Hello all. I have had to deal with neuropathy in both of my hands and both of my feet since I finished folfox in the spring of 2015. I use gabapentin but I can only use it in a relatively low dose because at a higher dose it causes me to have headaches.
I joined the local Y about two months ago and I have been going swimming there for an hour three times a week. One benefit I have noticed is that the time that I am in the pool and swimming is one of the few times throughout the day when I almost completely cannot "feel" the neuropathy. Additionally, the swimming seems to lessen the overall severity of the neuropathy throughout the day. So it is something to consider if neuropathy is a problem for you. It is unfortunate that almost 2.5 years after the completion of treatment, I still have to deal with the neuropathy, but I am grateful to be alive.
On another note, I had a colonoscopy one year after the colon resection. Precancerous polyps were removed. Even though my oncologist wanted me to wait a full three years after that colonoscopy before I had another one, my gastroenterologist agreed that a two year interval was appropriate, so I have a colonoscopy scheduled for 10/17. I will also have a CT scan in 9/17 or 10/17 and that will be my three year post colon resection surgery scan. I am starting to get a bit anxious about this one, but I am just trying to take things one day at a time.
Next week I will go to Cape Cod, Massachusetts and then to Acadia National Park in Maine for a little rest and relaxation. That will help me to keep my mind off of the upcoming colonoscopy and CT scan.
So just a little update from me. I hope everyone that I have come to know on this site is doing well. And I will probably check in here again after the CT scan and colonoscopy are complete.