Precancerous Polyp at 23

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Overwhelmed1416
Posts: 1
Joined: Sat Sep 02, 2017 10:57 am

Precancerous Polyp at 23

Postby Overwhelmed1416 » Sat Sep 02, 2017 11:06 am

I've had "tummy troubles" most of my life. Blood, pain, cramping, etc...
I recently changed doctors and he noticed my significant weight loss (70 lbs/year) and started asking questions. This eventually led to a colonoscopy/endoscopy combo to check for Celiac. He found a hiatal hernia and a precancerous polyp which he removed, but no evidence of intestinal damage. I've been diagnosed as having a gluten sensitivity.
My doctor was 100% shocked and even referenced God, as I would have probably died before my young children finished elementary school.
What does this mean for my future? I was honestly in such shock that I couldn't even ask questions.

JJH
Posts: 167
Joined: Mon Apr 24, 2017 7:26 am
Location: Europe

Re: Precancerous Polyp at 23

Postby JJH » Sat Sep 02, 2017 2:25 pm

Overwhelmed1416 wrote:I've had "tummy troubles" most of my life. Blood, pain, cramping, etc...
I recently changed doctors and he noticed my significant weight loss (70 lbs/year) and started asking questions. This eventually led to a colonoscopy/endoscopy combo to check for Celiac. He found a hiatal hernia and a precancerous polyp which he removed, but no evidence of intestinal damage. I've been diagnosed as having a gluten sensitivity.
My doctor was 100% shocked and even referenced God, as I would have probably died before my young children finished elementary school.
What does this mean for my future? I was honestly in such shock that I couldn't even ask questions.

Will you be meeting with your doctor again soon to discuss the issue of your pre-cancerous polyp? Is the doctor planning more tests to clarify the problem?

You will probably need to have a followup colonoscopy eventually to see if new polyps develop, but the timing of the next colonoscopy would depend on what kind of polyp this was, how large it was, what histological grade it was, where it was located, whether other family members have had polyps, and other factors such as possible genetic mutations.

The article below gives a brief overview of some of the main issues. I hope you can get more clarification the next time you see your doctor. Be sure to take notes and ask lots of questions at your next meeting.

Colon Polyps
http://patients.gi.org/topics/colon-polyps/#tabs2

Lee
Posts: 5694
Joined: Sun Apr 16, 2006 4:09 pm

Re: Precancerous Polyp at 23

Postby Lee » Sat Sep 02, 2017 2:34 pm

Yes you should be scoped on a regular bases. Has any relatives been diagnosed with colon cancer? Parents, grandparents, aunts, uncles, etc.

If you have sibling, they should also be scoped.

If you can, get a copy of the pathology report.

Glad they found it early, you were lucky your Dr gave you that referral,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

veckon
Posts: 131
Joined: Thu Jul 27, 2017 7:44 am

Re: Precancerous Polyp at 23

Postby veckon » Sat Sep 02, 2017 6:41 pm

Overwhelmed1416 wrote:I've had "tummy troubles" most of my life. Blood, pain, cramping, etc...
I recently changed doctors and he noticed my significant weight loss (70 lbs/year) and started asking questions. This eventually led to a colonoscopy/endoscopy combo to check for Celiac. He found a hiatal hernia and a precancerous polyp which he removed, but no evidence of intestinal damage. I've been diagnosed as having a gluten sensitivity.
My doctor was 100% shocked and even referenced God, as I would have probably died before my young children finished elementary school.
What does this mean for my future? I was honestly in such shock that I couldn't even ask questions.


Get tested for Lynch Syndrome.
27 yo male
Metastatic rectal cancer diagnosed 12/16
Liver metastases and peritoneal carcinomatosis
Lynch syndrome, MSI-H
Failed liver resection 3/17
FOLFOX6 12/16 - 05/17
Keytruda 5/17 - present
@Memorial Sloan Kettering

NHMike
Posts: 1731
Joined: Fri Jul 21, 2017 3:43 am

Re: Precancerous Polyp at 23

Postby NHMike » Sun Sep 03, 2017 6:37 am

Lynch Syndrome is an inherited condition which predisposes to adults getting cancer in their 20s and 30s. There are two tests commonly used: ImmunoHistoChemistry and Genetic testing. The test looks for Microsatellite Instability which has to do with the ability of your cells to repair genetic copying errors. If you do have Lynch, then there are targeted drugs to treat cancers resulting from it. So it may be worthwhile for you to have the testing done.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

Re: Precancerous Polyp at 23

Postby SweetC80 » Sun Sep 03, 2017 6:58 am

It must be scary and overwhelming to get this information, but hopefully you will meet with your doctor soon to put a monitoring plan in place and ease your mind for the future. Also you should be tested for Lynch Syndrome. I have a family meme ER with Lynch and starting in his kid 20s has gone every 3 years for a colonoscopy and every time has a couple polyps removed. His doctors told him just to keep up with it and as long as they keep removing the polyps before they. Can grow into cancer he should be ok. Good luck.
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

veckon
Posts: 131
Joined: Thu Jul 27, 2017 7:44 am

Re: Precancerous Polyp at 23

Postby veckon » Sun Sep 03, 2017 12:25 pm

Lynch Syndrome is associated with a dramatically increased lifetime risk of developing many different types of cancer, colorectal just being the highest risk factor of them all. But it does not predispose you to cancer as a young adult. The neoplasticity resulting from a pathological mutation in your DNA mismatch repair genes will happen completely at random.

The reason why colonoscopies every 1-2 years is so important from a young age when you have Lynch is because that is the only way to prevent malignancies from developing in the first place, as Lynch associated tumors are fast growing and do not develop like "normal" polyps.
27 yo male
Metastatic rectal cancer diagnosed 12/16
Liver metastases and peritoneal carcinomatosis
Lynch syndrome, MSI-H
Failed liver resection 3/17
FOLFOX6 12/16 - 05/17
Keytruda 5/17 - present
@Memorial Sloan Kettering


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