NHMike wrote:
You were either at a place with an in-house lab or with a very fast delivery service. My biopsy was sent out to the Mayo Clinic (NH to MN) for a reading so I expected at least two days. I think that it was actually four. I'm still waiting for the results of genetic testing to return and I think that it's been three weeks.
I find that the online portals are great for getting lab results and everything else quickly. I have four places that I went to with portals that I've set up and I haven't set up the portal with the Radiology place - not completely sure that they have one. But I can email back and forth with my oncologist through the portal and that's the easiest way to communicate. The alternative was to call the nurse and wait for a call back and that's what I was doing for a while.
My tumor was sent straight away to a lab about 2 hours driving distance from the hospital.
So that probably helped with the quick response time. Unfortunately it was a lab outside of network to my insurance.
So I paid a pretty hefty bill on that one even though I had reached Out of Pocket Maximum with the surgery and all procedures pre surgery.
I've set up a couple online portals. I get all my in house lab results on the portal and that is helpful, although I request printed reports the day of my infusion
so that I can see for myself the bloodwork results and have hard copies. I've noticed several of my old lab results have disappeared on the portal - so I'm glad I have the hard copies.
I've tried emailing my ONC through the portal, but never received responses so if I really need to talk with him I call the Triage Nurse after hours and always get connected with my onc directly.
He probably hates those late night calls, but if that's what it takes
..
Also from my personal standpoint I think the digital side of the healthcare system is lacking.
I can envision a portal that allows patients to simply upload a picture and description of the symptoms they may be having.
Then a nurse, practitioner, doc or whatever could directly respond to the patient input as opposed to telling them to come in and be evaluated.
A huge time saver and load reduction to the Triage Nurse could be realized.
I have HUGE respect for the nurses at my center and nurses in general. They are the ones doing most of the work, right there on the battle front.
They see the best and worst of the patients, all the while maintaining dignity and a caring nature. Unfortunately not all of them are up to snuff on the latest information and drugs.
Reduction of the workload might allow them time to keep up with modern research and information.