D
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

DarknessEmbraced
Posts: 3444
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Positive News

Postby DarknessEmbraced » Wed Sep 06, 2017 3:21 pm

Congratulations, that's wonderful news! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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