Bad Reaction to Radiation

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Hopefulprayers79
Posts: 11
Joined: Thu Aug 03, 2017 3:00 pm

Bad Reaction to Radiation

Postby Hopefulprayers79 » Wed Aug 30, 2017 10:23 pm

My husband has started his radiation a week ago today.!He is experiencing a lot of pain and soreness in his rectum.He says he can't sit comfortably anymore. He tells me he thinks the tumor got bigger. I told him I don't believe the mass got bigger I just think he might be experiencing the initial inflammation they said could happen in the beginning. He talked to the Radiation Omcologist yesterday and told them he was experiencing a lot of pain and discomfort. He also said he feels like he has to go to the bathroom all the time, even when he knows he doesn't. The thing that concerns me is the Radiation Oncologist said he shouldn't be experiencing these symptoms and that it's to early on. She wrote him a prescription for steroid injections but she said she doesn't want it to interfere with the radiation in any way. Should we be concerned or is this normal?
Wife of Husband 43yrs old
Stage 3 Rectal Cancer
No family history

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Bad Reaction to Radiation

Postby NHMike » Wed Aug 30, 2017 10:54 pm

Hopefulprayers79 wrote:My husband has started his radiation a week ago today.!He is experiencing a lot of pain and soreness in his rectum.He says he can't sit comfortably anymore. He tells me he thinks the tumor got bigger. I told him I don't believe the mass got bigger I just think he might be experiencing the initial inflammation they said could happen in the beginning. He talked to the Radiation Omcologist yesterday and told them he was experiencing a lot of pain and discomfort. He also said he feels like he has to go to the bathroom all the time, even when he knows he doesn't. The thing that concerns me is the Radiation Oncologist said he shouldn't be experiencing these symptoms and that it's to early on. She wrote him a prescription for steroid injections but she said she doesn't want it to interfere with the radiation in any way. Should we be concerned or is this normal?


He may be right.

The feeling of need to go when you don't is because the mass gives you the fullness feeling. If the cancer is in the muscle then it can hurt to push on it to the point that you get some blood. To avoid pain, only go when there are signs that there is something there to come out. The problem is that you can't always tell. If it is hard to poop because the mass is so big, then use something like Miralax so that it is easier to come out.

BTW, this is my experience. I am not a doctor but your typical doctor hasn't gone through this so they don't know what it feels like.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

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ocstacy
Posts: 264
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Facebook Username: stacy

Re: Bad Reaction to Radiation

Postby ocstacy » Thu Aug 31, 2017 12:33 am

My husband has started his radiation a week ago today.!He is experiencing a lot of pain and soreness in his rectum.He says he can't sit comfortably anymore. He tells me he thinks the tumor got bigger.


I am sorry to hear about your DH having pain so soon into the treatment. My mother developed the pain that he is developing towards the end of her treatment and about two weeks after she ended. She mentioned that it felt like peeing and posing razor blades and a hot burning pain. My was constipated before she started tx and therapy and during she experienced diarrhea. Now, it looks like tissue is protruding which the nurse and dr. says it could be the tissue, hemmy, or the tumor shrinking and coming out. Whatever it is, she is in more pain than she was during the tx. She is now taking Coating for pain, sitz bath, and has to ᏞᎪᎽ down. I feel awful for her cause when I had bad hemmy's I was in the worst pain of my life and it did feel like razors.. but that only lasted a couple of weeks. I just had bad bad hemorroids from stress and I didn't get it taken care of and it got worst. Pain level was a 9.. it was unbearable that "coating" was the only med to help the pain to go away. I have looked down there on my mom and took a peak and what it looks like is "hemmy's from constipation along with radiation pain. I wish I could make her feel better.. but only time can heal.. prayers. What really helps is like they said Myralax but you will need to stop taking that, cause if your DH is taking Xeloda and Radiation he will eventually have diarrhea. Aquaphor was my mom's best friend.. good luck
Caregiver/daughter to dear mother age 78, dx 5/09/17 because of me!! :wink:
Rectal CA Stage 3 low-grade adenocarcinoma- 6 cm
Neoadjuvant start 7/10/17 ended 08/16/17
3D Lap. surgery @ Keck USC, Dr. Sang Lee 10/17/17 temp ileostomy
11/1 hospitalized abscess/hernia - home 11/06/17 antibiotics
NO LYMPHS INVOLVED! NEAR PATHOLOGICAL RESPONSE! YAY! :shock:
Took her last chemo med 05/10/18! Ileo reversal 07/24/18
1st BM after reversal 07/25/18 Anal Fissure 8/15/18
Me:1st Colonoscopy age 38. 08/17 Benign polp.

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ocstacy
Posts: 264
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Facebook Username: stacy

Re: Bad Reaction to Radiation

Postby ocstacy » Thu Aug 31, 2017 12:36 am

I had a special butt pillow made for my mom out of styrofoam. there is a hollow area kinda like the doughnut but this has more cushion. seems to help her.
Caregiver/daughter to dear mother age 78, dx 5/09/17 because of me!! :wink:
Rectal CA Stage 3 low-grade adenocarcinoma- 6 cm
Neoadjuvant start 7/10/17 ended 08/16/17
3D Lap. surgery @ Keck USC, Dr. Sang Lee 10/17/17 temp ileostomy
11/1 hospitalized abscess/hernia - home 11/06/17 antibiotics
NO LYMPHS INVOLVED! NEAR PATHOLOGICAL RESPONSE! YAY! :shock:
Took her last chemo med 05/10/18! Ileo reversal 07/24/18
1st BM after reversal 07/25/18 Anal Fissure 8/15/18
Me:1st Colonoscopy age 38. 08/17 Benign polp.

AppleTree
Posts: 267
Joined: Fri Mar 18, 2016 8:16 am

Re: Bad Reaction to Radiation

Postby AppleTree » Thu Aug 31, 2017 1:25 am

I do not know if this will help you, but I kept notes about my 5 weeks of chemo/radiation here viewtopic.php?t=54100#p429358
If I did something wrong copying the link, try searching my posts.
Peeing razor blades and urgency...anti-spasm medicine really helped. Plus several different kinds of cream.
Ask DR about taking Immodium, as needed for diarrhea. After my reversal I now take 4-6 Lomotol a day. DR just gave me a shot today because I am in max dose Lomotol and Folfox of could be stronger than that. So, always talk to the doctors AND nurses. They are usually a wealth of information.
I had to be in University, so I sat on a donut pillow.
I hope he gets some relief soon.
Hugs.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper R lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July/Oct PETs...CLEAR!

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JJH
Posts: 408
Joined: Mon Apr 24, 2017 7:26 am

Re: Bad Reaction to Radiation

Postby JJH » Thu Aug 31, 2017 3:38 am

AppleTree wrote:I do not know if this will help you, but I kept notes about my 5 weeks of chemo/radiation here:
http://coloncancersupport.colonclub.com/viewtopic.php?t=54100#p429358
If I did something wrong copying the link, try searching my posts.

That link should work for almost all users. If it doesn't work they can try the link below instead:

http://coloncancersupport.colonclub.com/viewtopic.php?t=54100&p=429358#p429358
"The darkest hour is just before the dawn" - Thomas Fuller (1650)
●●●

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Bad Reaction to Radiation

Postby NHMike » Thu Aug 31, 2017 4:12 am

AppleTree wrote:I do not know if this will help you, but I kept notes about my 5 weeks of chemo/radiation here viewtopic.php?t=54100#p429358


I'll certainly read through it.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Bad Reaction to Radiation

Postby DarknessEmbraced » Wed Sep 06, 2017 4:15 pm

I'm sorry your husband is having so much pain and hope his doctors will be able to give him something which will help!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

BIG ROB 69
Posts: 63
Joined: Sun Aug 28, 2016 2:00 am
Location: Long Island, NY

Re: Bad Reaction to Radiation

Postby BIG ROB 69 » Fri Sep 08, 2017 2:19 am

Sorry for your troubles, butt always listen to the patient. Morphine works for me. It takes away that feeling of always having to go to the bathroom.
3/18/2015 DX CC Stage3/4 49YO MALE IN NEW YORK
Inoperable...hepatic artery
11/15 oper to rem block...colon bypass
4/16 oper to remove scar tissue
5/16 Lynch pos.
10/16 Two bile tubes installed to relieve jaundice
So far I have done the three main chemo drug rounds and on 12/19/16 start Keytruda.
No chemo after 8/3/16 CEA: 10/14/16-409 12/19/16- 887 Mostly my CEA was in the 140-180 range.
CEA: 1/9/17-415 1/30/17-156.2 2/20/17-120.8 3/13/17-98 4/21/17-83.6 5/12/17-64.7 6/1/17-32.1
7/25/17-32.6


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